Urgent Medical Need: Gil

June 30, 2016 by nohandsbutours 0 Comments

Gil was born in January 2009 and found abandoned in a hospital when he was 18 months old. He has been diagnosed with severe Thalassemia. He is receiving regular blood transfusions, however, agency reps who have met him and followed his care say his treatment is not sufficient and the ramifications of his disease are progressing. He needs a committed family urgently.


Upon admission into the institute it was noted that his development at that time was poor and he was very weak. He couldn’t sit, crawl or stand. This little guy has come a very long way since his initial examination! At the time of his report he was 6 years old and was able to drink from a glass, feed himself, dress and undress himself and was fully potty trained. He was said to be very smart, active, cheerful and polite. He enjoyed playing games with adults, listened well during stories and helped his caretaker when able. He can walk, run and go up and down stairs by himself. He holds a pen to draw and can write numbers, read a watch, knows his colors, right and left, and puts puzzles together without help.


Gil has clear pronunciation when he speaks and communicates freely. He shares toys with peers and attends school within his institute to learn math, music, art and common sense. He is said to be a smart and sensible boy and his caretakers hope he will be adopted by a loving family.


Agency reps who have met and advocated for Gil have said, “Gil may be a little guy, at 7 years old he stands about 3 ½ feet tall, but his personality is mighty. Somehow he manages to simultaneously be calm and rowdy, silly and serious, shy and outgoing. One minute he is fully engrossed in the picture he is coloring, the next he is flopping around in the ball pit. One minute he is hamming it up for pictures—tilting his head to the side, flashing the peace sign, and grinning ear to ear—the next he is on the floor intently doing a puzzle. And during it all, he just has this endearing nature. His sweetness draws you in.”


Gil’s blood is occasionally checked and he receives transfusions to help manage his Thalassemia. In August 2015 he was diagnosed with Severe Thalassemia, Iron Deposition Disease and Splenomegaly. He is in urgent need of a forever family to give him the adequate medical care he needs to survive! Gil is now listed with WACAP and has a $4,000 grant.

Books as Tools for Adoptive Families: My Family’s Favorites

June 29, 2016 by nohandsbutours 1 Comments

My colleague Maxie once told me that carpenters carry hammers, doctors carry medical tools to bring healing, but the tools of professors are books. As I have morphed from professor to “mommy professor” as Lydia calls me, this statement has stuck with me, and I have found that books are important tools to help our family.

I have written about books frequently for No Hands But Ours, and those articles are referenced at the end of this post.


Chinese Culture

Easy Chinese Recipes: Family Favorites from Dim Sum to Kung Pao – Lydia and I love to cook together. Our favorite Chinese cooking recipe book offers excellent advice and tips to cook authentic tasting Chinese food. We love to go to our local Asian food market, buy ingredients, and make a meal together. The book is not intimidating at all.

Moonbeams, Dumplings, & Dragon Boats – this book is an excellent resource for Chinese holidays, crafts, and recipes.

The Empty Pot – A kind reader of No Hands But Ours sent my family this beautifully illustrated children’s book with a great moral. It has quite simply become my favorite children’s story I have read, and I love that it takes place in China.

The Pet Dragon: A Story about Adventure, Friendship, and Chinese Characters – This children’s book tells a fun tale of Lin and her pet dragon. The illustrations use Chinese characters in fun and creative ways, much like Chineasy.

Chinese Children’s Favorite Stories – Recommended for children in kindergarten to eighth grade, this book contains many stories of Chinese folklore.

Teaching About Differences

Both of my children have differences that are visible to others. Parents have often asked which books I recommend to teach other children about differences.

Different is Awesome – This is my children’s favorite book about differences. When my daughter was on the receiving end of some teasing at preschool, we used this book to educate others. The book is written by Ryan Haack, an adult who was born with a limb difference. The book teaches about a variety of differences in a positive, and kind-friendly way. I highly recommend this book to all parents, teachers, and librarians.

It’s Okay to be Different – The book has the reassuring message that it is okay to be different. I love that this book includes disabilities as well as a whole host of differences (adoption, divorce, feelings, etc.). The message is very inclusive, and is suitable for young toddlers and elementary ages. It is a great book about self esteem whether or not your child has special needs. However, this book is a great introduction to talking with your child about disability and special needs.

Lydia and I spend a lot of time at different clinics because of her therapies, and because of this, we meet lots of children with a variety of special needs. I often use this book as a script with Lydia when she asks a question or makes a statement.

