April 11, 2018 April 2018 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, hypotonia, low muscle tone, occupational therapy, periventricular leukomalacia, physical therapy, Uncategorized 1 Comments

When we were matched with Hailey, she was 6 months old, and we were blessed to call her our daughter! We waited over 18 months to see this sweet girl’s face, and could not believe the day was finally here. With her referral information, we were given the results of a CT scan, which showed …Read More

June 4, 2017 Central Nervous System, cerebral palsy, developmental delays, Developmental System, Lifelong needs, low muscle tone, May 2017 Feature - For Life, seizures, undiagnosed SN 1 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. In our For Life series, we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what …Read More

April 14, 2017 ASL, Attachment, attachment activities, developmental delays, Developmental System, low muscle tone, non-verbal, sign language 3 Comments

Talking is my strong suit. I love to talk. My grandmothers would both comment on my ability to talk, even at a very young age. I remember being at a Shoney’s (a restaurant) when I was around five or six years old. My grandmother shushed me several times. It was then I realized how much …Read More

January 24, 2017 adopting a boy, Attachment, attachment activities, cognitive delay, complex medical, developmental delays, Developmental System, Family Stories, first weeks home, first year home, low muscle tone, Newly Home, should we adopt? 8 Comments

Alternately titled: What I wish I would have known, and what I would like to share with other adoptive families I first started out with adoption in 2004 when I was just 21 years old. It was the summer before my senior year of college when I got a job as an intern at All …Read More

July 13, 2016 Developmental System, Family Stories, low muscle tone 1 Comments

Thunderstorms – you either love ‘em or hate ‘em. It was 5:00 am when the crack of thunder woke us all up. My six-year-old crawled into our bed for the very first time. Yes, it’s normal for some children to be frightened by thunderstorms, but for some reason, he really hates them. Even the mention …Read More

January 13, 2016 brain damage syndrome, Developmental System, estropia, Family Stories, hypoxic ischemic encephalopathy, low muscle tone, oral-motor delays, speech delay 2 Comments

The words in Miao’s file were daunting. “Soften lesion of posterior horn” and “softening of bilateral ventricle” and “HIE”. I wasn’t sure how to pronounce them, let alone what they meant. And my trusty sidekick, Google, was having trouble explaining them as well.   I had come across a picture and short description of Miao …Read More

October 16, 2015 cognitive delay, developmental delays, Family Stories, low muscle tone, October 2015 Feature - Developmental, oral-motor delays, speech delay, undiagnosed SN 3 Comments

Our daughter’s special need wasn’t on a checklist. Even today, we still don’t know what her special need is. Her medical history is a complete mystery. With no birth story, we will never have all of the pieces to the puzzle. Yet, her puzzle will not always be incomplete. In fact, as we put these …Read More