From Organ Donation To Graduation

February 13, 2019 2019 Features, advanced heart failure, complex heart defect, February 2019 Feature - Heart, Heart System, heterotaxy, large families, malnourishment, pulmonary stenosis, single ventricle heart disease, terminal diagnosis 0 Comments

Have you ever received news that was so hard to hear you actually felt like you were having an out of body experience? The afternoon of Evelyn’s heart catheterization, the day that doctors and surgeons came into a small room to explain to my husband and I that our little girl was more critical than …Read More

Carrying Hope High

May 10, 2018 Family Stories, fundraisers, May 2018 Feature - Now What? Life After China Program Changes, other ways to care for the orphan, Stefanie, terminal diagnosis 3 Comments

I recently reached out to my friend Emily to ask if she’d be willing share her story here on NHBO. Hers is a story that we – as the adoption community – need to hear… especially during this time of such significant and devastating changes in the China program. We need to cling to hope, …Read More

The Club I Never Wanted to Join

March 1, 2018 advanced heart failure, complex heart defect, Family Stories, February 2018 Feature - Heart, Heart System, terminal diagnosis 2 Comments

I’d been part of the adoption community for over 10 years and the heart moms always seemed so special to me. They were so brave and so strong, way stronger than I could ever be; moms who were willing to take this giant leap out onto the ledge of life and death for their children. …Read More

I Commit Myself to Thee

December 27, 2017 Andrea O., complex heart defect, complex medical, disruption, November 2017 Feature - Preparing for Adoption, prepping for China, terminal diagnosis, undiagnosed SN 23 Comments

I commit myself to thee. After the adoption of our youngest child and her immediate hospitalization from end-stage heart failure, I began to receive emails and messages via social media from some of the dozens of families who had reviewed her file. One of the families wrote something that shook my soul and has remained …Read More

A Life Donated: Part 17 and an Epilogue

November 13, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, Heart System, single ventricle heart disease, terminal diagnosis 4 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 16

November 5, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 14

October 15, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 13

October 8, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 12

September 27, 2017 A Life Donated, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 11

September 16, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 10

September 5, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 3 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 9

August 28, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 8

August 20, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, hospital stays, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 7

August 15, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 6

August 3, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 5

July 27, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 4

July 11, 2017 A Life Donated, Andrea O., complex heart defects, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 3

June 27, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 2

June 8, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 1

May 27, 2017 A Life Donated, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

Choosing Happiness Daily: Adopting a Child with an Unfixable Heart

February 19, 2017 adopting a boy, complex heart defect, double inlet left ventricle, Eisenmenger’s Syndrome, Family Stories, February 2017 Feature - Heart, heart defect, Heart System, older child adoption, pulmonary hypertension, terminal diagnosis, TGV 4 Comments

One evening less than two months after bringing home our second son from China, I told my husband that I wished we could adopt an older child someday too. In both of our travel groups, there were older children who were adopted. These had made such an impact on my heart! They understood the idea …Read More

Saying Yes to a Child with a Terminal Diagnosis

November 28, 2016 complex heart defect, Heart System, terminal diagnosis, TGA 10 Comments

When we felt God’s pull on our hearts to adopt, it was the year 2012 and we had three biological children, ages 11, 8 and 6. We had never thought we would adopt, but God had created a yearning so strong in our hearts that we couldn’t say no. Adoption in and of itself was …Read More

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