Doctor Friends

February 27, 2018 complex heart defect, endocardial cushion defect, February 2018 Feature - Heart, Heart System, heterotaxy, pulmonary hypertension, single atrium heart disease 0 Comments

When my husband and I first were matched with our son, Jet, we didn’t know a whole lot about the world of pediatric cardiology and congenital heart defects. Our son was born with heterotaxy (complete abdominal situs inversus) with left atrial isomerism, functional polysplenia, interrupted inferior vena cava, partial endocardial cushion defect, tricuspid and mitral …Read More

Dear Could-Be Heart Mama…

February 14, 2018 complex heart defect, February 2018 Feature - Heart, Heart System, heterotaxy, major aorto-pulmonary collateral arteries, medical needs checklist, Morning Star Foster Home, pulmonary hypertension, referral, single atrium heart disease, single ventricle heart disease 1 Comments

Dear Could-Be Heart Mama, thinking of bringing home your own little Broken-Hearted Brave, It’s the morning here, on this Celebration of Hearts, and I wake up to a house full of little hearts — brave and broken ones, that is. We like to call ourselves this “Little House of Brave” — like a warrior rally …Read More

Choosing Happiness Daily: Adopting a Child with an Unfixable Heart

February 19, 2017 adopting a boy, complex heart defect, double inlet left ventricle, Eisenmenger’s Syndrome, Family Stories, February 2017 Feature - Heart, heart defect, Heart System, older child adoption, pulmonary hypertension, terminal diagnosis, TGV 4 Comments

One evening less than two months after bringing home our second son from China, I told my husband that I wished we could adopt an older child someday too. In both of our travel groups, there were older children who were adopted. These had made such an impact on my heart! They understood the idea …Read More

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