Mercy: Adopting a Child with Albinism

September 30, 2015 albinism, developmental delays, Family Stories, September 2015 Feature - Skin Conditions, Skin Conditions 10 Comments

In 2011, my husband and I attended a banquet to benefit Ukrainian orphans. Our hearts were stirred for orphans that night. After praying for God’s direction, we chose All God’s Children International as our agency and began the process towards a special needs adoption from China. One afternoon I scrolled through the Rainbow Kids website, …Read More

Our Butterfly Child

September 15, 2015 epidermolysis bullosa, Family Stories, September 2015 Feature - Skin Conditions, Skin Conditions 2 Comments

I grew up in a third world country where the exotic butterflies are exquisite! My favorite had wings like brilliant sapphires on thin blankets of black velvet. They would flit by in glorious beauty and no matter how many times I saw them, they still took my breath away. It is hard to describe something …Read More

Special Need Highlight: Daily Care for Ichthyosis

September 10, 2015 Family Stories, ichthyiosis, September 2015 Feature - Skin Conditions, Skin Conditions 0 Comments

We had been waiting months for “The Call” from our adoption agency. Our homestudy was complete and our dossier sent to China. We were waiting, on edge, to be matched with our daughter. And when the call finally came, I missed it. My phone was in silent mode in my purse and by the time …Read More

Adopting Nevi Owners

September 6, 2015 Congenital nevus, September 2015 Feature - Skin Conditions, Skin Conditions 0 Comments

“I may not be able to change the world, but I can change the world for one child.” That, in a sense, is how I have felt since my youth. We began our first adoption process in the fall of 2006 pursuing China’s non-special needs program. Our small agency did not have a special needs …Read More

What Does Life with EB Look Like?

September 3, 2015 epidermolysis bullosa, September 2015 Feature - Skin Conditions, Skin Conditions, Whitney 2 Comments

What does life with EB look like? It looks like swinging on swings at the park. Epidermolysis Bullosa is a genetic connective tissue disorder. There are many types and sub-types, each affecting the individual in different ways. Regardless of type or sub-type, one thing that I have noticed about kids with EB, and their families, …Read More

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