Put Me In, Coach! What One Girl In An Extra-Small Pink Jersey Taught Me About Being Fearless

June 1, 2018 a father's perspective, Dads, growth hormone deficiency, HIV, June 2018 Feature - Celebrating Dads, Mike, Perspectives 1 Comments

So excited to kick off our June Feature, Celebrating Dads, with a post by Mike, a previous (and greatly missed) regular contributor. Mike has written some of our most well-loved posts… if it’s a post that has you both laughing and crying, there’s a good chance Mike wrote it. You can read all Mike’s posts …Read More

Doubly Blessed by PWS (Prader-Willi Syndrome)

November 12, 2017 complex medical, developmental delays, Family Stories, growth hormone deficiency, hip dysplasia, Nutrition, Prader-Willi syndrome 6 Comments

Hi, I’m Kallie. I am married to David, and we have two precious sons through adoption, Jahleel and Camden. Jahleel is five and a half years old and Camden is three and a half. Camden just came home from China this past spring. Both our boys have diagnoses of Prader-Willi syndrome (PWS), but they present …Read More

Rachel

September 6, 2012 Family Stories, growth hormone deficiency, lysinuric protein intolerace, missing fingers/toes, reactive attachment disorder 1 Comments

By Kathy, mom to Rachel from China with a SN of missing fingers Eight years ago we adopted a little girl from China with a hand difference. We had lost our firstborn son to Trisomy 13 shortly after his birth in 1999. He had many visible anomalies, such as extra fingers and a cleft lip …Read More

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