10 Things Adoptive Parents of Medical Needs Kids Want You to Know

April 23, 2014 adoption realities, Rebecca 9 Comments

Our plane from China touched down just five months ago. With our two newly adopted kids, both with emotional and physical needs, we stepped out into new lives, all things from before suddenly family history. Life now is both harder and more blessing rich. Six hospital admissions, two surgeries, and a thousand tests and appointments later, our hearts are a mix of weight and awe. We’ve had to hold our daughter down over and over again through IVs, blood work, MRIs, x-rays, sedation and medical probes at a time when bonding should have been our only concern. The beauty is that we’ve seen God meet us exactly where we’ve needed Him over and over in ERs, specialists’ offices and on our bathroom floor with medical supplies spread round. On a trek that we weren’t qualified to traverse, we’ve been carried.

10 Things

Many of our adoptive friends share a version of this story, and if allowed to speak for them, these are some things we’d like for you to know.

1. Sometimes, “How is she?” is a hard question to answer. We’ve probably answered it at least five times that day at church, school or gymnastics. Spoon up some grace if we hesitate and fumble through a response while passing each other casually in a hallway. We might just not have the energy for a coherent, summed up response for medical issues that are complex and heavy on our hearts. Still, know your remembrance was appreciated.

2. Sometimes it’s easier to share medical updates on FB, a blog, or in group email updates. We do want to express our hearts, and these help us do that when we can string our thoughts together to share at once with everyone we care about. Most likely, we can’t remember who we’ve updated and who we’ve missed. We want you to know the latest medical details, and we deeply cherish your walk alongside us.

3. All the time, we need you to PRAY. Nothing is more comforting to us than knowing that our girl has an army of prayer warriors fighting for her health and heart. We’ve felt the covering of your prayer during surgeries and procedures, and it has carrying power. We are always ready with an answer when you ask, “How can we pray?” And it matters much to us when you simply say, “We are praying.”

4. All of the time, your messages, texts and phone calls are of high value. When you email us prayers, we’ve probably read them two or three times. We likely have listened again to your phone messages while waiting for a doctor’s update. They are instruments of God’s provision of peace. Unfortunately, our to do and to go lists are long, and the thoughtful responses don’t happen. Don’t give up on us. 
We need you more than ever.

5. Sometimes we’d rather just hear about you. If we tend to constantly push the conversation back in your direction, go with it. Know we appreciate your effort to ask about us, but we still want to know how YOU and YOUR family are doing. Our path doesn’t eclipse yours. Have a struggle or need to vent? Tell us. We can handle it.

6. Sometimes we worry that we are burdening you with too much medical talk, and we find ourselves pretending to be more positive than we feel. We don’t share because we’ve already shared so much. Our medical journey doesn’t end after a surgery. There are always appointments, therapies, decisions, more surgeries and more days of at home care, and we wonder how many times we can ask for your prayer. We wonder how many times we can tell you that we are worried and weary.

7. Often we hear, “Let me know what I can do.” Though so grateful, most likely we are clueless about how to answer. We appreciate your offer and likely need help, but probably don’t have the energy to let you know how. It is a gift when someone asks specifically, “I would like to help you. Can I babysit your kids for an appointment this week?” Or, “I am planning to bring you dinner. Does Tuesday work?” While an incredible blessing, being served over a long period of time is also stretching. We see the care overall as extravagant provision from God, but on an individual basis, we feel like a burden.

8. Sometimes people praise us for adopting a child with medical needs, or they praise us for caring for them. Know that we didn’t say yes to a diagnosis, we said yes to our child. Most parents wake up each day and meet their child’s needs. Please don’t see us, because we are weak, grumpy, and utterly insufficient. See a God who meets needs for His children. See a God whose heart beats for the least of these. Don’t praise our messy selves, praise God for work that is so evidently only Him.

9. Often, laughter is a load lifter. Milton Berle once said that, “Laugher is an instant vacation.” Mini vacations are always a yes. A Jimmy Fallon clip sent while we sit in a hospital room is a good dose of medicine. When you opened the fridge to get milk, did you find your cell phone? Text us. Our house is crazy, and it’s great to know yours is too.

10. Often we are told that God doesn’t “give us more than we can handle”, but we are finding the very opposite. This is way more than we can handle. We are far outside the borders of our own capacity, but every morning God meets us where we are, replacing our weakness with His strength, our fear with His hope. Experiencing what it feels like to take steps forward only because of God is the greatest blessing of this journey.

Thank you, family and friends, for journeying with us. Our family is weary, but has had to learn to trust, release control, pursue joy, find hope and live with more intention. God has much to say, and He often speaks most clearly through the little people that He gifts us with. Let’s all lean in and listen carefully, as the fragile ones have mighty lessons to share.

9 responses to “10 Things Adoptive Parents of Medical Needs Kids Want You to Know”

  1. Hi Rebecca, I was thinking of you and your lil ones just yesterday and I’m so thankful to read your words here now at NHBO. Contd prayers for your lil one(s) and family as you navigate the journey and so thankful to hear these points you shared.

  2. Donna Dear says:

    I can so relate to all of this. It is hard to update everyone when things are often changing daily. God is truly faithful to take care of us and our children!

  3. Rachel says:

    Love your open heart and honesty! We REALLY are praying for you guys…all of you!

  4. thegangsmomma says:

    KNOCKED IT OUT OF THE PARK, again. You are so eloquent, so gracious. Thanks for putting into coherent and lovely-toned words what my heart has been wrestling with these last five months. I am so glad to call you my friend.

  5. Kam says:

    I love you, sweet friend. I appreciate you more than you know and I’m so glad our paths crossed 5+ years ago. My heart resonates with yours and I’m blessed to know you. To God be the glory.

  6. tonggumomma says:

    This was beautifully written and oh-so-accurate.

  7. tg says:

    Such a God-honoring post, Rebecca! I love seeing Christ in you and through you! And I love Jimmy Fallon, too!

  8. Eric Olson says:

    Very well said Rebecca.

    If you are someone who is of support to a family with health challenges go ahead and read this article again.

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