Dear random shopper in the Target check-out line*** that is staring at me and my children and is just dying to engage us in a conversation about adoption

I see you.

And my children see you watching them.

And even though you have a smile on your face, you are still drawing attention to us.

I totally get it. You see, I used to be just like you! I’d see a family that looked a bit… hmmmmm… what’s the right way to put this… mixed. Not all the colors match up. The body shapes, skin tones, and/or hair and eye colors didn’t all go together, and it was obvious that there was more than one baby mama going on. And like you, I wanted to know more about adoption! I wanted to know the story, the how comes and the whys, the little and big details because I was considering taking this big leap of faith called adoption. I was thinking I wanted to adopt a child, and add a child to our family in this unconventional way. I wanted to get more information and a first-hand account of what it’s like! And like you, I may have not known a good way to approach a total stranger in the check out line of Target. So I often just stared, and smiled, and thought about the right way to say something. Sound familiar?

So before I tell you the way I’d like to be approached, here are some tidbits of information to please consider before you say anything.

This may not be a good time for me to talk. We are in Target after all. I just wrangled 3 young kiddos through shopping, each of whom did their best to persuade me that they must have Every. Single. Thing. that we passed. I am now simultaneously juggling my car keys, my debit card, several bags, my purse, a sippy cup, a baggie of goldfish crumbs, and a two-year-old who wants no part of sitting down in the cart. I’m also trying hard to distract a 5 year old from having a temper tantrum over gum that I will not buy, and redirect another child who is trying to engage a total stranger to push her “Fire Dog button.” I can’t seem to remember the code for my new debit card. And I might be 30 minutes late to my next appointment that I haven’t remembered I even have yet.

So now might not be a good time for me to talk.

And that’s ok.

If it is a good time for me to talk, and even if I really want to share adoption information with you, my children may not want me to talk to you, especially if they are old enough to understand what we are talking about. I’m sure you’ll understand that what is best for my children trumps absolutely every single good thing that we could talk about or any information that you may take away from our conversation. Anything I’d like to say or anything that you’d like to know pales in comparison to what is best for my child! You see, my kiddos, especially as they’ve gotten older, don’t want to stick out in a crowd. They want to blend in. And as you’ve already noticed, they don’t come by that “blending in” thing easily. As they get older, they probably don’t want to be talked about especially in reference to how they are different. They already look different from their parents and community, and often all they want to do is to look the same when they obviously can’t. They don’t want to be anyone’s child that was adopted or a topic of conversation. They just want to be plain ol’ children in the checkout line of Target. So I may not talk to you because my child is in earshot and/or has no desire to be the poster child for any cause. Albeit a truly wonderful cause.

I am not a saint. I have not “saved” anyone. I am not in the saving business as that is only for God. I simply wanted a child to call my own and to be his mama. I am not a better woman than any other mother that wanted a child. I have awful moments. I yell. I lose my patience. I do things I regret. I don’t actually know what I’m doing most of the time and have become a master at “winging it.” I’m just doing the best I can.

My children are not lucky for being adopted, so please don’t say they are. They are not lucky to have been adopted, to be adopted by us and in our family, or to be United State’s citizens. Children from adoption have already endured heart-breaking loss, including the loss of their first families, and often the additional loss of the their language, culture, and their heritage. And they have often lost the ability to blend in with their family when they are in at the the checkout line of Target. These are facts that make them far from lucky.

If you want information on the specifics of how to adopt a child, I am not a good source of information. The process of adoption continually changes, as do different types of adoption, and the specific processes from various countries. If you want hard facts, you would do much better to do research online and call an adoption agency (or two or three or more of them) and get information from them.

If however you are looking for a first-hand account of what it’s like from a mother’s perspective to adopt a child, (or a child with a special need, or a child of a different race) then I would be able to tell you about this. But you may be surprised at the answer . . . because it’s really short.

It’s not really any different that than being a mama to any child.

Do not ask for the details of my child’s past. Do not educate us on the horrific effects of China’s one-child policy. . . even if you whisper. Do not ask how much our child costs. Do not ask about his orphanage or his first mom. Do not ask about her “real” family, if we know them, and why they did not “keep” her. Do not ask if she knew her mom or how she came to be adopted. These details, if known, are precious to my child and are her information to keep a secret especially from strangers if she desires. Also know that this information is incredibly sensitive to her. Just as you don’t want to share the intimate details of your life or marriage or the most difficult gut-wrenching times in your past with strangers, my child does not want you to ask him questions about it or want me discuss it with you either, especially in the checkout line of Target.

Now random stranger, just a little reminder. . . if you would like information regarding our adoption simply because you’re wondering about my children and why we chose to enlarge our family in this unconventional way, and want to know 411 to satisfy your own curiosity, I suggest you find another source of entertainment like reality television. Or juggling.

