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Find My Family: Fei

November 26, 2014 by nohandsbutours 0 Comments

Met 1 yr old Fei. Fei’s special needs are listed as Hip Dysplasia, Malformed Limb – Lower, Meningocele, but her biggest need is a family! This is what her caregivers say about her: “Fei is growing into a beautiful little girl. She is extremely adorable and clever. Little Fei is affectionate towards those she knows well, and likes to play peek-a-boo! She is very bright little girl and we can’t wait to find a family for her!”

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She is listed as Special Focus with CCAI and more information can be found and requested here.

We’re good

November 25, 2014 by Kelly 2 Comments

Coats were on and heads were being counted when she shared it with me.
 
“Mommy, I have to tell you something. A girl in my class said, ‘Is your mom Chinese?’ I said, ‘No.’ Then, she said, ‘Well, you have Chinese eyes so your mom has to be Chinese.’ But, I told her, ‘No, she doesn’t.’ “
 
Pause.
 
And a few seconds of quiet and eye contact.
 
“Oh, honey, did that make you feel bad?”
With a cock-eyed look and the tone of a teenager who thinks her mom was never a girl her age…
“No.”
 
The crew got out the door and went on with our plans. Lydia bounced around as usual, filling whatever space she is in with joy and a healthy dose of noise and chaos. Despite the normalcy of it all, I knew I had to get back to that conversation despite the sassy “No” she gave me. I knew I couldn’t just let that be as it was left.
 
It was a day later when we sat alone at the kitchen table, casually parallel. A blank page laid before her while her fists held too many crayons, about to be put to work.
 
“Hey Honey, remember that thing you told me about your friend asking if you had a Chinese mom?”
She set to work, her tongue sticking out the corner of her mouth as it does every time she’s hard at work, just like her mother’s does.
 
“Yeah.”
 
“Well, some kids might feel a little sad about that, maybe about the fact that they are Chinese but don’t have a Chinese mom, or maybe just because they feel like someone was making fun of them. Some kids might not at all. But, some kids would, and that’s okay. I wonder if you maybe felt that way.”
 
“Nope. I told you already I didn’t.”
 
“Yup, you did. That’s right. But, I just wanted to make sure because it would be okay if you did. Okay?”
 
“Okay.”
 
She continued to create as I watched beside her, filling the page that was empty with bright color much like she does every time she enters a room. Just when it looked complete and she put down her tools and leaned back to admire it, she abruptly leaned in close as if she was a master painter who noticed her masterpiece needed just one more touch of paint.
 
She picked up a crayon again and added:
 
Lydia
Mommy
I love you
 
“Here you go!”
 
She popped up and put it in my hands, promptly bouncing off to see what her sister was doing and leaving me alone with her creation, a tangible reminder that she and me are “we” even though we don’t have the same eyes. This time someone noticed we’re different and it didn’t bother her. I’m glad it didn’t as any mother would be glad that her little one’s heart is not injured by another little one. But, I’m ready if it ever does. I’ll sit beside her when it does and tell her I’m sorry. I’ll color my own picture for her in words.
 
Mommy
Lydia
I love you
 
This thing God did by putting us together, a little Chinese girl who has a Chinese mommy on the other side of the world who couldn’t parent her and a white mommy who wanted another little one, is good. It’s hard, and it’s founded in brokenness. But, it’s good. It’s good.

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Surprise

November 24, 2014 by nohandsbutours 4 Comments

referralI knew to be prepared for undiagnosed needs when we set out to adopt. We prepared for the reality that a heart condition would be worse than we originally anticipated it would be. While we went through the list of needs that we would consider or not consider we had to imagine that what we would believe would be a mild or moderate need, in actuality would be severe. When our referral came in December, we accepted without hesitation. We knew enough to know to say “yes” to our daughter. We knew just enough.

We had sent her file to the experts at the University of Minnesota international adoption clinic and they responded with their assessment and there were no surprises or reason to be concerned. Diagnosis: Tetralogy of Fallot (TOF), and repaired Tracheo-esophageal fistula (TEF). We learned all we could about TOF and what to expect. She was set to have surgery in China as soon as she was healthy enough. We prayed for that every day – but she never was healthy enough while in China. Her oxygen saturation sat in the 70’s most days but could drop to the 50’s or be as high as the mid 80’s. She struggled with chronic pneumonia, was in and out of hospitals, and even once she was well enough to be prepped for surgery – the doctors considered it too risky. They recommended that she see a breathing specialist because she was very “noisy”. We brought her home in May believing it was just one “special need”. We were wrong. 

