A Life Donated: Part 14

October 15, 2017 A Life Donated, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 13

October 8, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 12

September 27, 2017 A Life Donated, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 11

September 16, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 10

September 5, 2017 A Life Donated, advanced heart failure, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 3 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 9

August 28, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 8

August 20, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, hospital stays, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 7

August 15, 2017 A Life Donated, advanced heart failure, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 6

August 3, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 5

July 27, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 4

July 11, 2017 A Life Donated, Andrea O., complex heart defects, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 3

June 27, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 0 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 2

June 8, 2017 A Life Donated, Andrea O., complex heart defect, end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

A Life Donated: Part 1

May 27, 2017 A Life Donated, Andrea O., end stage cardiac disease, heart transplant, single ventricle heart disease, terminal diagnosis 2 Comments

Rini, our youngest of six children, was adopted in August of 2013 at end stage heart failure stemming from complex, single ventricle congenital heart disease. She was admitted to the hospital immediately upon arrival home and within two weeks it was determined that she was inoperable, her only hope would come through cardiac transplant. She …Read More

Strength for the Journey: Adopting a Child with Complex Heart Defects

February 26, 2017 atrioventricular canal defect, complex heart defect, Family Stories, February 2017 Feature - Heart, Heart System, heterotaxy, hospital stays, pulmonary atresia, single ventricle heart disease, VSD 0 Comments

I was just able to sit down with a cup of hot tea on a cold and lazy Saturday afternoon, relishing in the quiet and calm. Also know as, daddy is home so he is dodging toddlers and taking care of farm animals while I hide in his office to write this article. With six …Read More

He Is A Gift

February 9, 2017 adopting a boy, Family Stories, February 2017 Feature - Heart, Heart System, HLHS, older child adoption, pulmonary stenosis, single atrium heart disease, single ventricle heart disease, TGA 7 Comments

Our son, Matthew, is eight years old. He came home last year in May 2016. Throughout the adoption process and shortly after arriving home, God reminded us that Matthew is a gift. My husband and I would hear “He is a gift” over and over again. God had to remind us. He had to because …Read More

We’re Not Special

January 5, 2016 complex heart defect, Family Stories, Heart System, HLHS, older child adoption, orphan hosting, single atrium heart disease, single ventricle heart disease, TGA 2 Comments

My husband, Bobby, and I are not special. We keep being told that we are. Ever since starting the adoption process, people keep telling us we are “special”. I don’t always know how to respond. I feel embarrassed and totally unworthy. We don’t belong on that pedestal. Have they seen our very un-special home and …Read More

What We Know…

February 28, 2015 complex heart defect, double outlet right ventricle, February 2015 Feature, February 2015 Feature - Heart, pulmonary atresia, pulmonary stenosis, single atrium heart disease, single ventricle heart disease, Tetralogy of Fallot, TGV 0 Comments

We know that adoption is beautiful, don’t we? We know that it is a wonderful way to build a family. We also know that it can be painful, and scary, and even though it can most definitely be a dream come true, it can also hold many frightening unknowns… We have three dreams come true, …Read More

Cardiac Transplant: part two

February 16, 2015 advanced heart failure, complex heart defect, end stage cardiac disease, Family Stories, February 2015 Feature, February 2015 Feature - Heart, heart defect, heart transplant, single ventricle heart disease 0 Comments

This is the second half of a two-part post written by two mamas who have walked a similar – and yet very different – path. Both of their daughters, adopted from China with complex heart defects, required what most parents would consider a worst case scenario: a cardiac transplant. Each shares their experience below. Andrea, …Read More

Cardiac Transplant: Two Little Girls, Two New Lives

February 9, 2015 advanced heart failure, complex heart defect, end stage cardiac disease, Family Stories, February 2015 Feature, February 2015 Feature - Heart, heart defect, heart transplant, single ventricle heart disease 0 Comments

February is Congenital Heart Defect Awareness Month, so this month we will be featuring several posts from moms parenting children with heart defects. Our goal is to inform and equip those considering or home with children with this special need by sharing the real-life experiences of those already parenting a child with a CHD. This …Read More

adopting a child with congenital heart disease

May 25, 2014 advanced heart failure, Andrea O., ASD, complex heart defect, double outlet right ventricle, end stage cardiac disease, Family Stories, heart defect, Heart System, single ventricle heart disease, Tetralogy of Fallot, TGA, VSD 1 Comments

Four years ago, I could not describe the structure or mechanism of the human heart. Now, that magical and miraculous pump that provides the essence of life is something I think about every day. What an amazing odyssey it has been! This post is not enough to do justice to the complexity of the topic …Read More

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