Please understand if I correct some of the terms and/or phrases you use. I am not trying to hurt your feelings, and I really do know that your questions are well meaning. But even so, words can be offensive and hurtful, and this is a wonderful opportunity to help us all use better terms and phrases that help children grow in a healthier and more considerate community.

I am their real mom.

They really are brother and sister.

All my children, regardless of how they came to our family, are our own.

Please refer to them simply as children, not adopted children or children that have been adopted.

My children are from Scottsdale, Arizona. Yes, I know that’s not what you meant, but that is where they are from.

Now, like I said before, I used to be you, and I too really wanted a first-hand account of what it’s like to adopt and raise a child that didn’t grow within my womb. But I was often at a loss for the best words on how to start the conversation and certainly didn’t want to say the wrong thing or at the wrong time. I totally understand your thirst for information. I think most (but certainly not all, and that’s ok too) parents who have adopted, given the right setting, are willing to share their first-hand experiences if you have good intentions.

So in hind sight, I recommend saying something like this.

1–State your intent. “I’m in the process of adopting a child…” or “I’ve always wanted to adopt.”

2–Then follow it up in the same breath by opening the door of conversation a tiny bit with something like, “I’ve always wanted to know more about the process. Could you tell me where I could get more information?” or “Is your daughter Chinese?” or “You have a beautiful family!”

Then see what type of response you get back. Like I said, I saw you looking at us, and I already know what you’re digging for even before you said anything. So after you state your intent and open the door a bit, you’ll get the idea pretty quickly if now is a good time or not for me to engage in adoption conversation.

And if it’s not a good time, perhaps I avoid eye contact, or my answer is short or curt, please don’t be offended. It just may not be the right time and/or place for such a discussion.

Please understand that first and foremost I always have the very best the interest of my children at heart.

So thank you, random shopper in the Target check-out line*** that is staring at me and my children and is just dying to engage us in a conversation about adoption. Thank you for listening.

I knew you’d understand.

Sincerely,

Nancy

***please feel free to insert any of the following
- random stranger at Walmart
- random stranger at the produce section of the grocery store
- random stranger as we order our sandwiches at Subway
- random stranger in the pew behind us at church
- random stranger sitting next to me in the waiting room of the pediatrician’s office
- the mom of the my son’s new friend at preschool
- our neighbor that we only see at Halloween and when she’s walking her dog
- the teller that I see every single time I go to the bank who has friend from high school who just adopted a little girl from China too
- the entire extended family that was leaving The Olive Garden as we were being seated
- the receptionist at the orthodontist that thinks she knows our family so well, but really do you?
- my sister-in-law’s colleague that is currently having infertility issues that I just met at a baby shower
- Uncle Weldon’s new “lady friend” that I was recently introduced to who did a mission trip to the Philippians in the 1980′s and is joining us for Thanksgiving dinner



Fresh Starts

There’s something about fall that renews my mind and soul. The crisp air that blows in at sunset, the comfort of Starbuck’s pumpkin spice lattes, the anticipation of new activities and routines. I was that dork in college who loved buying new school books at the beginning of the semester. Unmarked pages, unbattered notebooks, unused pens. It’s that invigorating feeling of having a fresh start. A blank slate. An opportunity to begin anew.

In my personal life, I’ve been craving a fresh start. Sleep deprivation combined with hormones, figuring out the logistics of life with four kids, and handling all the details of a new school year has created a monster in me.

Grace, our adopted 3 year old, loves her new baby sister but has struggled to adjust. She is whiny, demanding, mischevious, and rebellious. She has regressed to getting into our bed every night and sucking on sheets (which was her coping tactic since her life in China). I’ll be completely honest with you and admit that I’ve not handled Grace’s behavior in a healthy manner. Yes, Grace has needed to be disciplined. But she has also needed reassurance and attention. And all I’ve wanted to do is have some space to myself. I have responded often out of anger and impatience rather than love and understanding.

I have felt like Grace and I are stuck in a vicious cycle. The wisdom from adoption/parenting books has been echoing in my mind, and I realized that there is no reason why I can’t make a fresh start and employ new parenting strategies. And there’s no reason why I can’t sit down with Grace and explain the refreshing joy of do-overs. We can set aside our patterns and try to establish new ones.

But for adopted kids, fresh starts may have a traumatic connection for them. If you think about it, any change or “new beginning” in their lives usually involved a shift in caretakers. These changes probably involved loss, sadness, and fear.