We’re Different, We’re the Same – This book pertains to all kinds of differences with the Sesame Street characters we know and love.

Stand Tall Molly Lou Melon – Although this book is not about disabilities, it is a book about differences. Molly Lou Melon is a short little girl who has the voice of a bull frog and huge buckteeth. When she goes to a new school, she meets a boy who is a bit of a bully. This is a precious story about differences and treating people with kindness.

Adoption Books for Children

Let’s Talk About It: Adoption – Our favorite book about adoption is currently out of print, but is easily found online. It often bothers me that many of the children’s adoption books are written from the parents’ perspective, however, Fred Rogers does such a great job discussing adoption and the emotions involved. The book is very positive, and has helped my daughter begin to understand what adoption is. It is a great book and needs to be reprinted.

Horace – Horace is the sweet story about a little boy who is struggling because he looks different than his adoptive parents. The children’s book is a great read from transracial adoptive families. Though it is also out of print, it can be found used online.


Preparing Your Child for Surgery

The Surgery Book: For Kids – When the child life specialist met with our daughter to help prepare her for surgery, she was so impressed by how much Lydia already knew. The specialist asked us to please send them the list of books we read to our daughter to prepare her. Our daughter loves detail, and The Surgery Book delivers just that in a way that calms fears. The kindle version of the book is extremely affordable and was helpful to read from the iPad.

Teaching Social Skills

Social Skills for Kids – Though this book is written for much older kids, it has helped me with ideas to teach my gifted preschooler the social skills she needs. As she gets older, I only see this book becoming even more useful.

My Previous Articles about Books

If you would like to read some of my previous posts about books we love:

Tackling Food Issues: My Family’s Experience with Love Me, Feed Me – It is common for children adopted internationally to have food issues. In this post, I write about how the book Love Me, Feed Me changed mealtimes in our home. Five months later, it is still working and I still believe agencies should require waiting families to read this book.

Recommended Resources for Parents: Books – I am often asked which books adoptive parents should read to prepare for adoption. This is my list of favorite books, though I would also add Love Me, Feed Me to the list.

How Children’s Books Have Helped My Family – I have also found children’s books to be helpful with bonding and attachment. We recently adopted a little boy, and he first let me show him physical affection while reading one of the books in my post and giggled and giggled with delight. Both son and daughter consider these books winners, and I do too.

Creating a Book to Help Children in TransitionsI wrote about the book my friend Kelly wrote to help my daughter with all of the transitions we would encounter during our adoption trip to China to adopt her little brother. Kelly wrote an amazing post about how other families can easily create a similar book. This book could be easily modified for summer travel. Kelly includes the template for readers to download so that they can make their own.

Part of Your World: A Mermaid Tale

June 28, 2016 by nohandsbutours 2 Comments

We first saw her profile on our adoption agency’s web page. Her special need was listed as lower leg deformity, a layman’s term for fibular hemimelia, a congenital condition of missing/shortening of fibular bone, curved tibia (shin bone) and underdeveloped foot. I turned to my husband and said: “Hey, she looks kinda cute, but we can’t adopt her. My mom would freak out.”

Months earlier when my mother first learned about our decision to adopt a child with special needs, she lost sleep and cried for several nights. When she was an infant, she contracted polio. Thus became the one with a “leg problem” for her whole life. She told me the tears that my grandmother shed for her could have made a river.

Understandably, parenting a child with a disability in my grandmother’s era, especially in an Asian culture, probably wasn’t the easiest thing to do. “I don’t want you to suffer like that,” she said. I assured her that we didn’t even check “leg problem” on our special needs list.

My husband said to me in a disagreeing tone, “Is your mother going to raise her or are we going to do that?” I looked at him in surprise, realizing he was serious about this child. So we contacted our agency and, long story short, five months later she officially became our daughter.

My mother’s reaction when she first saw our daughter’s picture (which I intentionally cropped) was: “She looks like you when you were little!” Then in a few seconds, she asked, “What’s her problem (meaning special needs)?” I sheepishly said that she had a moderate “leg problem.” Her response was not what I expected. “Tell her to be confident. A leg problem is not a big deal. You can still lead a full and meaningful life. Just look at me!” Apparently my grandmother’s tears and effort had paid off – and that’s probably why I’ve never really had a problem with a “leg problem”!


