Advocacy and Social Media: What’s not to “like”?

November 17, 2014 by nohandsbutours advocating, Sheryl, thalassemia, Uncategorized 1 Comments

Ah, social media. Sometimes I don’t know whether to love it or loath it. But it’s here, and most of use it.  Think about it: how many times have you “liked” a post? How many times have you made a comment? Or even “shared” something you saw that struck you as funny, important or thought-provoking? …Read More

Diagnosed… And then Rediagnosed… And Then…

July 15, 2014 by nohandsbutours Jean, thalassemia 2 Comments

In 2010 we saw an adorable picture of a little girl with a sucker in her mouth! She immediately caught my attention. Her eyes looked straight into mine and they were calling out for a Mommy and a Daddy. I read her short bio and the word cancer was in there. I immediately said to …Read More

Waiting child highlight: Tisha Urgent Medical Need

May 24, 2014 by nohandsbutours advocating, Children Who Wait, Family Found, girls, Lifeline, thalassemia 1 Comments

UPDATE: My Family has found me! Sweet Tisha is a two year old precious girl designated to Lifeline Children’s Services. She is diagnosed with Beta Thalassemia Major and is unfortunately not receiving optimal care for this special need. She has developmental delays, which are not surprising for her at this time. Her file also mentions …Read More

Find My Family: Grace on the Shared List

May 20, 2014 by nohandsbutours Children Who Wait, girls, special focus, thalassemia 0 Comments

Grace was born September of 2008 and is currently on the shared list. She was found at a few months of age and admitted to the orphanage. Upon admission she was diagnosed with β Mediterranean anemia (beta thalassemia major), macrocephaly, and normal physical and intelligence development. She was placed with a foster family in 2010. …Read More

Find My Family: Oscar

April 9, 2014 by nohandsbutours advocating, boys, Children Who Wait, Madison, thalassemia 1 Comments

Eight year old Oscar is a beautiful boy and a special one too! He has beta thalassemia major and is listed with Madison Adoption Associates via an orphanage partnership. The photos and new videos were taken just a few weeks ago. Madison’s staff have met him numerous times. Aleda Madison, the director of Madison said: …Read More

special need highlight: adopting a child with thalassemia

March 8, 2014 by nohandsbutours advocating, thalassemia 0 Comments

In August 2011, my daughters and I returned to China as part of a mission team working to help orphanages assist their children with special needs. It is no coincidence that my background as a pediatric Occupational Therapist would be needed in the place so close to my heart. I partnered with the incredible organization …Read More

Waiting child highlight: Urgent Medical Need

January 29, 2014 by nohandsbutours advocacy; older child adoption, advocating, aging-out child, Children Who Wait, Family Found, medical expedite, Small World Adoptions, thalassemia 0 Comments

UPDATE: My family has found me! Kacey is a 13 year old girl from Southern China diagnosed with Thalassemia major. She is described as an obedient girl. She does not talk too much but is very polite. When talking with her, she is a great listener. She is a grateful girl. She likes to make …Read More

waiting child highlight: thalassemia

January 16, 2014 by nohandsbutours advocating, Children Who Wait, special focus, thalassemia 0 Comments

Lloyd – Born March 2007 Listed with Madison Adoption Associates At the age of 3 years, Lloyd was placed with a foster family and started attending the preschool nearby. He quickly adapted to the family environment and gets along with his family members. Now he can go upstairs and downstairs alone, can run and jump …Read More

waiting child spotlight: focus on thalassemia

November 2, 2013 by nohandsbutours advocacy; older child adoption, Children Who Wait, thalassemia 3 Comments

Thalassemia is a genetic disease prevalent in Southern China. It is characterized by chronic anemia, which at its most severe form is treated by regular blood transfusions. Children with Thalassemia may also receive a daily medication to rid their body of excess iron. Children with Thalassemia are bright, joyful, and a delightful addition to any …Read More

Now What?

September 15, 2012 by nohandsbutours Diana, tethered cord, thalassemia 3 Comments

Over the last seven years I have been in some stage of the adoption process. Dossier paperwork, waiting for approvals, stalking RQ, following blogs, doing home study visits, etc. You get the picture. Bringing my girls home became a full time job (obsession) for me! Some of us may call it the nesting period while you wait. Regardless of …Read More

The "Im-Perfect" Mama!

July 15, 2012 by nohandsbutours Diana, tethered cord, thalassemia 8 Comments

I laughed out loud recently when one of my favorite people on the planet commented that someone she met who had been to my blog thought my life looked perfect!!! Trust me when I say this did not offend me. I was too busy wondering if my girlfriend got hurt when she fell off her …Read More

the beauty in Thalassemia

March 15, 2012 by nohandsbutours Diana, thalassemia 6 Comments

Almost three years ago I had never heard of Thalassemia. The first time I ever saw the word was on the file of a “Special Focus” child living in China. All I knew was that she received quarterly blood transfusions. After a quick call to a friend of mine who is also a nurse I …Read More

Xiao Guo Zi

February 21, 2009 by nohandsbutours Alpha Thalassemia, blood conditions, Family Stories, thalassemia 0 Comments

By Stacy, Mom to Xiao Guo Zi from China (NSN) with Alpha Thalassemia trait and asthma We waited anxiously for our NSN referral to come in. Waited and Waited. All the others came in, still we waited. My husband went out to the store, and I waited. Finally, when I was certain for some reason …Read More