For Grace, she experienced these changes when her birthmother left her at a gate to be found…

when she left the familiarity of the orphanage nannies for the nurses at the hospital where she had surgery to remove a teratoma on her tongue…

when she left the hospital to return to the orphange, only to once again be taken from the nannies and moved to a foster family in the countryside…

when she was abruptly taken back to the orphanage and then thrust into the arms of a strange-looking couple who would take her across the world to yet another home.

As I write this all out, I realize that the change of a new sibling (and all the attention that a newborn demands) has probably led Grace to believe she is losing me.

As I ramble through this post, my three points are these:

1) that when change comes along, adopted children usually require extra patience and care because of their background. Almost all young children struggle a bit when a new sibling joins the family. However, it’s important to remember that adopted children may need more to keep bonding strong and intact.

2) that as adoptive parents, we have the opportunity to teach our children the joy of new beginnings. We can show them how refreshing these fresh starts can be and that they don’t always involve loss. If they feel like their transition into the family or America hasn’t been as they’d imagined, they may find hope in being granted a “do-over.” Whether it’s the fun of a fall football game, or enrolling them in a new hobby, we can show them that “new” can be exciting and positive.

3) that if you feel caught in some type of cycle or pattern which seems unsatisfactory, it’s never too late to make a fresh start. We all deserve second chances. And third and fourth ones too.

So instead of beating myself up, I think I’ll go spend my energy on some quality time with my 3-year-old daughter.  Happy Fall to all of you! And let’s celebrate new beginnings.



Now What?

Over the last seven years I have been in some stage of the adoption process. Dossier paperwork, waiting for approvals, stalking RQ, following blogs, doing home study visits, etc. You get the picture. Bringing my girls home became a full time job (obsession) for me! Some of us may call it the nesting period while you wait. Regardless of what we call it, it was a special time. Full of highs and lows, but filled with so many amazing blessings. Three trips to China in five years! Incredible!

August 8th we celebrated our one-year “Gotcha” day with our baby girl, Emme Jade.

We had our last Home Study visit in July to finalize our commitments to China!

In my heart I feel confident that our family is complete. I am realistic to know my limits, and I think I am there. But, I also know that if God called us back again we would be obedient. But, for now, I sense He is telling us to do our very best to manage the mayhem we have been blessed with. I am not sure how I feel. Part of me is relieved. The other part of me will miss the anticipation of adding another child to our family through adoption! And, mostly that incredible moment when a child I have waited so long for walks in to my life and leaves their tiny hand prints on my heart forever!

I can’t help but wonder, what’s next? Adoption is what I know. Perhaps it’s time for me to “obsess” over the day to day that is calling me now: The house, the laundry, the meals, the homework, their activities. It’s a new season for me! Three in school all day, and one gone four mornings a week! WOW. What should I do with that extra time in my day? I am excited to have more time and energy to do what God is calling me to do now. I think I have come to the conclusion that God is calling me to focus on the blessings that are in my care! And to do it joyfully, and to do it well! So with a renewed hope, and an acceptance that my next trips to China will most likely just to be to visit, I will move forward! My toe will always be in the Yangtze River… My work at Pearl River Outreach blesses me in that way! I will never stop following, celebrating, and loving the precious children of China.  Especially, the ones who wait!

Whatever your adoption stories, I hope today you feel amazingly blessed to be a part of this very special journey!



What We’re Reading: Links

From the last few weeks, some good stuff we’ve read that relates to adoption and/or parenting a special needs child.

As always, if you are a traveling family, or have posted something, or read something, that you’d like to share here on No Hands But Ours, please let us know at nohandsbutours@gmail.com.

In the news:

Check out a new ministry created by China adoptive mom, Amy Kratzer. Forever Hope is a non profit, Christian ministry that seeks to provide adoptive families with personal care and support, connection to valuable resources and a network of supportive relationships.

And Nicole, mom to a little boy with Thalassemia, has created Choosing Thalassemia – an entire website devoted to Thalassemia as a special need. Fabulous resource for anyone considering or parenting a child with this special need.

Read about the Mid-Atlantic Burn Camp, “where no one stares, the scars don’t matter and kids can just be kids.”

Blog World:

Yvette, who blogs at Bringing Home Holland, looks back on the 9 months home with son Cavanaugh (adopted from China with a SN of limb differences) and is amazed at how those 9 months have changed him, inside and out.

Monica, big sister to Reese adopted from China in 2007, shares the wonderful news that her parents were recently granted TWO waivers from China to bring home their newest family member, Ana-Cherie. Exciting news for them, and encouraging news for other families that might need a waiver (or two) in order to adopt from China.

Carrie, from To China We Go, looks back on the six months since bringing daughter Abbie home from China and shares her thoughts on parenting a special needs child.

And Ann, from Crazy For Kids, is mom to Kim who was adopted from China with a SN of cleft lip and palate. Kim, now 15, recently had her final surgery and was interviewed about what it is like to have CL/CP… her answers will most definitely be of interest to anyone parenting a child with similar special needs.

