The Scoop on Poop: All About Bowel Management

June 11, 2017 anorectal malformation, bowel management, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL 0 Comments

This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More

Adopting a Child with Hydrocephalus

April 1, 2015 April 2015 Feature CNS, Central Nervous System, Family Stories, hydrocephalus, myelomeningocele, spina bifida 1 Comments

I’ve had this conversation with prospective adoptive parents at least six times in six months, after they hear that my sweet two-year-old girl has Spina Bifida (but before they realize she has hydrocephalus). Me: Oh, so, you have Spina Bifida on your medical checklist? Them: Yep! Me:  Do you have hydrocephalus too? Them:  No…it’s scary. …Read More

Katelyn

November 24, 2008 Family Stories, myelomeningocele, spina bifida 0 Comments

By Nicole, mother to Katelyn from China with Spina Bifida ~ myelomeningocele Our Roller Coaster Ride to Our Daughter In October 2005, we found out we were pregnant with our third child. A month later I had a miscarriage. I have never experienced such loss and emptiness, but I knew God must have a plan …Read More

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