Little Man, Big Kidney

March 28, 2016 by nohandsbutours Family Stories, hydronephrosis 0 Comments

hawk1

We received our referral after waiting two years. The wait was grueling. In my online groups, people continuously posted that the wait for minor needs boys was so short. Not for us. We chose minor needs for many reasons, but mostly because we have lived through two of our children being very ill in the …Read More

Older Children and Incontinence, a Family Story

November 29, 2015 by nohandsbutours bowel management, Family Stories, imperforate anus, incontinence, lipomyelomeningocele, November 2015 Feature - Urogenital, older child adoption, tethered cord, Urogenital System, VACTERL 0 Comments

nov4

Our adoption journey started with two infant adoptions from South Korea, in 2008 and 2010. Our first was a healthy baby boy; our second, a daughter with limb differences. When we considered adding to our family again, we decided to adopt an older child and looked into the China special needs program. We pondered the …Read More

Looking Beyond the Label

November 28, 2015 by nohandsbutours anorectal malformation, bowel management, Family Stories, imperforate anus, November 2015 Feature - Urogenital, Urogenital System 0 Comments

ia2

Gastrointestinal Issues. These two words changed our world and lives forever on December 2, 2012. My husband and I had poured over the list of special needs provided by the Waiting Child Program at our adoption agency and chosen those we felt we could handle emotionally, physically, and financially. Gastrointestinal issues was a special need …Read More

Nothing Else Mattered: FAQs About Anal Atresia

November 24, 2015 by nohandsbutours anorectal malformation, bowel management, cloaca, imperforate anus, incontinence, November 2015 Feature - Urogenital, recto vaginal fistula, Urogenital System, VACTERL 1 Comments

We saw her face. We fell in love. Nothing else mattered. My husband and I simply wanted to be parents and we knew in our hearts that our children were in China; we just had to go get them. Like most parents to be, we hoped and prayed that our children would be healthy. Our …Read More

She is our JOY: Adopting a Child with CAH

November 20, 2015 by nohandsbutours ambiguous genitalia, congenital adrenal hyperplasia, Disorder of Sexual Development, Family Stories, November 2015 Feature - Urogenital, Urogenital System 1 Comments

When we began our adoption journey we had no idea where it would eventually lead. We were entirely new to the international adoption process yet seasoned parents of four children. Our placing agency encouraged us to begin our home study and fill out some essential paperwork. One form had us place a checkmark beside the …Read More

Frequently Asked Questions about Complex/Persistent Cloaca

November 13, 2015 by nohandsbutours ambiguous genitalia, bowel management, cloaca, Family Stories, November 2015 Feature - Urogenital, Urogenital System, VACTERL 0 Comments

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Instead of beginning this article with a list of questions and daunting answers, the first thing I want to include is our most frequent ANSWER… These little girls are beyond precious! Our cloaca child is the light of our lives! They need you to come for them and you will reap a million times more …Read More

Judah’s Perfect Puzzle

November 6, 2015 by nohandsbutours Family Stories, imperforate anus, November 2015 Feature - Urogenital, Urogenital System, VACTERL 0 Comments

judah2

The Lord’s idea of adventure and my idea of adventure are radically different. My adventure began with a dream of flying to China, bringing home a child, doting him with love, he’d love me in return and we’d skip down the Great Wall in fairytale fashion into our happy adoptive family life that would fit …Read More

And Our Family Tree Grew

November 1, 2015 by nohandsbutours bowel management, cloaca, Family Stories, imperforate anus, November 2015 Feature - Urogenital, Urogenital System 2 Comments

ginna1

Once upon a time God planted a tiny seed in my heart. A seed for adoption. That fact that it grew at all is truly miraculous. You see, my son had just been born and was in the NICU where he was recovering from his first 2 of now 13 surgeries. He has Spina Bifida. …Read More

Jo Jo: adopting a child with undiagnosed urogenital defects

March 16, 2015 by nohandsbutours Family Stories, micropenis, undescended testicle, Urogenital System 1 Comments

cars

My name is Lynn and I asked if I could share my family’s story. Our hope is that in sharing about a sensitive special need like our son has, a family out there that is thinking of adopting a child with it will be helped. We have five children. The first three are biological followed …Read More

grace, garrison & goodbye

December 29, 2014 by nohandsbutours hypospadias, Kam 3 Comments

sun

If you were to judge my punctuality solely on the basis of my No Hands But Ours posts, you’d be led to believe that I fail to do anything on time! I’m really pretty darn punctual actually but somehow, not here. Still, I’m sure that my last post for NHBO has just been put off …Read More

Taking Care of Business – part 2

October 17, 2014 by nohandsbutours incontinence, Jean, spina bifida 3 Comments

In my previous poop and potty post I shared with you about our son who was born with spina bifida and as a result he is incontinent. After watching him sit on the waiting child list the Lord made it clear that he was our son and that we could do this special need. And …Read More

Special Need Highlight: Adopting a Child with Complex Cloaca

September 8, 2014 by nohandsbutours ambiguous genitalia, anorectal malformation, bowel management, cloaca, Family Stories, Urogenital System 2 Comments

