Craig Waits

June 22, 2018 0 Comments

Meet sweet Craig!

Little Craig was abandoned when he was just 10 days old. He is now four years old and is listed as a Special Focus child with Agape Adoptions. He has been diagnosed with difference of his upper limbs. Craig is physically and developmentally on track with his peers and his special need does not affect his overall health. He can walk, run, jump and play just like other kids! He has good self-care skills and can use the bathroom independently. Craig has excellent fine motor skills and likes to play with beads and blocks. More than anything, Craig loves being held and cuddled by his caretakers. When he isn’t being cuddled, Craig loves music- he enjoys singing, being sung to and listening to any music. We are told that this sweet boy is energetic and extroverted! He is very talkative and gets along well with others.

If you believe that you could be Craig’s family, contact Agape Adoptions today or call 253-987-5804. We would love to get you started on your adoption journey!

Joke’s on Me: Fibular Hemimelia

June 21, 2018 2 Comments

If you have adopted, you know the overwhelming process of filling out the medical needs checklist (MCC). For those that haven’t, this is a piece of paper with a wide range list of medical needs, each having little boxes beside them, and your job is to check the ones you are open to within adoption. Each need deserves careful consideration through research, learning about others’ experiences and your own family’s resources. For my husband and I, the process of going need by need was heart-wrenching because with each unchecked box, we felt we were leaving children behind.

A friend’s unknowing advice stood out to me during this time when she adamantly and confidently said, “Now that I have adopted once, my MCC would be vast.” I thought of this often. Her experience and knowledge drove away fear and uncertainty. I didn’t want fear to dictate the growth of our family. I didn’t want to look back and regret not being more open. With this in mind, we wisely checked several needs that were newer to our familiarity, including limb differences. To be honest, I was leery because it wasn’t a need I knew much about, especially lower limb differences. I only knew families with children who had hand differences. I even specified by writing in the margin “not lower limb differences”.

I think about this one statement quite often and find myself giggling. Oh how the joke’s on me because not one of our four children, but two, have lower limb differences. Our agency knew us well enough to call and inform me of a little girl’s file with an unknown lower limb difference. We agreed to look over the file despite the side note and anxiously awaited for the e-mail with her referral to pop up.

Refresh. Refresh. Refresh.

Were we about to see our newest daughter?

Then… there she was. We had a good laugh at her muggin’ the camera and her video where she screamed almost the entire time. She clearly wasn’t into our agency’s representative who was visiting, but it soon became clear we were into her. We loved her soft face, her confidence in her mix-matched outfits, the way her friend was concerned for her, and her almost-hint-of-a-smile. Despite the tears we saw, we also saw a sweetness, a fighter, and most importantly, our daughter. There was no longer a side note in the margin needed.

She was ours.

Meet Mei-Mei.

Over the next few months, we excitingly prepared for her arrival. We were smitten with her pictures which mainly consisted of the cutest stink eye ever. Our two children home were so excited to see their sweet sister’s face and our three year old son carried her framed photo around and sat it down next to him when he stopped to play.

During this time, we had her file looked at by orthopedic surgeons who felt confident she had Fibular Hemimelia (FH). FH is a congenital condition where the presence of the fibular bone is missing causing varying degrees of limb length discrepancy, foot deformities, and knee deformities. We could physically see how her leg was affected, but needed imaging to know the magnitude and treatment for it.

Due to the extensiveness of surgical intervention, I stayed off the internet and started connecting with families that also shared similar conditions as well as joining Facebook groups that were specific to her condition. This was very comforting and made unknown things like external fixators, amputations, rods, screws, and extended hospital stays less scary. I started getting use to the idea of orthotics and shoe lifts. It’s funny now to think I even had to “get used to the idea” but, like with most new things, there is an adjustment period. And I have learned that this is okay and completely normal.

As expecting parents, we love preparing for our newest addition’s arrival. Preparing for Mei-Mei’s arrival wasn’t just about the perfect wall collage, curtains with pom-poms and a closet full of cute outfits (not to discredit how much joy that brought me too though). It was more about equipping our family to meet Mei where she was. It was about educating ourselves so we could advocate for Mei the minute she became ours. It was about meeting new friends so that our daughter knew others with limb differences and to have wise mentors. It was about continuing the conversation with our kids that we each were created to be our own masterpieces. It was about preparing our hearts to parent a child with lower limb differences and, most of all, a child who experienced great trauma and grief.

After waiting years (okay in reality, just a few months) she was finally in our arms.

The long wait melted away and there she was. Our family of four became five. We all fell in love with a spunky, comedic, beautiful, smart, and independent little girl. Our time in China showed off her strong and stubborn qualities that we knew served her well in the past and would serve her well in the future. She was my snuggle bug, by day and by night. Her adjustment was hard but we slowly gained her trust and love.

It was beautiful watching her blossom into our family… memories I hold so dear. Her love language remains simple: snuggles, dumplings, and painted fingernails. It doesn’t take long being around Mei to see she is the craftiest little thing ever, adding gems and ribbons to everything. She loves being the boss and adores her siblings. She’s, without-a-doubt, the exclamation mark to our family.

We quickly saw that Mei compensated really well for her limb difference. To others it was almost imperceptible and her walk had a cute little skip-and-a-hop due to the absence of an ankle and discrepancy in length. It fit her fun-loving personality quite well and, in some ways, would be hard to say good-bye to.

