Facial Deformity

Visit these blogs to read about families who have adopted children with facial deformities:

It is Once Upon a Time
Ordinary Time
Gathering from the East
Casa de Alegria
Smiles and Trials
Flectamus genua

Linear Nevus Sebaceous Syndrome

Facial Deformity is a catch-all phrase to describe the visual results of varied and diverse causes for a child to look different. Facial differences can happen in utero or can be the result of a traumatic event, such as being burned or from tumor growth not related to neonatal development. Some of the genetic syndromes which are associated with facial deformities include Crouzon and Apert Syndromes which involve craniosynostosis (a term referring to the early closing of one more sutures in an infant’s skull); Klippel-Trunaunay Syndrome, which includes port-wine stains and venous and bony overgrowth (this can also affect other areas of the body as well); Neurofibromatosis, which causes tumor growth along nerve endings in the skin, brain, and other parts of the body, and Linear Nevus Sebaceous Syndrome, which causes overgrowth in utero of skin, brain, and bone tissue. Other ways the face can be affected are by birth marks (vascular malformations or hemangiomas), nevi, port wine stains, and clefting, including lip and palate (covered more fully in another area) and facial. Many of these deformities can be corrected with surgery, though multiple surgeries are often needed. 

Resources:
Plastic and Craniofacial Surgery for Infants and Children
Little Baby Face Foundation
Children’s Craniofacial Association
Children’s Craniofacial Association Yahoo group
Friendly Faces
Stanford Children’s Health
Changing Faces
About Face International Facebook Page
Apert Syndrome Awareness Facebook Page
My Mary Kate Facebook Page

 

Read blog posts about Facial Deformity on No Hands But Ours. (story coming soon!)

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