“It’s Just the Way God Made Me”

September 11, 2017 amputation, Education, limb difference, missing fingers/toes, Orthopedic, prosthetics, public school, September 2017 Feature - Visible Special Needs, visible special need 7 Comments

Anna Grace is five years old. She loves all things Disney and princesses. Her favorite outings are to the zoo, museum, or playground. She takes dance class and swimming lessons. When she grows up, she wants to be a doctor, dance teacher, singer, or dog trainer. She loves playing outside with her friends, especially if …Read More

What’s in a Word

April 11, 2017 amputation, congenital femoral deficiency, Family Stories, limb difference, missing arm/leg, Orthopedic, prosthetics, proximal femoral focal deficiency, rotationplasty 2 Comments

Driving in the car recently, I was listening to my girls’ conversation with each other and was struck by the words that came out of their mouths. Almost perfectly pronounced, and discussed quite nonchalantly, words like: prosthetic leg, surgery, backwards foot. It sort of hit me that these are words that not everyone (especially little …Read More

Easy-Peasy-Lemon-Squeezy

July 1, 2016 adopting a boy, amputation, Family Stories, June 2016 Feature - Orthopedic, Larsen Syndrome, limb difference, older child adoption, prosthetics 1 Comments

My son, J, has Larsen syndrome, a condition of multiple joint malformations. I write this in hopes that it shows how manageable this condition is. In the summer of 2012, I saw a video that an advocate had posted, of a little boy riding a scooter around a play area. His nanny was directing him …Read More

Part of Your World: A Mermaid Tale

June 28, 2016 amputation, Family Stories, fibular hemimelia, June 2016 Feature - Orthopedic, leg length discrepancy, limb difference, missing fingers/toes, Orthopedic, prosthetics 4 Comments

We first saw her profile on our adoption agency’s web page. Her special need was listed as lower leg deformity, a layman’s term for fibular hemimelia, a congenital condition of missing/shortening of fibular bone, curved tibia (shin bone) and underdeveloped foot. I turned to my husband and said: “Hey, she looks kinda cute, but we …Read More

No Limits: Adopting a Child with Amniotic Band Syndrome

June 26, 2016 adopting again, amniotic band syndrome, amputation, June 2016 Feature - Orthopedic, missing fingers/toes, Orthopedic, prosthetics, referral 0 Comments

As mom to four biological boys, I remember the ultrasound appointments where the heart, kidneys, bones and limbs were surveyed and carefully measured. I was blessed with healthy boys and encouraging news from each of those prenatal appointments. Often, I wonder if my girls’ China mommies had ultrasounds, and if they knew prior to birth …Read More

My Warrior. My Princess.

June 4, 2016 amputation, Family Stories, June 2016 Feature - Orthopedic, limb difference, Orthopedic, prosthetics 2 Comments

“She is the perfect combination of warrior and princess.” This phrase echoed through my mind as I watched her jump and twirl down the street, still wearing her tutu, waving her pirate sword in the air. She had just completed her first dance recital. I told her earlier that day, “Sometimes little girls get flowers …Read More

The Simplicity of Prosthesis

June 30, 2015 amputation, burns, contracture deformity, Family Stories, June 2015 Feature - Orthopedic, Orthopedic, prosthetics 0 Comments

That would probably not have been our reaction if you would have told us seven years ago that we would have multiple pairs of prosthetic legs in our house. In early 2009, we were researching China’s special needs adoptions after adopting twice through the non-special needs program. Some of the special needs just looked too …Read More

Lilah’s Turn

September 24, 2010 limb difference, missing hand/foot, prosthetics 0 Comments

by Anne and Mike, mom and dad to Lilah from China with a SN of limb difference Lilah is our second adopted child from China. Her brother Luke was adopted in February 2007 and the word to best describe his adoption was probably shocking. We were under the impression that his disabilities were minimal, and …Read More

Braxton

March 15, 2010 limb difference, missing arm/leg, prosthetics 0 Comments

by Tamera, mom to Braxton from China with an SN of limb difference Yesterday we awoke before the crack of dawn. This was a big day indeed. Braxton and I were headed to Shriners Hospital to receive his first prosthetic leg. It was merely 5:00am when we headed out and yet Braxton was wide eyed …Read More

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