When Fear Turns To Joy

October 23, 2018 22qdeletion syndrome, adopting a boy, adopting again, cognitive delay, developmental delays, Developmental System, Family Stories, hearing aids, hearing loss, IEP, older child adoption, speech delay, Tetralogy of Fallot 1 Comments

I remember sitting there staring. Staring at the notes that I had just scribbled down. My mind was racing and yet it was paralyzed. I had just gotten off the phone with the cardiologist who reviewed the file of a girl that my husband, Dan, and I had requested him to review. I was expecting …Read More

Say What? – Six Months Later

April 9, 2018 apraxia of speech, Brandie, early intervention, Education, hearing aids, hearing loss, sign language, speech delay, speech therapy, undiagnosed SN, velopharyngeal Insufficiency 1 Comments

Six months ago, I shared about our journey with Caston through his surprise diagnosis of hearing loss and severe speech delay. Six months! Half of a year. It seems like just yesterday that I sat down to write about our experience. Since then, I’ve seen so many parents with questions and concerns relating to speech …Read More

Adopting a Deaf Child: What We’ve Learned So Far

December 2, 2017 adopting a boy, adopting again, ASL, cochlear implants, cued speech, December 2017 Feature - Sensory, hearing aids, hearing loss, profound deafness, Sensory System 6 Comments

We entered the deaf/hoh (hard of hearing) world three years ago when we adopted our first son. He was five years old with severe to profound hearing loss. His file stated that he was hard of hearing but could hear and talk with hearing aids. No big deal, we thought! If he can hear and …Read More

Our Leap of Faith: Adopting Our Son With Bilateral Microtia and Atresia

December 1, 2017 adopting a boy, ASL, BAHA, December 2017 Feature - Sensory, early intervention, Family Stories, hearing aids, hearing loss, microtia, Ponto, Sensory System, sign language, speech therapy 0 Comments

About five years ago, my husband and I began considering international adoption. We had two biological daughters, yet we both started feeling like our family wasn’t complete. During that time we researched many countries and decided China’s program would be the best fit for our family. However, the process was daunting and there was still …Read More

Say What?

October 9, 2017 attachment activities, Brandie, early intervention, Education, first weeks home, first year home, hearing aids, hearing loss, Newly Home, sign language, speech delay, speech therapy, undiagnosed SN, velopharyngeal Insufficiency 0 Comments

“I don’t get it,” I said to my friend several years ago when she mentioned she was having her toddler evaluated by an early intervention team to assess his speech. “He’s not even two. He’s a late bloomer!” I assured her. I went on with anecdotes about our first born, now 15, who at two …Read More

Hearing Loss: An Almost-Missed Diagnosis

June 5, 2017 adopting a boy, adopting again, Brandie, hearing aids, hearing loss, undiagnosed SN, waiting for referral 4 Comments

In late August 2014, I loaded up my three children and drove an hour to hand deliver our completed dossier to my adoption agency. After the months of meetings, paper chasing, notarizing, and certifying documents, I would only let those precious papers leave the firm grip of my fingers if they were placed directly in …Read More

Weathering Medical Surprises

May 9, 2017 adopting a boy, adopting again, Brandie, hearing aids, hearing loss, heart defect, oral aversion, Sensory Processing Issues, speech delay, undiagnosed SN, VSD 2 Comments

At the first sign of a chilly night in the fall, my husband and daughter take tarps to their little garden to cover her cherished tomato plants, hoping to buy them a little more time before the cold winter claims them. Around the same time, my husband and son begin the preparation for winter. They …Read More

The Little Girl No One Believed In

April 17, 2017 April 2017 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, hearing aids, hearing loss, hypoxic ischemic encephalopathy 3 Comments

I didn’t set out on this journey to become the parent of multiple children with special needs. It’s a funny thing, though, to see a dream evolve. As a young girl, I learned of the gender disparity in China and the preference for sons. In that moment, the seeds were planted in my heart and …Read More

Research, Reach Out, Advocate: Adopting a Child with Dual-Sensory Loss

December 13, 2016 December 2016 Feature - Sensory, Family Stories, glaucoma, hearing aids, hearing loss, IEP, public school, Sensory System, vision loss 3 Comments

Princess. Uniquely and wonderfully made. Perfect. One of a kind. (Actually, 1 of 347 in our state and 9,574 in the U.S.*) All words to describe our daughter Lily who joined our family in January of 2013. Her file stated bilateral congenital glaucoma. Fast forward three years… and she is legally blind, wears a sclera …Read More

A Little Piece of a Big Plan

July 16, 2016 adopting a boy, BAHA, Craniofacial, Family Stories, hearing aids, hearing loss, July 2016 Feature - Craniofacial, microtia, older child adoption, Ponto, Sensory System 0 Comments

“I just spoke to the director. He will call me when they’re about five minutes away.” It’s almost time. My heart is almost uncontainable. Everything. All of this. It’s about to happen. So many months, years, planning for this moment… Even though I shouldn’t be surprised, being a part of and seeing just a tiny …Read More

Undiagnosed Hearing Loss: Wisdom from the Journey

January 28, 2016 BAHA, Education, Family Stories, hearing aids, hearing loss, Nager Syndrome, speech therapy, undiagnosed SN 1 Comments

We always knew there were unknowns, as all adoptive parents do. But the moment we saw their faces we knew they were ours. This is important to always remember. Most of us who adopt realize that the medical records we receive are not always accurate or trustworthy. But sometimes, you just don’t know the right …Read More

Hearing Zachary

December 22, 2015 December 2015 Feature - Sensory, hearing aids, hearing loss, Sensory System 1 Comments

Continuing to focus on sensory special needs, we have a special guest contributor. Sister to regular contributor Katie, Emily adopted a son from the Philippines, and today shares her story of discovering his undiagnosed need of hearing impairment. ………. I will never forget the moment I first saw his picture. We had no intention of …Read More

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