Medical Crisis: Being Your Child’s Best Advocate

February 25, 2017 cerebral palsy, complex medical, February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, seizures, surgery 2 Comments

In the summer of 2016 we adopted our precious Sonnet. Her adoption was medically expedited due to her being profoundly malnourished. She was also diagnosed with cerebral palsy and overall global and cognitive delays. What we didn’t know about was the seizures. She was experiencing them the day we took custody of her, but the …Read More

Adopting a Child with Tuberous Sclerosis

April 14, 2015 April 2015 Feature CNS, epilepsy, Family Stories, seizures, tuberous sclerosis 1 Comments

If you have ever adopted from China before, you remember sitting at the table staring at that dreaded form asking you what special needs you thought you and your family could handle. Filling it out seemed cruel. On the one hand most of them scared me to death and at the same time it filled …Read More

Chu Meng

June 5, 2009 arachnoid brain cyst, cerebral palsy, developmental delays, Family Stories, seizures 1 Comments

by Cheri, mom to Chu Meng from China with Arachnoid Brain Cyst (later to find out stroke induced Cerebral Palsy), Developmental Delay, Seizures Chu Meng’s story is a bit unusual but her story all the same. Our family like many families started out as a NSN family. Our LID was May 16, 2006. I started …Read More

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