Traveling Families:

Recently home from China

The Aiden Adventure
Everyone Eats Rice
Lynch Life
Everyday’s An Adventure
Anything but Lokey
Under the Sycamore

In China now

Faith, Family, Adoption – our very own Kam!
The Weavers World
Phebe Jayne

About to go to China

Amazing Love

If you have something you’d like to share for a future What We’re Reading post, be sure to let us know via email – we’d love to feature your links or posts about life with your special needs child.



The Myth of the “New Normal”

That’s what it feels like to me.

A myth.

“New” normal?
Normal?
Whaaa?
I’m completely unfamiliar with that word at the moment.

The feeling of being normal is elusive to me.
Does “the new normal” really even exist?
I wonder this because I cannot, for the life of me, find it.

Nothing about our life right now feels normal.
Not the questions they ask,
not their off the wall behaviors,
not the trauma I have witnessed,
none. of. it.

And it seems to me in the last year I have been unable to put my finger on  why I can’t seem to find this “new normal” that everyone raves about.
I feel like the party bus has been loaded up with people who figured it out.
People who are sailing smoothly through these intricacies of adoption.
They are throwing confetti and hootin and hollerin that they; have arrived.

Congratulations!
You arrived in the town of New Normal.
Population: Everyone But Me.

And I feel like I’m on the side of the road,
unable to board that bus,
and I watch you pull away with your contented newly adopted children
and I watch you drive off.

And I weep.

And it wasn’t until I was talking and {more accurately} crying to my friend on the phone the other night regaling her with stories and seeking wisdom and discernment for some of the things we are going through, that it hit me.

I think I figured it out…
and further…
I think…..well…..I kinda know..…that our issues are related to the fact that we brought home 3 in 7 months.
It seems so freakin obvious now.
But for whatever reason,
probably because I have spent the last year trying to just breathe in and out….
it didn’t occur to me before.

It was in this moment of revelation that I wanted to smack myself upside the forehead and shout, “Of course! Of course that’s why it feels like it is taking so long! There is not 1, not 2 but 3 children all in varying stages of grief and attachment. This is it! This is why I feel like I have aged 200 years in the last 16 months! Aha! People of the world, hear me now! I have figured it out!! Come! Let us break bread and celebrate this revelation!”

So maybe it’s true, maybe I haven’t missed the bus completely after-all, maybe my trip is just delayed significantly. Maybe I just need to reschedule and adjust my timetable.

Because I have finally realized, my timetable doesn’t look like yours. And that’s ok with me. That has to be ok with me.

Our story begins when we petitioned for and were given a waiver to adopt two kiddos at the same time about 5 months before China changed the  rules and began granting everyone that privilege in 2010.

We knew going into this that 2 would be what would fit our family best. Jason and Jordan are only 12 months apart and then we had the twins, so dropping one child in the middle of those two sets of two didn’t make much logical sense to me.

Throughout that time as we were paper-chasing for them and especially once the  rule change took effect their began to be a lot of chatter about the intricacies of adopting two kids at once.
Should you do it.
Should you not do it.
Heck no.
Heck yes.
The opinions on the matter were all over the place.

Though I never engaged in those “discussions” publicly,
I silently took up residence in the camp of pro-dual adoption. Which….ya know….is good since we were smack dab in the middle of one.

I {honestly} didn’t give it much thought.
It just seemed so clear cut to me.
So black and white.
I knew how to parent in sets of two.
I had done it before.
I further reasoned that having a buddy would make the transition easier for them.
They’d have someone to talk to.
Someone to share with.
Someone to sit up late at night and talk to in Chinese when no one else around them had that ability.

It just made good sense to me.
And further, I couldn’t fathom how anyone could possibly make the argument  that it would be better for one of them to remain behind in that orphanage while we settled one at a time into our family.

Pfffft. Duh.

After arriving home with Jacob and Joey we were back in China a short four months later adopting Joshua and it was then that I definitely couldn’t fathom any argument that would say that he should be left  there to die since the other two had only been home a few months.

Pfffft. Duh. Again.

And I still believe all of that.

But.

But man alive are we living the repercussions of that now.
And I don’t intend the use of the word repercussion to be all negative
Because truly, it’s not all bad repercussions…
but….. ahem….
it’s not all good either.

There were a few things I failed to take into consideration….
~Namely the pre-existing relationship between Jacob and Joey and what that looked like for them before I entered the picture.
~And the fact that we now have 3 kids here who are all trying to settle in and find their place in this family, at.the.same.time.
This is incredibly hard for them…..and for us.
~And then there’s the fact that one of them is struggling,
the other two are doing great,
but the struggling one has some immense influence upon the other two that is causing a very unhealthy dynamic to develop.
~Insert weeping and wailing and gnashing of teeth. {uhhh…that’d be me.}

~and
~and
~and
~and…..

