Chronic: The Race Set Before Us

January 23, 2015 adoption realities, chronic conditions, Rebecca 4 Comments

I am coming to terms with it.  This is not passing.  It’s not over after a surgery, or two.  Or after a therapy session, or three.  The first year is behind us, but there are more miles in this marathon.  I’m discovering what chronic means.  I’m learning that adopting a child labeled medically complex truly does mean “continuous care” and it will “require services from different practitioners in multiple settings over time“.   

We knew it would be a stretch, but we didn’t expect to unravel completely.   We cherished our comfy, together feeling, unaware we were wound around the wrong things. 

Life is now a marathon of appointments,  surgeries, X-rays, nurse calls, research, MRIs, infection, complications, testing, PICC lines, anesthesia, ultrasounds, therapy, and care taking.  And our emotions dart between fear, hope, tears, weakness, hero mode determination, numbness, faith,  exhaustion, new joy, and gratitude.   Human feelings and supernatural strength step simultaneously together.

So we must face what chronic and complex mean.

The antibiotics will continue. 
The appointments will continue.
The care taking will continue.
The “catastrophic” insurance medical cap will be met. 
More procedures. More medical supplies.  More hurt.  More miles to go.

We wonder if our prayer team will start dwindling.
We wonder if people are weary of medical talk and prayer requests. 
We wonder if we’ll figure out how to truthfully yet concisely answer, “How is she?”
We wonder if telling the truth is whining, because we should be running the race better. 
We wonder if doctors are making the best decisions.
We wonder if God wants us to hope for miracles or accept realities.

Well intentioned people in our lives regularly encourage us with, “It will be fine.”  “She’ll be fine.”  “You’ll be fine.”  But what do you do when your heavy heart simply doesn’t feel “fine” watching your child endure continual procedures, tests and hurts?   Should we try harder to be fine? 

We wonder how parents of more complex children do it.  We think, “Well that family adopted a child with the much harder XYZ disease and they seem together.”  Or, “That family has adopted four kids with complex needs, and are adopting three more, what’s my problem?” 

But our child’s pain messes with us.  When discomfort comes daily, tears flow regularly, painful tests are ongoing, and caretaking that hurts is required, there is trauma to process.    Is my faith growing?  Yes.  Am I feeling blessed and refined?  Yes.  But there is still trauma to process. 

No matter the internal or external pressures we feel, we must  give ourselves the freedom and time  to feel what is to be felt.  To look at the dark parts of the trail and not look away.  God is allowing us to walk through something chronically hard.  From the world’s perspective our child might end the race “fine”, but a parent’s heart still has steps to take.   

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God has intentionally entered us into a marathon. And if I believe He’s always good, precise and intentional, I must consider that He’d prefer I not shut my eyes while running.  Not cope, buck up, chin up, cover up, pretend or try harder to be fine.  Hurts are part of the race, and I am being asked to face it.     

There are silver linings, lessons learned, endurance gained and joyful moments.  There is always redemption.  The glass is half full.  Seasons change and mile markers will be crossed over.  I’m finding beauty everywhere and holding hard to hope, but in this less than fine race with a complex child, I’m still rubbed raw. 

I used to be coordinated and prepared, but this is not the same race. I’m finding myself often grumpy and sore, though somehow lighter.  I’m circling between clarity and disorientation .  I’m exploring how to handle chronic hurts. I’m slowing to feel the physical, emotional and spiritual.  I’m releasing myself to walk in the dark for a time. 

I won’t be getting my finisher’s medal for emotion processing anytime soon, but I can say that my frazzled smallness is illuminating God’s bigness. 

Sometimes we have to take a good hard look at darkness to enlarge our reverence for light.

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Are you running your own race, adoptive friend?

Adoption long past, but attachment still illusive?
Feelings not yet where you want them to be?
Your child’s medical needs forcing you to learn underwater breathing techniques?
Trauma raging through your home? 

Please don’t diminish your challenges because someone faces something bigger.  Don’t expect yourself to be together.  Keep your shoes laced, but don’t be afraid to see it as hard.

Maybe feeling “fine” is not what God wants for us.  Maybe He sets a marathon before us that requires so much stretching, loving and serving that we’re left aching and sore.  He has lovingly used adoption to permeate our lives, so let’s not cover ourselves with so many Band-Aids we can’t feel either its pain or its beauty.

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…let us run with endurance the race that is set before us, looking to Jesus, the founder and perfecter of our faith… Hebrews 12:1-2

Special thanks to my talented friend, Tish Goff, for the beautiful photos. 



4 responses to “Chronic: The Race Set Before Us”

  1. Lee Ann says:

    Thank you so very much for this post. For allowing and giving ‘permission’ to allow the feelings to flow without judgement. To be encouraged that the marathon continues, with no end in sight, yet we are not alone. We are not isolated. God’s tender mercies are seen in all these sweet faces and He knows it is hard,but He sends encouragement that we are not alone in this marathon. May our Heavenly Father bless you abundantly with His grace in your marathon.

  2. Jodie says:

    You have expressed yourself so beautifully. I can really hear your heart and relate to so much of what you have shared. Thank you for sharing your story.

  3. Lauren says:

    Thank you for sharing this. Words I needed to hear and often don’t allow myself to think. I’m there with you, in the medical struggles, the emotional, the rage, the rejection- all wrapped up in a not-so-neat package. The idea of a marathon relieves pressure. Like I don’t have to have this figured out in a 50 yd sprint. Thank Jesus for his long suffering and love for me as I love the little ones he’s given to me. Blessings on you and your family.

  4. Donna Dear says:

    Chronic is definitely no fun. It is hard for people to understand why is this not over. Would I love for my child to be miraculously healed – YES! There are days where I feel that “I didn’t sign up for this”, but God has been faithfully walking us thru it ALL.

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