At our first cardiologist appointment we were relieved to find out that hers was a very “garden variety case of TOF”. There were no extra concerns, no extra complications. Surgery was planned for June 21, just a month and a day after we returned to the USA. It could not have come soon enough. However, before we headed into surgery we learned that her heart defect, while was at one time the most concerning and time-sensitive – would be “easily” repaired and nearly a non-issue once repaired. It was the previously repaired birth defect that would be something we would learn to adjust to, it would be something that would be present and affect every day, every meal, every breath.  

But it said “repaired” 

A TEF repair saves your life. If it isn’t done soon you will literally drown or die of pneumonia because half of what an infant drinks will go in their esophagus and the other goes through the trachea into the lungs. Our daughter was very sick when she was found at only a week old. She wouldn’t have survived much longer had she not gone immediately to the hospital and had surgery two weeks later. She had pneumonia already at a week old, and once that was under control the repair surgery was done. The repair was done excellently, or so I’m told by our specialists here in the US. As it turns out, though, changing the anatomy of the trachea and the esophagus causes necessary damage that, except for a miracle, causes lasting complications. There was a narrowing, a stricture, in her esophagus which proved to be problematic because food would get stuck daily. The nerves in the esophagus no longer make that continuous chain to contract (peristalsis) and move food down quickly into the stomach. Once food is to the point of her repair – we rely mostly on gravity to do in minutes what should happen in seconds. The trachea takes air to and from the lung. By age 2 the trachea should be rigid like a tube and open. At the point where Grace’s esophagus connected to her trachea, her trachea is “floppy”, it collapses a bit. It is not severe, it is not life threatening but this makes her more prone to infection, noisy breathing, and it is what made surgeons in China uncomfortable operating on her.

This alone was enough to leave us disappointed or maybe shocked; except, we had lived with her for 6 weeks and had seen her endure daily TET spells when her oxygen saturation would suddenly drop and she would just about pass out. We had already, for six weeks, witnessed her lips and toes and fingertips become purple, blue or gray from poor oxygenation. It pushed the floppy trachea and the inefficient esophagus to the back burner until her heart was repaired. We had to learn the best way to prepare her meals so that she both learned to adequately chew and swallow – or what went down came right back up. An ambulance ride, several episodes of scary sounding regurgitation and we were scared enough to be really really careful.  

scoliosisOur surprise special needs didn’t stop there, though. Rewind to the second day we spent with Grace in China. It was the first time we had given Grace a bath and really the first time we had her completely undressed. When she sat down, back towards me, and I unwrapped the towel I couldn’t help but notice a spine that wasn’t straight. Not in any way from either direction. Hello, scoliosis and kyphosis.

This was certainly not something scary like the others but the degree of her curve was obvious and I
wondered if yet another surgery was in her future. Once we were through with heart surgery and she
had recovered it was time to visit the Orthopedic; definitely not on our list when we looked through our referral documents. Other doctors we had seen were already preparing us that she may need spinal surgery which honestly scared me more than heart surgery. We were thrilled to find out that like her other congenital (born with) defects, her scoliosis was caused by a congenital defect in two of her vertebrae. It wasn’t something they would surgically fix and they anticipated it improving some as she grew and gained muscle tone. An MRI would tell us if the growth plates were present in these “hemivertebrae” and we could come back yearly to monitor her spine and her growth.

That was September. 

The first week in October we had the MRI and the growth plates were equal – which was the news we were hoping for. The relief lasted about 2 ½ seconds because the next words I heard were: “but we noticed an anomaly in her spinal cord that we are concerned about. We would like you to make an appointment with a neurosurgeon as soon as possible. She may have a tethered spinal cord.” 

A what? 

Three days later we sat in the neurosurgeons office, a place that certainly was not on our radar 10 months earlier when we were reading our referral documents. His assessment was that there are indicators that point to the possibility of a tethered cord. They didn’t see a tethered cord – just some common things that people with tethered cords have…which for us – was not enough to schedule surgery. She has never had symptoms of a tethered cord and until she does – we will not be having spinal surgery for something that is only a possibility.  

So what do you do when you accept a child’s referral, and begin to prepare for that child and love that child and travel the world for that child and sacrifice and change potentially everything in your life – only to find out there are more unexpected needs than expected needs?