And I could go on and on and on and…..well…..on
but for the sake of not making this a novel I won’t.
But needless to say, I think these are the reasons I am not on the bus to Normal Town just yet.

I think those of us left behind all have our own reasons why we aren’t on the bus.
Trauma.
Severe Neglect.
Attachment.
Anger.
Grief.
Rage.

None of which are “normal”

So maybe instead of shooting for normalcy
I’ll just call it “life” for now.
My new life.
Somehow
someway
this small change in language makes me feel better.
It comforts me.
I no longer feel like I am grasping for something that keeps slipping away,
something that is truly unattainable to me at this moment.

So instead I will change my trajectory away from “normal” and toward “acceptance.”
Acceptance for where we are now.
I’m gonna choose to embrace it.
I’m going to make friends with it.
I’m going to invite it over for coffee and blackberry scones each morning.
Acceptance and I will overcome.
We have to.

In the meantime I’ll wait for the next normal bus to roll through town.
And know I’ll be able to board at some point.
And I’ll sit next to you,
and blow my paper noisemakers right alongside you.
I’ll be actually {genuinely} smiling from ear to ear and we’ll talk and laugh till we pee.
But then I think I’ll gaze out the window
and I’ll see you there.
I’ll see you standing on the sidewalk
wishing you were on our bus,
and I think I’ll get off the bus
and come cry with you instead.
Because I hear your heart.
I know what you are going through.
And I’d rather be standing with you anyway.

Because adoption
is hard
and beautiful
and messy
and challenging
and rewarding
and just when you think things are getting better you find a trash wrapper that doesn’t belong to you that was in your grocery cart that morning shoved under your son’s pillow.

But nonetheless at the end of the day in our new life
I am honored.
I am blessed.
I am humbled.
I am exhausted.
And that works for me for now.
Because really, I don’t want to be normal anyway.
I want to be more like HIM.
And a King that would choose to come down from his throne, walk among us, live a perfect life yet still be hung on a cross for me. And hung on a  cross for you. Doesn’t sound anything like normal to me. It sounds like  love.

So how bout you?
How long did it take you to “find your new normal?”
Is there such a thing?
Are you on the bus?
Or can I come keep you company on the sidewalk.
Because just say the word, and I’ll be right there next to you.

“I have told you these things, so that in me you may have peace. In this world you will have trouble. But take heart! I have overcome the  world.” John 16:33



Pre-speech therapy

Did you know that playing with straws in the bathtub is actually speech therapy? Who knew?!? We had Sunshine’s post-palate repair/cleft clinic appointment on Monday and I spent some time with the team’s speech pathologist. It’s still a little too early after the palate repair for speech therapy, but she did give me a few tricks to get Sunshine on her way.

She said the most important thing to work on right now is re-directing her air flow. She has learned to use her nose to blow air for everything (which is why the “m” sound in “mama” is so easy for her). She blows bubbles with her nose, cools her food off with her nose … anything you would blow air for with your mouth, she does with her nose. It’s totally adorable and a common cleft issue, but now that Sunshine’s palate is repaired, we need to correct it!

One of the fun ways she suggested to start working on this skill is by blowing air through a straw in the bathtub to make bubbles in the water. She even suggested holding her nose if necessary to block the air and force it to go through her mouth – that worked like a charm and even Sunshine was trying to hold her nose. Especially when making it a family affair and getting older brother involved, well she was all over it! The speech pathologist said that anything we can do to get her used to the feeling of air going through her mouth is good … even if it’s not perfect at first, this is the first step to making words.

Sunshine is really enjoying this therapy “game” … although I need to keep reminding her to not bite the straw, she is getting better at blowing air through the straw on her own without my help. And she’s actually making bubbles in the water, which just tickles her to pieces! It’s only been 2 days so far, so I am excited to see how much progress she’s made in the next few weeks. There is still air escaping out of her nose when I’m not holding it closed, but she’s already picked up on this game so much, I’m convinced that it won’t be long before she’s doing it perfectly.

Although Sunshine has a large ASL vocabulary, her verbal vocabulary is almost non-existent. She can make her points known in many situations, but certainly not all. And of course this easily leads to frustration for her (and us!), especially because she can understand everything we say to her and knows what she wants to communicate back. I can’t imagine what it must feel like to know what you want to say but not be able to do it. It will be such a wonderful progression to hear her using verbal language in the future!



new kiddos…

are listed on our Children Who Wait page.

