Please Don’t Poke the Bear
July 23, 2017
adopting as first time parents, BAHA, Craniofacial, declining a referral, Family Stories, hearing loss, hemifacial microsomia, July 2017 Feature - Craniofacial, medical needs checklist, microtia, referral, speech therapy, waiting for referral
I call my daughter baby bear. For my first Mother’s Day, my husband presented us with matching mama bear/baby bear bracelets. SJ saw them and exclaimed: “SJ. Mama. Same!” Though I’ve never considered myself a shrinking violet by any means, this process, this crazy-beautiful, seemingly impossible way of becoming parents, has seemed to draw out …Read More
July Special Needs Focus (and Favorite Family Stories): Craniofacial
July 1, 2017
cl/cp, Craniofacial, craniofacial cleft, Family Stories, Favorite Family Stories, hemifacial microsomia, July 2017 Feature - Craniofacial, microtia, tessier cleft
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
Microtia. What?
July 23, 2015
BAHA, Craniofacial, Family Stories, hearing loss, hemifacial microsomia, July 2015 Feature - Craniofacial, microtia, Sensory System, speech therapy, velopharyngeal Insufficiency
“My ear hurts mommy.” “Which ear honey? Do both ears hurt?” “No, silly. This one doesn’t hurt. It’s not open. It’s teeny tiny.” Olivia was 3 and this was the first time that I knew of that she noticed that her right ear didn’t match the left. We had never made a big deal out …Read More
When Labels Don’t Stick
October 15, 2014
Carrie, hearing loss, hemifacial microsomia, microtia, sedated ABR, Sensory System
It’s been a year since I paused while writing a post for this very site and glanced at the photo-listings for children on our agency’s website. And I saw her. It was a morning exactly like this one. I was up early, before the sun came up. The cup of coffee growing cold beside the …Read More
Meah
September 22, 2009
Craniofacial, Family Stories, hemifacial microsomia
by Melinda, mom to Meah from China with hemifacial microsomia When my husband and I were in the process of adopting again, we had looked at all the programs and chose to adopt minor special needs from Vietnam. We also thought we would adopt a 2 to 4 year old… little did we know. While …Read More