I have to be completely honest from the start. We did not choose this special need. We had never even heard of it! And if we had known what it might entail, I can tell you plainly, we would have chickened out. But God knew that and kept us in the dark so He could …Read More

how we deal

August 4, 2014 by nohandsbutours heart defect, Kam, Urogenital System 7 Comments

I’m not gonna lie. My world has been spinning for a few months. And I try my best during the last week of each month to settle on a topic to write about here at NHBO. But y’all. It’s just been hard lately! I walk through a scenario with our boys and I think “BAM! …Read More

Taking Care of Personal Business

June 15, 2014 by nohandsbutours incontinence, Jean, spina bifida 6 Comments

In other words this is a poop and potty post! Many of the children that sit and sit and sit on the waiting child list are there because they are incontinent. Which means they cannot control their bowels and bladder. We have brought 2 children home that were in “that situation.” One was diagnosed with …Read More

More than I could bear

June 7, 2014 by Amy Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 6 Comments

Sometimes I forget that we have a child who is a “heart baby”, a lifelong cardiac patient, a survivor. I see her scars everyday. Scars from a surgery I wasn’t present for, scars from one I was; and, I have come to love what they represent. They are a daily reminder of healing, a unique …Read More

Surviving Gotcha Day

May 7, 2014 by Amy Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 4 Comments

A year ago today we had spent only one day with our daughter. After arriving in China, we spent 3 days in Beijing, visited the place she called Home for almost a year and met the women she called “mama”. Then we traveled to XinJiang, her province, tried to sleep on Gotcha Day Eve, and …Read More

I had a plan

May 1, 2014 by nohandsbutours hypospadias, Kam 1 Comments

I have a personal problem. You know, one of those personality deficiencies that are just part of your makeup, part of who you are? This particular problem, though I’d still contest is a strength for the average Joe, pops up during the most inopportune times and throws me for a loop. I’m a planner. I …Read More

special need highlight: adopting a child with limited mobility

April 26, 2014 by nohandsbutours Central Nervous System, Family Stories, incontinence, mobility issues, spina bifida, wheelchair user 5 Comments

It was April 2012. We had just completed our first adoption from Uganda. The 6 month wait had been satisified for the state of Ohio and we’d just fully adopted our new son. Then…we fell in love with a story and a picture. A sweet little boy waited for us in China! 10 months later, …Read More

special need highlight: adopting a child with anal atresia

April 12, 2014 by nohandsbutours anorectal malformation, Family Stories, imperforate anus, Urogenital System 0 Comments

Until we decided to pursue a special needs adoption from China I had never heard of anal atresia (more commonly called imperforate anus or anorectal malformation in the US). My first introduction to the term was via the special needs medical checklist from our agency, and I can remember reading through the list with our …Read More

“but it said repaired”

April 7, 2014 by Amy Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 0 Comments

I vividly remember reading our referral paperwork. I remember first reading the descriptions of her developmental milestones and evaluated her development through mom and teacher goggles… “she follows objects… she is tracking… she is grasping things… she is babbling and forming simple sounds… she turns her head when there is a noise… she can hear …Read More

TEF, TOF, and VACTERL, oh my

March 7, 2014 by nohandsbutours Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 4 Comments

Don’t you love those acronyms? I have come to really appreciate the time they save, the space they save, and that I can safely dodge oodles of mispronunciation. For example, until 2012 those letter sequences meant nothing to me. If someone would have told me years ago how much I would come to know about …Read More

Urology Woes & Successes

March 1, 2014 by nohandsbutours heart defect, hypospadias, Kam, Urogenital System 1 Comments

So happy March, y’all! Are you as excited about spring coming to your neck of the woods as I am about it coming to mine? Whew. And I only live in the South. Can’t imagine how you folks in other parts of the country are still managing to maintain sanity right about now! But hold …Read More

saying yes to complex conditions

February 20, 2014 by nohandsbutours complex medical, Family Stories, Rebecca, Urogenital System 7 Comments

Checking off medical conditions that we would accept on our agency’s medical checklist, and not checking those we wouldn’t accept, was among the hardest tasks of our adoption process. Our human side wanted to maintain our comfortable life, and longed for easy. In our hearts though, we knew that God’s plans are always much higher …Read More

The Looking Glass

January 1, 2014 by nohandsbutours Kam, Urogenital System 7 Comments

So another year has come and gone. It never fails that I experience both highs and lows as we wave goodbye {and sometimes “Good Riddance!”} to one and a hearty “Hello, come on in!” to the other. Are you the same? A lot has taken place in our family over the last two years. At …Read More

you can't keep a good man down

December 1, 2013 by nohandsbutours hypospadias, Kam, Urogenital System 0 Comments

I’ve posted here before that I’m an idiot. There’s no denying. And my idiocy is magnified at the pedi urologist’s office. But recently, I scored one for the mommy dummies of the world, because I was right! Our Gabe wasn’t doing well. I couldn’t put my finger on it. He was cranky and pulling at …Read More

baby steps and giant leaps

November 1, 2013 by nohandsbutours heart defect, hypospadias, Kam, Urogenital System 3 Comments