ASIA has a list of kiddos in their Hope Journey program. And a 3 year old girl with post-operative CHD and slow development. Go see and help us spread the word for these children!

The Surgery That Wasn’t

At 1:45 p.m. Tuesday, August 21, I was preparing trying to prepare for surgery #14, which was scheduled for the following day, Wednesday, August 22.

Yes, that is not a typo.

Fourteen surgeries since we brought Li’l Miss home and waited during her six-hour, open-heart surgery on September 30, 2008.
Tomorrow was to be the day of surgery #14.

Nine of the 13 already done were for our precious Li’l Miss, six of those related to her cleft lip and palate and three related to her heart defects.
Nine surgeries in a 35-month span. Makes me hurt for her but that is another post for another day.

Tomorrow though was supposed to be surgery #4 for our Li’l Dude since coming home (he had at least three in China) and surgery #14 since we embarked on this journey of adopting special needs children.

I am not gonna lie.
It doesn’t get easier. It gets harder.

To put on the game face. And pretend I’m not freaking out inside, so my kids won’t see me freaking out on the outside. To wonder why, why, why?
I mean, I know on the surface why. But really WHY? Do some kids have to endure so much? IT.IS.NOT.FAIR.

Li’l Dude was ready to go. He had his game face on. He was ready to face this head-on. At exactly 1:52, a little less than 24 hours until go time, my cell phone rang. I know the number well. It begins with 343 and it is always the same because the Children’s Hospital is like that. They have call blocking, and the number always shows the same 7 digits whether it is the cardiology office or the ENT’s office or the audiologist or the genetics doctor (he has called himself TWICE in the last two weeks since we saw him) or the cranio-facial surgeon’s office, which was the case today.

I heard the lady B say, “Hi, Leslie, it is B calling from Dr. K’s office. How are you doing?” I say, “Well, I was doing great, but now I’m not feeling so great, because I know you’re not calling with good news the day before a scheduled surgery. Because you never call the day before.” And she says, “Yeah, you’re right. Dr. K is really sick. Like a high fever, has never cancelled surgeries in the 13 years I’ve worked for him SICK.”

So, I gathered my thoughts. We chatted and visited way too long. I love this lady. She is my go-to person at this particular doctor’s office and she has helped us navigate some tough stuff, like successfully scheduling Li’l Dude for a lip revision with Dr. K and the BAHA post placement surgery with Dr. W on the SAME DAY.

She got us back on the schedule for September 26. I am just not feeling it though. Will the third time be the charm here?
This surgery was originally scheduled for May 16, but we rescheduled for a couple of reasons. Basically, a friend needed the spot and we were THRILLED to have a spot that worked perfectly for their “we’re about to go to China and adopt our fourth child” situation. On top of that, I had no peace about the surgery and a summer of no swimming had me wondering “what was I thinking?” when I scheduled it for May anyway.

But, now, here we were the day before the rescheduled August 22 surgery and the Dr. became ill and had to cancel. Not at all on my radar. And I’m left to wonder, what is going on here? Should this be taken at face value, a coincidence, or are we supposed to reevaluate this surgery? Like I said way back at the beginning of this rambling post that is helping me to process my feelings here (so if you’re still reading, thanks, but if not, well I can see why LOL!), surgeries don’t get easier because they become more familiar or dare I say routine.

Routine is probably a big leap. Nothing routine about waking your baby up for a trip to the hospital where you have to answer them honestly when they ask, “Momma, is this just for an appointment or do I have to go to sleep and stay?”
What six- or seven-year-old baby should have to even ask that question? Or know to ask it?
Makes my heart ACHE. I wish I could take it for them. But I can’t.

And it appears the stars perhaps are aligning for us to have two kids having major surgeries within weeks or possibly days of each other. Not sure how I feel about that. The thought has occurred to me that our Li’l Bit may be facing her open-heart, fontan surgery very close to the same date, albeit four years later, that her big sister faced that same surgery.

I gotta get another game face on speaking of our baby girl. We meet again with her cardiologist next week, on August 29, and I’m dreading the appointment. Mostly for what we’ll hear, what we already know. She needs major, open-heart surgery, and she isn’t getting any better.
There have been little things lately. She threw up for no apparent reason. And didn’t appear to be sick. On top of that, excessive burping, which is WAY out of character for her. She just hasn’t done this since we’ve had her for these last six months. And now, all of a sudden, excessive, very excessive gas. Her lips look a lot bluer to me. And the gasping while she goes up the stairs. I just can hardly stand it. But baby girl is so determined.

