Albinism

Visit the following blogs to read about families who have adopted children with albinism:

Elora at Last
All Things Colbry
Adoption Makes Six
Adopting Jia
Chi Town Chronicles
Hopeful Hearts, Waiting Arms
1 More Piece


The word “albinism” refers to a group of inherited conditions. People with albinism have little or no pigment in their eyes, skin, or hair. They have inherited altered genes that do not make the usual amounts of a pigment called melanin. One person in 17,000 in the U.S.A. has some type of albinism.

Albinism affects people from all races. Most children with albinism are born to parents who have normal hair and eye color for their ethnic backgrounds.


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Sometimes people do not recognize that they have albinism. A common myth is that people with albinism have red eyes. In fact there are different types of albinism and the amount of pigment in the eyes varies. Although some individuals with albinism have reddish or violet eyes, most have blue eyes. Some have hazel or brown eyes. However, all forms of albinism are associated with vision problems.


Resources:

Raising a Child with Albinism
National Organization for Albinism and Hyperpigmentation (NOAH)
Videos by NOAH
Bai China Yahoo! Group
Albinism Adoptive Families Facebook Group
How a Person with Albinism Sees (video)
Albinism in FRAME (video)

Read blog posts about Albinism on No Hands But Ours.

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