I’m not sure if I’ve posted here before about the long and winding road we walk with our Joel in regards to education. In a nutshell, Joel came home to us at age 3 having spent his life in an orphanage. He was not speaking Thai at all and we were told by his pediatrician …Read More

expect the unexpected

August 1, 2013 by nohandsbutours heart defect, Kam, Urogenital System 0 Comments

So the last time we chatted, our Gabe had a surgery looming. As we say in the South, a “big, honkin’ surgery.” We knew what we wanted to have happen…a graft to be taken from our Little Prince’s mouth {ouch} to build his urethra {as well as tubes placed in his ears for recurrent and …Read More

not in a million years

April 2, 2013 by nohandsbutours heart defect, hypospadias, Kam, Urogenital System 3 Comments

So I’m a moron. I mean it. A complete and total dork. My idiocy seems to come out NOT in front of fellow idiots, but around uber smart, genius type people. You know, those who intimidate the heck out of you and before whom you know ahead of time that you should just keep your …Read More

I not be fraid~

February 1, 2012 by nohandsbutours heart defect, hypospadias, Kam, Urogenital System 0 Comments

Happy February everyone! I for one can’t believe how fast time is moving. I’m sure it’s about to slow to a snail’s pace for my family though as we have just submitted our LOI for a new son this week. The wait has officially begun again. 🙂 Many of you know that we lost our …Read More

Baby Bing

March 21, 2011 by nohandsbutours a father's perspective, Adrian, incontinence, spina bifida 0 Comments

For those who follow along with our Forever Family adoption blog, you would have been introduced to a new potential member to our ever growing family.  And I do mean potential… very strongly potential… but let us recap some of the past couple of months, and how things have shaken down for a couple of …Read More

it’s all from the waist down

March 11, 2010 by nohandsbutours hydronephrosis, incontinence, Kris 2 Comments

  Yesterday was our first spinal defects clinic, where we met with her entire ‘team’, including her neurosurgeon, urologist, pediatrician, orthopedist, developmental psychologist (or was he a psychiatrist??), physical therapy, social worker, gastroenterology specialist, and her nurse practitioner who connected us to all of these people. It was here we discussed and learned about her …Read More

our incredible boy

January 29, 2010 by nohandsbutours ambiguous genitalia, anorchism, intersex, Urogenital System 0 Comments

by a mother of a boy adopted from China with a SN of ambiguous genitalia I first fell in love with his photo. I saw it on a Waiting Child listing. When I read the paragraph of background information and saw the words “ambiguous genitalia,” I didn’t really know much about the condition. At the …Read More

David

February 27, 2009 by nohandsbutours cl/cp, Craniofacial, Family Stories, hypospadias, Urogenital System 0 Comments

by Mara and Kevin, parents to David from China with cleft lip/palate and hypospadias Kevin and I knew before we were married that we might not be able to have biological children, so we had talked about adoption for years before we started the process in September 2006. Even then, we thought about a special …Read More

Annalise

February 5, 2009 by nohandsbutours anorectal malformation, Family Stories, imperforate anus, recto vaginal fistula, Urogenital System 0 Comments

By Paulette, mother to Annalise from China with anal rectal malformation From the day I decided to adopt from China I knew that my role in this adoption was bigger then just sitting on the NSN list and waiting for the perfect healthy baby to arrive. God had equipped me to have the knowledge and …Read More

Tessa

January 22, 2009 by nohandsbutours anorectal malformation, Family Stories, imperforate anus, Lifeline 0 Comments

By Diane, mom to Tessa from China with imperforate anus In October 2005, we were in the midst of our adoption paperwork for our daughter Tessa. We were with one agency, but I continued to check the special needs lists of other agencies. We knew that God had called us to a special needs adoption, …Read More

Micah

January 19, 2009 by nohandsbutours Family Stories, hypospadias, undescended testicle 0 Comments

By Terry, mom to Micah from China with hypospadias Micah had hypospadias as his need. That meaning he doesn’t urinate through the tip of the penis. There are 3 different stages of hypospadias, one being where the opening is just underneath the tip, the second where the opening is midway back, and Micah’s condition where …Read More

Kai

December 16, 2008 by nohandsbutours anorectal malformation, Family Stories, imperforate anus, VSD 0 Comments

By Heather, mom to Kai from China with anorectal malformation and VSD We began our adoption journey in May of 2005. We already had two beautiful, healthy children and decided the next child that joined our family would be a child without a mother and father. Like so many other families, we initially requested a …Read More

Luke

December 9, 2008 by nohandsbutours CCAI, clubfoot, Family Stories, undescended testicle 0 Comments

By Anne and Mike, parents of Luke from China with unrepaired clubfoot The Story of Luke Our trip to get Luke was one of the most significant 2 weeks of our lives. It is really true that you never know what you can do unless you are thrown into a situation. We are just your …Read More

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