Lately though, she will walk a few feet and then stop and look up at me and hold her arms up to me and simply say “up, Momma.” The tears are flowng as I type this. She just has NO energy lately. I can’t put my finger on it. Momma’s intuition. I don’t know, but I feel the time for this surgery is NOW. Adding it all up just makes me feel an urgency. And yet, the Dr. doesn’t seem to see it the way I see it … or at least he didn’t back on June 15. However, he did say he wanted us back in August to see how she is doing, to discuss again the best possible time for the surgery and he said, “if her oxygen sats are not significantly better after I closed off that collateral today, we will definitely need to reevaluate and weigh pros (particularly allowing more time for weight gain) and cons (facing winter with a very weakened and sick heart) of waiting until spring vs. forging ahead with surgery this fall.

I love our children’s cardiologist, but if I need to question him pointedly I certainly will. I KNOW he has weighed the risks and the benefits as he promised us he would back on June 15, when we met with post-op of her cardiac MRI and cath procedure. He coiled (basically closed off) a VERY LARGE collateral vessel (the heart forms these in situations like our Li’l Bit ‘s heart to try and compensate and sent the oxygenated blood anyway it can get it there–amazing stuff but this collateral was no longer needed and it was sending a lot of RICH, oxygenated blood nowhere). And Dr. D. hoped coiling it would bring her O2 SATS up at least the the lower 80s … except they haven’t changed. Maybe even a little worse. Lower 70s, not even mid as they had been hovering. Lately I don’t even want to put the pulse oximeter on her little fingers. I want to cover my eyes and pretend like she is not going to have to undergo a major, risky, long and did I mention risky open-heart surgery with a 90% success rate overall. I’m not a percentages girl, but right about now I’m not liking the 90% figure. At all.

And I’m TERRIFIED with fall and then winter approaching. So, Momma’s getting her game face on and preparing for a … how shall I phrase it … meaty discussion and a demand to talk to the surgeon himself if need be. I HAVE TO HEAR him say waiting is for the best, that gaining more weight is that important … because Momma is just not convinced. Big sis weighed just 18 lbs. when she had this same surgery and Li’l Bit weighs a whopping 24.5 lbs. She has a power gut going on and … as much as I want to run from this heart surgery … I also feel like it is time.

And in all of it, I’m left to wander and ponder is God working out some details we can’t yet see? I’m not sure my heart or digestive system or the bathrooms nearby can handle two of our babies having surgery on the same day, but we almost did it once before. Wasn’t major, open-heart surgery though coupled with the most intensive surgery to-date for Li’l Dude since coming home. This one will involve the Dr. cutting open his side and removing cartilage from his rib cage to use in building up the left side of his nose, where there is essentially no cartilage and it is very flat. If it sounds painful, it is. I just don’t even like thinking about my baby boy having to go through this.

Thankfully, he didn’t know about the May 16 date, because we don’t tell our children until a day or two before. This is what works for us and our daughter, who shows major PTSD when talk of a looming surgery comes about. So, we wait and tell them last-minute and we had JUST told Li’l Dude about this latest surgery and he was pumped and ready. Poor little guy is so confused. And the worst part of it all is that he still has to face it. Just later. Not now. Not tomorrow. Or the next day. Or the next as he will say. Just later I told him. Later, buddy.

And so we press on. And wait. And hope. And repeat. And know that God will not bring us to face more than He can handle.



What loss looks like four decades later

When I was two years old…


…my mom left.

When Tess and Jude were 12 months old, they were taken from the only home they knew.
When Mimi was 23 months old, she was taken from the only mama she knew.

So how do we process not being chosen?

I don’t remember any of those younger years or the time when she didn’t come back. I don’t suspect Tess, Jude, or Mimi will either.
But not having any recollection of it, is far from meaning it doesn’t shape a large portion of one’s soul.
And future.
And how one would live the rest of their life.

I could go into a lot of details. But I’m not going to.

Don’t get me wrong. I was loved. I was cherished. I was held when I hurt and guided gently the way only parents do. My papa remarried and raised me with all the things he thought a treasured daughter should have, including a mama that was there for it all and raised me with love as if I was her very own.
Indeed I am her very own.
I am hers.
Her daughter.
I was brought up in a pretty stinkin’ normal family.

I treasure Tess, Jude, and Mimi as if they were born to me. It is no different.
They are my daughters and son.
And I’d like to think they are also being raised in a pretty stinkin’ normal family.

I knew my story all along. And so do my children. There has never been and never will be a moment that they don’t know. As a child and teenager, I would have been the first to tell you that I knew my story, and it wasn’t a big deal. These things happen… happened to me… and life goes on. I still had my father and kept my culture and extended family. Unlike my youngest children.

But all these years turn decades later, I am still haunted at how profound it can be.

As often happens in my life, seasons pass and often my grief is again brought to the surface. A wedding. A birth. The holidays. A party. Birthdays. And it can come right back. The loss of a parent is huge, and even under the best circumstances, it can be emotionally challenging even four decades later.

