February 23, 2019 ASD, February 2019 Feature - Heart, Heart System, pulmonary atresia, pulmonary stenosis, VSD 0 Comments

Honestly, I don’t feel like I quite fit in the special needs community. Or even the adoption community. Our lives at one point were very much impacted by both of those things, but now it looks very normal. I drive my four kids – all in school – and I drive them all over creation. …Read More

February 18, 2019 advanced heart failure, complex heart defect, end stage cardiac disease, February 2019 Feature - Heart, Heart System 0 Comments

Dear Heart Warrior Mamas, Before we adopted our daughter, who was born with congenital heart disease (CHD), I didn’t know so many things. But you and my daughter have taught me.. I didn’t know what it meant to advocate for your own child. I have watched you learn medical terminology. I have witnessed your brave …Read More

February 13, 2019 2019 Features, advanced heart failure, complex heart defect, February 2019 Feature - Heart, Heart System, heterotaxy, large families, malnourishment, pulmonary stenosis, single ventricle heart disease, terminal diagnosis 0 Comments

Have you ever received news that was so hard to hear you actually felt like you were having an out of body experience? The afternoon of Evelyn’s heart catheterization, the day that doctors and surgeons came into a small room to explain to my husband and I that our little girl was more critical than …Read More

February 3, 2019 adoption community, advanced heart failure, complex heart defect, Family Stories, February 2019 Feature - Heart, Heart System 0 Comments

It is with great joy that I share that Madison Adoption Agency is offering an adoption grant in honor of our daughter, and forever hero, Ivy Joy. For those of you who are new to our story, our precious Ivy Joy went home to Jesus on March 20, 2017. Ivy had a complex heart defect …Read More