Kevin joined our family in February 2010 with pulmonary hypertension, single ventricle, heterotaxy, VSD, and a few other heart anomalies.
Before we brought Kevin home, we knew there was a possibility that he would not be a candidate for a heart repair surgery. Just a few weeks after arriving home, it was confirmed that his pulmonary hypertension was indeed too severe to sustain a heart repair surgery. Thankfully his surgeons implanted a BT shunt to redirect blood flow from his lungs to try to decrease his lung pressures.
730 days ago, Kevin had a heart cath to see if the BT shunt had done its job.
Were his lung pressures low enough for surgery?
They were not.
But they were lower than before, praise God.
And so we were sent home to let Kevin live life and wait.
Not to live life as Kevin, a little 3 year old with a complicated heart, but as Kevin, a little 3 year old who loves to play hard and be silly and talk much and sing even more. (and maybe aggravate a few siblings just for good measure. 🙂
The past 730 days we have gone in for echo-cardiograms every six months to see if there are any significant changes.
There have not been any….until this past June. 🙂
Kevin’s oxygen had increased from lower 80s to the mid 80s. His heart looked good and strong on the echo.
And so our doctor thinks its time.
Time to check those lung pressure numbers.
So 730 days since his last heart cath, exactly TWO YEARS to the day,
Kevin will have another heart cath.
Will his lung pressures be low enough for surgery?
It’s been a wonderful 730 days. I’m not gonna lie, when you don’t have a heart cath staring you in the face, it’s easy to slip into the land of denial, forgetting that we have a son with a serious heart condition.
Thankfully, we don’t face this alone. He is with us. He never leaves us. And ya know what? He loves Kevin more than we can imagine.
God’s will is always best. ALWAYS! So that’s why we’re praying for His will in Kevin’s life.