Thriving with Thalassemia
March 26, 2016
beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia
My daughter’s medical information is scary. It has words like chronic and terminal. Add that to the fact that her orphanage has never had a child with her diagnosis live past the age of 14, and you start to really get a grim picture of her life. Now, wipe all of that away, because it’s …Read More
We Said Yes, Anyway
March 22, 2016
beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia
“It’s so easy to live with! It barely impacts our day to day life.” “It’s a very complicated disease. It looks like it’s going to be another couple of weeks in the hospital this time…” You might think I’m referring to different disorders in the descriptions above. The truth is these were all things I …Read More
One Small Step, One Giant Leap
March 14, 2016
beta thalassemia, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia
Our adoption story began years before we actually had the courage to take the leap and start the process to adopt internationally. On and off, literally for years, my sweet husband and I would each feel lead to adopt. Those feelings and promptings were most often followed by a conversation about the lack of finances …Read More
Learning Curve: Adopting a Child with Hemophilia
March 12, 2016
adopting as first time parents, Blood Conditions, Faith, Family Stories, hemophilia, March 2016 Feature - Blood Conditions, referral, waiting to travel, working mom
After a twenty-minute speech about what our daily routine would entail, followed by a list of possible complications, the Hematologist looked at me pointedly… “You know, it will be a steep learning curve for you all, but you will settle into a routine, and more quickly than you think. You’ll see. He’s just a boy.” …Read More
More Than Blood: Adopting a Child with Thalassemia
March 11, 2016
adopting again, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, older child adoption, thalassemia
How do most kids get in a pool? They jump… full force, no holding back. They don’t know what the water temperature is, and they don’t care. They are so excited to be at the pool, they anticipate all the fun they are about to have, and it doesn’t bother them if the water is …Read More
The Story of MengYan
March 9, 2016
Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia
MengYan’s story began in China, in Hunan Province. We do not know much about her birth or her birth family. She was found abandoned in a box at the front door of the local police station. She was a newborn at that time and was taken to an orphanage because her family could not be …Read More
#whatisthalassemia
March 8, 2016
beta thalassemia, beta thalassemia major, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, should we adopt?, thalassemia
Our Journey with Thalassemia First let me say this is not our story this is His story. If it was ours we would never know what thalassemia was nor would we ever have our precious kids. My husband and I have always wanted a large family and to grow our family through adoption, but never …Read More
Ripples on the Water
March 5, 2016
beta thalassemia, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, thalassemia
Eight years ago I saw my daughter for the first time… a sad face standing behind metal bars. She looked scared and confused, with an expression that seemed more like an old woman than a young child. I searched her eyes and saw… nothing. No life, no twinkle, no joy. Expecting a referral for months, …Read More
How Adopting A Child With Hemophilia Has Changed Our World
March 2, 2016
Blood Conditions, hemophilia, March 2016 Feature - Blood Conditions
Hemophilia became part of our world on April 28, 2014 when I opened our agency’s waiting child page and saw our son’s profile. I had heard of this rare bleeding disorder before, but I really had no idea what it meant for day to day life. Actually, I did not know any medical conditions would …Read More
And Babies Make Four: Adopting Two Sons with PKU
March 1, 2016
adopting as first time parents, adopting two at once, Blood Conditions, Family Stories, March 2016 Feature - Blood Conditions, PKU, virtual twins
At birth, I was diagnosed with PKU (Phenylketonuria). Most people do not know about this metabolic disorder, but all newborns in the US are tested at birth and if diagnosed, a special low-protein diet begins and should be maintained throughout life. With proper treatment, the child will escape the threat of untreated PKU which includes: …Read More