The Dance

August 23, 2018 adopting out of birth order, Central Nervous System, clubfoot, Family Stories, mobility issues, older child adoption, Orthopedic, scoliosis, spina bifida, virtual twins, wheelchair user 5 Comments

I’ll never forget the morning I found my daughter Ava and son Daniel huddled around the family computer. The screen was blocked by their two heads… “Whatcha doin’?” I inquired. They both turned around to reveal a waiting child adoption site that they had been scrolling through. “Mom, look at this little girl… isn’t she …Read More

Knit Together

October 13, 2016 Amy, complex heart defect, Heart System, kyphosis, scoliosis, surgery, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula 5 Comments

“I am fearfully and wonderfully made. Your eyes saw my unformed body when I was knit together in my mother’s womb.” – Psalm 139 I can count on two hands the physical diagnoses our little Chinese warrior princess has in her medical history: tetralogy of Fallot (repaired) tracheoesophageal fistula (repaired) stricture of esophagus tracheomalacia chronic …Read More

Building a Family: Adopting as a Single Mom

June 3, 2016 adopting as a single mom, diastematomyelia, Family Stories, June 2016 Feature - Orthopedic, older child adoption, Orthopedic, scoliosis, spina bifida, tethered cord, working mom 2 Comments

I am a happy and busy single mom to two wonderful daughters adopted from China. My older daughter, Corrie, was adopted in 2002 through the NSN (non-special needs) program; she is a smart, funny, and thoughtful young lady who loves animals and plans to be a veterinarian when she grows up. For years Corrie and …Read More

Daily Life with Burns | Not Defined

May 31, 2015 body scars, burns, contracture deformity, Family Stories, scoliosis, Skin Conditions 2 Comments

This is our family story or what the daily life of living with burns is like. I want to make sure you all know that each story is unique and the daily life for another child with burns and their family could be much different. There are many things to consider with burns; location on …Read More

Surprise

November 24, 2014 Amy, kyphosis, scoliosis, tethered cord, Tetralogy of Fallot 7 Comments

I knew to be prepared for undiagnosed needs when we set out to adopt. We prepared for the reality that a heart condition would be worse than we originally anticipated it would be. While we went through the list of needs that we would consider or not consider we had to imagine that what we would believe would …Read More

More than I could bear

June 7, 2014 Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 6 Comments

Sometimes I forget that we have a child who is a “heart baby”, a lifelong cardiac patient, a survivor. I see her scars everyday. Scars from a surgery I wasn’t present for, scars from one I was; and, I have come to love what they represent. They are a daily reminder of healing, a unique …Read More

Surviving Gotcha Day

May 7, 2014 Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 4 Comments

A year ago today we had spent only one day with our daughter. After arriving in China, we spent 3 days in Beijing, visited the place she called Home for almost a year and met the women she called “mama”. Then we traveled to XinJiang, her province, tried to sleep on Gotcha Day Eve, and …Read More

“but it said repaired”

April 7, 2014 Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 0 Comments

I vividly remember reading our referral paperwork. I remember first reading the descriptions of her developmental milestones and evaluated her development through mom and teacher goggles… “she follows objects… she is tracking… she is grasping things… she is babbling and forming simple sounds… she turns her head when there is a noise… she can hear …Read More

TEF, TOF, and VACTERL, oh my

March 7, 2014 Amy, esophageal stenosis, scoliosis, Tetralogy of Fallot, tracheo-malacia, tracheoesophagel fistula, VACTERL 4 Comments

Don’t you love those acronyms? I have come to really appreciate the time they save, the space they save, and that I can safely dodge oodles of mispronunciation. For example, until 2012 those letter sequences meant nothing to me. If someone would have told me years ago how much I would come to know about …Read More

the greatest special need of all

February 7, 2014 Amy, Attachment, scoliosis, Tetralogy of Fallot 8 Comments

Welcome to Amy, mom to Grace adopted from China 8 months ago, and our newest contributor at No Hands But Ours. Amy blogs at Stops Along the Journey. Special needs. We hear those words so often in so many places; schools, adoption agencies, the work place, fast food restaurants, and facebook. Adoptive parents who choose …Read More

Moriah

March 21, 2009 Central Nervous System, cerebral atrophy, Family Stories, kyphosis, Orthopedic, scoliosis 0 Comments

by Amy, mother to Moriah from China with scoliosis, kyphosis, and cerebral atrophy Our three bio children were 9, 5, and 3 when we began our adoption journey in February, 2006. We submitted an application for a NSN girl under twelve months of age. As time went on the wait increased, we discussed submitting a …Read More

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