Thriving with Thalassemia

March 26, 2016 beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 2 Comments

My daughter’s medical information is scary. It has words like chronic and terminal. Add that to the fact that her orphanage has never had a child with her diagnosis live past the age of 14, and you start to really get a grim picture of her life. Now, wipe all of that away, because it’s …Read More

We Said Yes, Anyway

March 22, 2016 beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 2 Comments

“It’s so easy to live with! It barely impacts our day to day life.” “It’s a very complicated disease. It looks like it’s going to be another couple of weeks in the hospital this time…” You might think I’m referring to different disorders in the descriptions above. The truth is these were all things I …Read More

One Small Step, One Giant Leap

March 14, 2016 beta thalassemia, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia 0 Comments

Our adoption story began years before we actually had the courage to take the leap and start the process to adopt internationally. On and off, literally for years, my sweet husband and I would each feel lead to adopt. Those feelings and promptings were most often followed by a conversation about the lack of finances …Read More

Learning Curve: Adopting a Child with Hemophilia

March 12, 2016 adopting as first time parents, Blood Conditions, Faith, Family Stories, hemophilia, March 2016 Feature - Blood Conditions, referral, waiting to travel, working mom 6 Comments

After a twenty-minute speech about what our daily routine would entail, followed by a list of possible complications, the Hematologist looked at me pointedly… “You know, it will be a steep learning curve for you all, but you will settle into a routine, and more quickly than you think. You’ll see. He’s just a boy.” …Read More

More Than Blood: Adopting a Child with Thalassemia

March 11, 2016 adopting again, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia 1 Comments

How do most kids get in a pool? They jump… full force, no holding back. They don’t know what the water temperature is, and they don’t care. They are so excited to be at the pool, they anticipate all the fun they are about to have, and it doesn’t bother them if the water is …Read More

The Story of MengYan

March 9, 2016 Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia 1 Comments

MengYan’s story began in China, in Hunan Province. We do not know much about her birth or her birth family. She was found abandoned in a box at the front door of the local police station. She was a newborn at that time and was taken to an orphanage because her family could not be …Read More

#whatisthalassemia

March 8, 2016 beta thalassemia, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia 1 Comments

Our Journey with Thalassemia First let me say this is not our story this is His story. If it was ours we would never know what thalassemia was nor would we ever have our precious kids. My husband and I have always wanted a large family and to grow our family through adoption, but never …Read More

Ripples on the Water

March 5, 2016 beta thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia 1 Comments

Eight years ago I saw my daughter for the first time… a sad face standing behind metal bars. She looked scared and confused, with an expression that seemed more like an old woman than a young child. I searched her eyes and saw… nothing. No life, no twinkle, no joy. Expecting a referral for months, …Read More

How Adopting A Child With Hemophilia Has Changed Our World

March 2, 2016 Blood Conditions, hemophilia, March 2016 Feature - Blood Conditions 1 Comments

Hemophilia became part of our world on April 28, 2014 when I opened our agency’s waiting child page and saw our son’s profile. I had heard of this rare bleeding disorder before, but I really had no idea what it meant for day to day life. Actually, I did not know any medical conditions would …Read More

And Babies Make Four: Adopting Two Sons with PKU

March 1, 2016 adopting as first time parents, adopting two at once, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, PKU, virtual twins 4 Comments

At birth, I was diagnosed with PKU (Phenylketonuria). Most people do not know about this metabolic disorder, but all newborns in the US are tested at birth and if diagnosed, a special low-protein diet begins and should be maintained throughout life. With proper treatment, the child will escape the threat of untreated PKU which includes: …Read More

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