A Life Donated: Part 17 and an Epilogue

November 13, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, Heart System, single ventricle heart disease, terminal diagnosis 4 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 16

November 5, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 15

October 27, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 14

October 15, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 13

October 8, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 11

September 16, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 10

September 5, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 3 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 9

August 28, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 8

August 20, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, hospital stays, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 7

August 15, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

Wisdom for Enduring Extended Hospital Stays

February 27, 2017 advanced heart failure, Andrea O., complex heart defect, February 2017 Feature - Preparing Your Child for Medical Interventions, heart transplant, hospital stays, Little Hearts Medical, Medical Momma, surgery 0 Comments

When we arrived home with our youngest daughter and fourth CHD child, Rini, in August of 2013, my definition of a long hospital stay was three weeks. When my husband dropped us off at the entrance of the children’s hospital’s Emergency Department straight from the airport, little did I know that my definition of an …Read More

February Special Needs Focus (and Favorite Family Stories): The Month of Hearts

February 6, 2017 advanced heart failure, ASD, complex heart defect, double outlet right ventricle, Favorite Family Stories, February 2017 Feature - Heart, heart defect, Heart System, HLHS, PDA, single atrium heart disease, Tetralogy of Fallot, TGA, TGV, VSD 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

The Ledge

November 27, 2016 advanced heart failure, Andrea O., complex heart defect, complex heart defects, Heart System, heart transplant 3 Comments

On November 11, 2013, our 24 month old daughter was in the Cardiac ICU, on the national transplant waiting list, and on ECMO life support due to end stage heart failure. The following day, we would learn that she would receive the gift of life through cardiac transplant. During that tumultuous time, I had many …Read More

Cardiac Transplant: part two

February 16, 2015 advanced heart failure, complex heart defect, end stage cardiac disease, Family Stories, February 2015 Feature, February 2015 Feature - Heart, heart defect, heart transplant, single ventricle heart disease 0 Comments

This is the second half of a two-part post written by two mamas who have walked a similar – and yet very different – path. Both of their daughters, adopted from China with complex heart defects, required what most parents would consider a worst case scenario: a cardiac transplant. Each shares their experience below. Andrea, …Read More

Cardiac Transplant: Two Little Girls, Two New Lives

February 9, 2015 advanced heart failure, complex heart defect, end stage cardiac disease, Family Stories, February 2015 Feature, February 2015 Feature - Heart, heart defect, heart transplant, single ventricle heart disease 0 Comments

February is Congenital Heart Defect Awareness Month, so this month we will be featuring several posts from moms parenting children with heart defects. Our goal is to inform and equip those considering or home with children with this special need by sharing the real-life experiences of those already parenting a child with a CHD. This …Read More

adopting a child with congenital heart disease

May 25, 2014 advanced heart failure, Andrea O., ASD, complex heart defect, double outlet right ventricle, end stage cardiac disease, Family Stories, heart defect, Heart System, single ventricle heart disease, Tetralogy of Fallot, TGA, VSD 1 Comments

Four years ago, I could not describe the structure or mechanism of the human heart. Now, that magical and miraculous pump that provides the essence of life is something I think about every day. What an amazing odyssey it has been! This post is not enough to do justice to the complexity of the topic …Read More

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