Thriving with Thalassemia

March 26, 2016 by nohandsbutours beta major thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 2 Comments

naomi4

My daughter’s medical information is scary. It has words like chronic and terminal. Add that to the fact that her orphanage has never had a child with her diagnosis live past the age of 14, and you start to really get a grim picture of her life. Now, wipe all of that away, because it’s …Read More

We Said Yes, Anyway

March 22, 2016 by nohandsbutours beta major thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 2 Comments

finn

“It’s so easy to live with! It barely impacts our day to day life.” “It’s a very complicated disease. It looks like it’s going to be another couple of weeks in the hospital this time…” You might think I’m referring to different disorders in the descriptions above. The truth is these were all things I …Read More

One Small Step, One Giant Leap

March 14, 2016 by nohandsbutours beta major thalassemia, beta thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia 0 Comments

chelsea

Our adoption story began years before we actually had the courage to take the leap and start the process to adopt internationally. On and off, literally for years, my sweet husband and I would each feel lead to adopt. Those feelings and promptings were most often followed by a conversation about the lack of finances …Read More

More Than Blood: Adopting a Child with Thalassemia

March 11, 2016 by nohandsbutours adopting again, beta major thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 1 Comments

PIC-14

How do most kids get in a pool? They jump… full force, no holding back. They don’t know what the water temperature is, and they don’t care. They are so excited to be at the pool, they anticipate all the fun they are about to have, and it doesn’t bother them if the water is …Read More

The Story of MengYan

March 9, 2016 by nohandsbutours Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia 1 Comments

meng2

MengYan’s story began in China, in Hunan Province. We do not know much about her birth or her birth family. She was found abandoned in a box at the front door of the local police station. She was a newborn at that time and was taken to an orphanage because her family could not be …Read More

#whatisthalassemia

March 8, 2016 by nohandsbutours beta major thalassemia, beta thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia 1 Comments

thal4

Our Journey with Thalassemia First let me say this is not our story this is His story. If it was ours we would never know what thalassemia was nor would we ever have our precious kids. My husband and I have always wanted a large family and to grow our family through adoption, but never …Read More

Ripples on the Water

March 5, 2016 by nohandsbutours beta thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia 1 Comments

mia1

Eight years ago I saw my daughter for the first time… a sad face standing behind metal bars. She looked scared and confused, with an expression that seemed more like an old woman than a young child. I searched her eyes and saw… nothing. No life, no twinkle, no joy. Expecting a referral for months, …Read More

Beyond Adoption: What Advocacy Can Do

December 9, 2015 by nohandsbutours Advocacy, Blood Conditions, December 2015 Feature - Beyond Adoption, disruption, other ways to care for the orphan, thalassemia 3 Comments

justus0

Our precious son, Mac, came to us through the advocating of many and the mission field of No Hands But Ours. But it begins in an unlikely way….it begins with a disruption. A painful, gut-wrenching, heartbreaking disruption. It is actually impossible to tell Mac’s story without first telling about the disruption. I had never considered …Read More

the sea in our blood

March 17, 2015 by nohandsbutours Blood Conditions, Family Stories, March 2015 Feature - Blood Conditions, thalassemia 1 Comments

thal6

When I was very young, I knew that I wanted to adopt a little girl from China. Stories of baby girls being abandoned because of the one-child policy made a strong impact on me. I grew up, got married to a wonderful man, and we spent 9 years having “the longest honeymoon ever,” rarely even …Read More

Advocacy and Social Media: What’s not to “like”?

November 17, 2014 by nohandsbutours Advocacy, Sheryl, thalassemia 1 Comments

Ah, social media. Sometimes I don’t know whether to love it or loath it. But it’s here, and most of use it.  Think about it: how many times have you “liked” a post? How many times have you made a comment? Or even “shared” something you saw that struck you as funny, important or thought-provoking? …Read More

Diagnosed… And then Rediagnosed… And Then…

July 15, 2014 by nohandsbutours Jean, thalassemia 2 Comments

In 2010 we saw an adorable picture of a little girl with a sucker in her mouth! She immediately caught my attention. Her eyes looked straight into mine and they were calling out for a Mommy and a Daddy. I read her short bio and the word cancer was in there. I immediately said to …Read More

Find My Family: Grace on the Shared List

May 20, 2014 by nohandsbutours Children Who Wait, girls, special focus, thalassemia 0 Comments

Grace was born September of 2008 and is currently on the shared list. She was found at a few months of age and admitted to the orphanage. Upon admission she was diagnosed with β Mediterranean anemia (beta thalassemia major), macrocephaly, and normal physical and intelligence development. She was placed with a foster family in 2010. …Read More

special need highlight: adopting a child with thalassemia

March 8, 2014 by nohandsbutours Advocacy, thalassemia 0 Comments

In August 2011, my daughters and I returned to China as part of a mission team working to help orphanages assist their children with special needs. It is no coincidence that my background as a pediatric Occupational Therapist would be needed in the place so close to my heart. I partnered with the incredible organization …Read More

Now What?

September 15, 2012 by nohandsbutours Diana, tethered cord, thalassemia 3 Comments

Over the last seven years I have been in some stage of the adoption process. Dossier paperwork, waiting for approvals, stalking RQ, following blogs, doing home study visits, etc. You get the picture. Bringing my girls home became a full time job (obsession) for me! Some of us may call it the nesting period while you wait. Regardless of …Read More

The "Im-Perfect" Mama!

July 15, 2012 by nohandsbutours Diana, tethered cord, thalassemia 8 Comments

I laughed out loud recently when one of my favorite people on the planet commented that someone she met who had been to my blog thought my life looked perfect!!! Trust me when I say this did not offend me. I was too busy wondering if my girlfriend got hurt when she fell off her …Read More

the beauty in Thalassemia

March 15, 2012 by nohandsbutours Diana, thalassemia 6 Comments

Almost three years ago I had never heard of Thalassemia. The first time I ever saw the word was on the file of a “Special Focus” child living in China. All I knew was that she received quarterly blood transfusions. After a quick call to a friend of mine who is also a nurse I …Read More

Xiao Guo Zi

February 21, 2009 by nohandsbutours alpha thalassemia, Blood Conditions, Family Stories, thalassemia 0 Comments

By Stacy, Mom to Xiao Guo Zi from China (NSN) with Alpha Thalassemia trait and asthma We waited anxiously for our NSN referral to come in. Waited and Waited. All the others came in, still we waited. My husband went out to the store, and I waited. Finally, when I was certain for some reason …Read More

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