A divine appointment

Due to the doctors’ availability, our first medical appointment was not to an international adoption clinic, but to an orthopedic surgeon at CHOP – Children’s Hospital of Philadelphia. The surgeon rushed us through the options we had after a long wait. Basically, amputation would be an easier and quicker fix with one surgery, while leg lengthening/straightening procedure requires a series of surgeries throughout childhood. Although what the surgeon told us agreed with our prior research, I still felt the need to have a second opinion.

A fellow adoptive mom in Guangzhou gave me a phone number of her friend whose daughter had a similar condition. I called that momma from Alabama. Her daughter had the lengthening procedure at the Limb Lengthening Center in Sinai Hospital, Baltimore. It was a very informative conversation. The next day after our phone call, she texted me asking if my daughter was from Baotou? Yes, she is! This momma then texted me a whole bunch of my daughter’s pictures when she was 14 months old, a year before we adopted her. It turned out she went to Baotou on a mission trip and because our daughters had similar conditions, she was drawn to her and “prayed and prayed” for my daughter. This of course brought tears to both of our eyes. What a divine appointment and no wonder I felt such an urge to call her for advice!

Another divine appointment happened later in Sinai Hospital’s waiting room. I saw a Caucasian woman pushing an Asian girl in a stroller. Thinking this could be another adoptive family, I struck up a conversation with her. The little girl was also from China – the youngest of the seven girls adopted from China. I told her where my daughter came from — her state orphanage and her foster center. This woman then scrolled on her phone and showed me a picture… “Is this your daughter?” Yes! The photo was taken a week before we met our daughter. She had visited my daughter’s foster center! I felt so amazed and touched to meet a complete stranger who was able to provide us with another piece of my daughter’s history.

I was even more touched when I learned why this woman visited the foster center. One of the girls this woman adopted had died from a complicated heart condition due to lack of proper care when she was in China. This woman promised her daughter that she would help children who also were born with complicated heart conditions. She formed a charity organization to train orphanage staff and Chinese doctors to recognize and treat children with heart conditions. On one of her mission trips she visited my daughter’s foster center and took that picture of her. I started to realize how fortunate I was to be part of such an incredible community through my daughter’s adoption.

The amputation and a mermaid leg

I thought the consultation in Sinai Hospital with Dr. Herzenberg would put us in a hard place to make a decision. I expected him to persuade us to go through the leg lengthening procedure because that’s his specialty. But after seeing my daughter’s x-ray, he told us that the condition of her leg was quite severe and her ankle was very fused. Even if she went through the lengthening procedure, my daugher still would not have a very functional foot, plus she’d have a weaker leg (they can lengthen the existing tibia bone, but can’t give her the missing fibula bone).

He went on to tell me that there’s nothing that would stop my daughter from doing whatever she wanted to do. And then looking me straight in the eyes he said, ”Don’t worry, she won’t blame you… she won’t remember at this age.” I don’t think he was trying to persuade us in either direction. But I felt relieved that for our case, the decision of amputation was going to give our baby the best quality of life. My husband liked Dr. H for his knowledge and experience. We decided to have Dr. H as our surgeon for this surgery, and tibia straightening to fit a prosthesis later.

The surgery went smoothly and our hospital stay was only a few days. The harder part was the five weeks after the surgery when our little girl was in a spica cast that wrapped around her leg all the way up to and around her waist. No shower, creative diaper changes, and not much moving around made for a cranky girl who had nothing better to do than to watch movies on the iPad. Plus two weary parents who had to carry a cast-laden girl up and down the stairs. After the cast came off, we waited about six weeks for our surgeon to give us the go ahead to have the prosthetist make her new leg.

Shortly before our daughter’s surgery, my husband broke his toe and had to see a foot surgeon. He asked the doctor who he’d recommend for a prosthetist for our daughter. He recommended Swiss Orthopedics. And that’s eventually whom we decided to use. We were impressed with their professional knowledge and that they make their products in-house.

One thing they asked us to do was to decide on a favorite pattern. They would laminate it onto on the leg so it’d be more fun and meaningful to wear. I thought our daughter would pick a Queen Elsa pattern (and that’s probably what most little girls would choose, isn’t it?), but she chose the Little Mermaid instead. One of the first things we noticed about our daughter was her love of water – water for hand-washing, teeth-brushing, drinking, toilet flushing, water in any shape or form – and not to mention water for swimming!

And the day finally came. The prosthetist put that mermaid leg on her and for the first time, I saw my little girl standing with both legs. I couldn’t help but cry. Our little mermaid finally got her leg! She started to walk, to swing around and dance. She was so in love with her leg.