Why do I still struggle?
Why do I still grieve?
Why can’t I just count my blessings and get over it?
Why can’t I surrender this pain to Him?
Suddenly there’s a reminder, and I spiral back.

Denial
Anger
Negotiation
Grief
Fear
Acceptance
Denial…
for 42 flippin’ years I fight the cycle.
I’m still fighting this cycle four decades later.

So it should come as no surprise that Tess flips out during Jude’s birthday. I should be completely on my toes at the holidays, prepared for my child’s anger or bargaining to surface. And it does. Tess struggles for control when the routine changes. Jude withdraws and gets anxious if there’s too much going on. Mimi becomes demanding when she feels unsafe in her world. I’m gonna hang on tight as they grow and change.

Of course the mama in me wants to protect them, my own children, from this haunting cycle of grief and anger and fear.
As the mama, I don’t want them to hurt. I want to take it all away.
As the child, I know that’s just not always possible.
This thing that is adoption is born of hurt and loss. And that I understand with every ounce of my being.

I think what I most want to say, from personal experience, is that we parents can’t always fill the loss or
repair the damage for our children, our beloved children that weren’t chosen by their first families.
We can’t always fill the void.
I’d like to think mama love is a cure-all, and indeed so many things are possible with love. As adoptive parents we have seen firsthand how love can transform a child. But love isn’t a panacea for our children. Love can not take away the loss. They may grieve for four decades and more, and it’s ok. So when it resurfaces, I will hold their hands and acknowledge their pain as mamas do for 42 more years and longer if need be. And they will feel that love in the midst of their grief.

I know there are a lot of questions.
And not a lot of answers.
And no real ending.
And that’s part of it too.

Still trying to work through it,



What we’re reading: links

A disclaimer: It’s summer and I have been sadly remiss in posting our What We’re Reading links… I’ve been a slacker. Forgive me! Additionally, our No Hands But Ours email was not working properly, but this has now been resolved. If you emailed us a link or post over the last few months, please don’t think we ignored you! Just send us your link or post again… we’ll actually get it this time!

From the last few weeks, some good stuff we’ve read that relates to adoption and/or parenting a special needs child.

As always, if you are a traveling family, or have posted something, or read something, that you’d like to share here on No Hands But Ours, please let us know at nohandsbutours@gmail.com.

In the news:

Jen Hatmaker – author, speaker, blogger and adoptive mama – shares a must-read post about one year home with her two adopted children. A humorous and honest reality check of what you can expect the first year home with our new child.

Jenna Cook, a student at Yale, was abandoned as an infant and later adopted by a family in the US. She has determined to search for her Chinese birth family with mixed responses from Chinese netizens. Undeterred, she explains that she does not resent her birth family, and will do whatever it takes to find them.

And in a follow up article, Chris Zheng, a friend of Jenna’s and also a student at Yale, contemplates the cultural differences between the Chinese and the American response to Jenna’s story.

The Painted Turtle is a summer camp for special needs kids, aged 6-17. Created by Paul Newman, the camp is free for eligible children. Visit their website for more information.

And you must read the incredibly inspiring but heartbreaking story of Lou Xiaoying, now 88, who has saved over 30 abandoned babies she happened upon on her job as a trash collector.

Blog World:

Our beloved Tonggu Momma talks about attachment. She says, “As parents, we must – MUST – do our best to guide them through the healing process. But we also need to remember that they have responsibilities as well. They have to reach a point where they are willing to heal.”

Jean from There’s No Place Like Home is mom to many. She is currently in the process of completing their third dual adoption (adoption of two children at the same time) and she shares her thoughts on the process of dual adoption.

Michelle, mom to a little boy with a limb difference, gives ideas on how to help our kids cope with differences in others more effectively and more lovingly.

Ashley Ann from Under the Sycamore recently celebrated her daughter’s first birthday, although her daughter is still waiting in China. Be sure to check out the beautiful way she celebrated.

And she also shared a beautiful and informative post on her daughter’s special need, cleft lip and palate.

Kristin from Tired Mama blogs about the fascinating journey she and her son Willem have been on to correct his bilateral clubfoot. So much wonderful information, and the pictures are nothing short of amazing.

And our very own Nicole shares about Sunshine’s recent palate repair – really fascinating photos included (along with some really cute photos, too!)

Traveling Families:

Recently home from China

Brown Eyes and Bare Feet
A Heartful
Bless the Broken Road

In China

Everyone Eats Rice
Lynch Life
Everyday’s An Adventure

About to travel

Anything but Lokey
Under the Sycamore
and Faith, Family, Adoption – our very own Kam!

If you have any links or posts you’d like to share for a future What We’re Reading post, let us know via email!