JoyThese are moments when I rely heavily on my faith in a God who misses no detail of our lives. Nothing is a surprise to Him. We knew just enough to accept her referral. Had we known everything at the time of referral, I would like to say I would not have chickened out – but I might have. I’m an expert worrier and “what-if-er”. I could have worried myself right out of one of the best adventures of my life and one of the loves of my life. The funny thing was, it was as if we dealt with one fire at a time. There were moments when it was overwhelming – but we got each piece of new special need news on the heels of the previous need fading away. Certainly the joy and laughter Grace has brought to our family overwhelms the surprises her tiny body contains.

I don’t feel like we were bamboozled by our agency or by the CCCWA. I believe we knew enough to
say “yes” to her. I believe the information we had about her was true and accurate for what was known. Her severe cardiac needs screamed louder than the floppy trachea (tracheomalacia) and narrow esophagus. Scoliosis wasn’t really something that they flag in China in infants like they do here in the USA. It is what it is, it’s very manageable, and truly nothing is impossible with God, therefore I’m waiting and expecting healing and improvement as sure as I’m expecting the sun to rise in the morning. The scoliosis has already improved in the year and a half since we first met our daughter. The possibly tethered cord will show it self, I’m convinced, if it even is an issue. If I’ve learned anything in the three years since we decided to pursue adoption – it is that challenges will be met and overcome not a moment too soon or too late.  

Adoption is born out of loss. When Grace had lived a few days her birth parents must have realized there was something very wrong with her. She was found in a very public place, I believe, so that their sick little girl could have a chance at life. That same time, that same month, on the other side of the world our family began praying and taking our first steps toward adopting. I don’t believe it was a random coincidence, I believe God set it in our hearts to be her family. He knew she would be ours and that we would be hers; and if I believe that – then I must also believe that we are being shaped and equipped to care for her no matter what other needs surprise us in the years to come. We may have been surprised several times, and we maybe surprised again in the future. but I know God isn’t even once.
family

365 Days “Upon the Waters”

November 24, 2014 by Rebecca 2 Comments

One year ago, we were somewhere over the ocean between East and West, with our two newly adopted, Mandarin speaking children. We were a muddled mix of joy, weariness, readiness to be home, heaviness from leaving our children’s birth country, and profound gratitude for our intensely beautiful time in China. Feeling the joy of long …Read More

find my family: Elijah

November 24, 2014 by nohandsbutours 0 Comments

Elijah turned eleven years old this past June. He was found abandoned at the orphanage gate at five years old. On admission to the institute it was found that he suffered from cerebral palsy, was tested to have normal intelligence and was found to have weakened lower limbs. Although he tried, he could not walk, …Read More

find my family: Archie

November 22, 2014 by nohandsbutours 0 Comments

Archie, born in January of 2006, is almost 9 years old. And if you have ever been around a 9 year-old boy, you know that means lots of energy, action and FUN! Archie is ready to find his forever family…“with many other brothers and sisters,” he says. He is quite social, if couldn’t guess! At …Read More

Caring Creatively

November 21, 2014 by Desiree 0 Comments

November is National Adoption Month. Pretty cool, huh? You would think that this is primarily a “Christian holiday” but I’ve been thrilled to see the secular media highlighting adoption & foster care and even adoption ministries throughout the month. (See Huffington Post article HERE) But adoption is just one, albeit amazing, facet of God’s call to …Read More

find my family: Simeon

November 20, 2014 by nohandsbutours 0 Comments

We are so very happy to report that 13 of the original 15 Bamboo children have found their forever families. Nearly all are in their new homes and adjusting to the overwhelming love available to them by their parents & siblings…ADORE is not a strong enough word! And they are thriving; what some medical care, …Read More

It turns out that chicken fried rice does not count as culture

November 19, 2014 by Mike 9 Comments

I am the textbook definition of a white guy. Beyond simply a scarcity of melanin, I have almost every other stereotypical characteristic that one might associate with my race – a general lack of rhythm, limited vertical leap, a “John Cougar Mellencamp” playlist on my iPod, an unhealthy relationship with ketchup, and a generalized ignorance …Read More

Adopting a Child with Albinism

November 19, 2014 by nohandsbutours 0 Comments

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Our daughter Phoebe was almost nine years old when we adopted her. She is our sixth adoptive child from China, our fifth adoption of an older child, and our first with albinism and with severe visual impairment. The only previous experience my husband and I had with visual impairments is one of our teenage daughters …Read More