However, she isn’t too in love with the physical therapy sessions that we have to go through twice a week. Children’s Specialized Hospital has a great gym facility and nice staff, including a receptionist who always gives my daughter special treats. At first she was very excited to go to the gym. But between the hurtful stretches, difficult movements, and having to walk a certain way (the correct way) instead of her own way, she lost her willingness to cooperate.

Eventually – with mommy’s persistence, the dedication of a physical therapist and prosthetist, and the wisdom of Dr. Uustal, a rehab doctor who specializes in prosthesis – the little mermaid was able to walk and run like any other three year old in just two months.


Part of your world

In Disney’s “Little Mermaid” movie at the end when Ariel finally marries the prince of her dreams, the background music sings the song of her heart: “Now we can walk, now we can run, now we can stay all day in the sun. Just you and me, and I can be part of your world.” Although our little mermaid can walk and run with us, I feel it was not her becoming part of our world, but us becoming part of hers.

We’ve entered the world of special needs because of our daughter. When I see parents with children who have special needs, I’d want to pat them on their shoulder, let them know that they’re not alone, pray for them and cheer them on. I’d want to be their friend so I can find out what kind of incredible journey they’ve been on and how God has offered them hope on this long and difficult road.

As we have entered the world of adoption, we have realized that this is a world full of traumas and losses, yet at the same time of love and redemption. In one of the Empowered to Connect conferences I came to realize that God had called an army to join Him in the orphan care ministry, and what an honor it is to be a part of it.


I probably will never fully grasp the depth of my daughter’s losses and traumas, the extent of physical difficulty she does and will experience, or the emotional impact due to people’s lack of understanding of her special need. But through our little mermaid, God has opened our eyes to a world that we never knew existed. I am forever grateful that we get to be her parents, and to be part of her world.

– guest post by Yih-Pai

Waiting Children: Holden and Arlo

June 28, 2016 by nohandsbutours 0 Comments


Holden is almost 3 years old and has a sweet smile. He is described as full of energy & ticklish. He has repaired cleft lip and palate and his file notes that his development is behind other children his age. As of Dec 2015 when his file was prepared he was able to sit up …Read More

What exactly is “smart parenting”?

June 27, 2016 by nohandsbutours 8 Comments


I figured when I shared here on NHBO about our decision to wait to see Finding Dory on DVD that it would be a well read post. The movie had just come out which meant that there were a whole lot of mamas and dads perusing the web for reviews and the like before a …Read More

No Limits: Adopting a Child with Amniotic Band Syndrome

June 26, 2016 by nohandsbutours 0 Comments


As mom to four biological boys, I remember the ultrasound appointments where the heart, kidneys, bones and limbs were surveyed and carefully measured. I was blessed with healthy boys and encouraging news from each of those prenatal appointments. Often, I wonder if my girls’ China mommies had ultrasounds, and if they knew prior to birth …Read More

I See Love By Choice

June 25, 2016 by nohandsbutours 7 Comments


Sometimes I can’t bear CNN. I can’t stomach Facebook. My heart can’t hold another story of gut-wrenching loss, more video of violence, another photo of a child swollen from hunger, yet more stories of families fleeing from hate in their homelands. I can’t read another word about ugly politics or strands of hateful, intolerant status …Read More

A Few of Our Favorite Books

June 24, 2016 by nohandsbutours 1 Comments


We love reading at our house. Love it. As a middle school Language Arts teacher, this love makes my heart soar with delight. So. Yes. We have a ton of books. And yes, we have many, many books about {China} adoption stories. As well as stories set in China, stories about China, toddler/preschool books with …Read More

Why We Won’t Be Seeing Finding Dory on the Big Screen

June 23, 2016 by nohandsbutours 38 Comments


*updated to add: due to the wide readership of this post, and the resulting comments, a follow-up post can be found here. Debuting on the 17th, Finding Dory has blown box office records out of the water, making its debut the highest grossing one for animated movies ever. It’s as if the crowds have been …Read More

5 Waiting Children from Bethel China

June 22, 2016 by nohandsbutours 0 Comments


During the month of June we are joining Bethel China in highlighting children who are available for adoption. All of these children are blind or have significant vision loss. All of them need a forever family. For more information on any of these children, please email Anna at Bethel China. Josh is five-year-old boy who …Read More

© 2016 No Hands But Ours

The content found on the No Hands But Ours website is not approved, endorsed, curated or edited by medical professionals. Consult a doctor with expertise in the special needs of interest to you.