We knew we wanted to give her time to adjust before scheduling surgeries and around the six month mark, her gait became a safety concern as her limb length discrepancy was larger due to her rapid growth. She was tripping often and had trouble wearing shoes due to her foot deformity.

We knew surgery had to come a little sooner than we hoped. We sought out local orthopedic surgeons as well as nationally recognized FH surgeons and ended up having surgery out-of-state. Gulp.

In all honesty, there are parts of this season of life I’d rather not relive, but then I would be missing out on so many precious memories born from our time through this. As a mother, there’s a deep grief in watching your child struggle, enduring unexpected surgical complications, and not being able to wave a magic wand and fix it all. We knew so many families that chose this route and while challenging at times, we saw it worked. It was doable. It gave us faith.

In the end, fortunately, we did have a good surgical outcome and adore our surgeon. But the brutality of out-of-state surgery mixed with unforeseen complications took a toll. Medical intervention, while necessary, is still added trauma. Medical intervention with complications, just means more and more trauma.

Mei battled extra surgeries, an emergency flight back to her surgeon, chaotic ER visits, ambulance rides, hospital dosage mistakes, withdrawals, and a catatonic state that lasted several days. She fought hard through it all and earned the nickname Mighty Mei. She’s never lost that admired mightiness. Our bond grew closer as I never left her side, along with her daddy.

We had the most precious, treasured, one-on-one time with her through it all. Hours of stickers, singing, playing babies, movies, snuggles, kisses, bubbles, play-doh, and hospital wagon rides. We celebrated every victory together. We decorated her hospital room to add color and cheer and covered her hospital bed in stickers. We had her favorite blankets and toys. Her amazing siblings came to support and Facetimed when they went back home. Grandparents stepped up to the plate to help fill in the gaps. Her daddy took time off work to stay and make sure she knew she had not one, but two of us, loving her through it all. Her village cheered her on and mailed fun surprises to help boost spirits and healing, which was a welcomed gesture to keep things fun. Nurses brought homemade meals, smiles and encouragement. Adoptive parents in the area showed up at the hospital with food, care packages and shed tears with us. They were a gift and instantly became family in those moments.

Before and after this, I have watched other families handle big surgeries that seem impossible to go through as a parent, as a family, and for the child. I never thought we’d take on such surgeries but, as it goes, I wouldn’t change it for the world if it meant no Mei. I’d do it a thousand times over. In the end, it was doable. These surgeries aren’t impossible. Some of our very sweetest memories were born in those moments. She is alive and living her best life with us cheering her on.

I walk away from those surgeries with gratefulness. Extreme gratefulness. She walks away remembering how we spoon-fed her soup and watched Hello Kitty. She’s given us all a deeper sense of compassion, a fighting spirit and filled our hearts with irreplaceable joy.

Parenting a child with a limb difference, or visible need, has been a learning curve, but does not affect our daily lives. In fact, the only time it really seems to be a need at all, is at surgery time or addressing other’s questions. Mei wears an AFO, short for ankle-foot orthosis, which supports her new ankle, compensates for a weaker structure, and provides daily physical therapy for her range of motion.

Through a friend, we found we could put a shoe lift directly onto our AFO allowing it to become her main shoe. Mei currently has a 6 cm limb length discrepancy, meaning her FH leg is 6 cm shorter than her non-affected leg. At the present time, the combination of an AFO with a shoe lift has been ideal as finding shoes that accommodate AFOs, while buying two pairs due to foot discrepancy size, and adding lifts to each pair is quite the task. She loves wearing her AFO and lift and it’s proven to help her gait, strength, and limit pain. Her gait looks great and there’s nothing she can’t do.

We even found the cutest online shop that sells custom, handmade doll orthotics and the owner was kind and creative enough to add a lift to the AFO we ordered. (I have no affiliation with this shop. I just think it’s rare to find this and love the difference he is making through doll orthotics.)

I love how as parents, our passions quickly become about our kids and their interests and needs. I pretty much died when that baby doll AFO arrived and couldn’t stop swooning over it’s adorableness.

Mei is very self-aware of her differences and having a doll that looks like her, even down to medical accessories, warms her heart as much as mine and promotes self-confidence. She’s often seen wrapping colorful tape around her doll’s legs, nursing dolls back to health and pushing them around in a tiny doll sized wheelchair. She is learning how to answer questions that arise from friends and strangers with simple responses like, “I am missing a bone!” or “I have one big leg and one little leg!” while continuing to play as kids do. As her mom, I hope my responses to unexpected questions help guide her with grace and knowledge, but sometimes I think she helps guide me.

So far, Mei has completed phase 1 of surgery out of 3. Like us, our surgeon wants what’s best for Mei in all aspects so for phase 2, we are being flexible with treatment options. In the next couple years she will need to lengthen her FH leg or shorten her non-affected leg. She also needs a few “tweaks” to her FH leg, as surgeons say. To parents and kids, they often are not “tweaks”. We joke with our doctors about their optimistic language and get the low down from experienced nurses and families. We have surgeries hoping and aiming for the best, yet mindful of the worst.

We have learned how to better advocate within a hospital setting. Our past experiences have made us stronger, smarter, and most of all – closer. There’s no dodging the surgical route for Mighty Mei but, as in the past, we will be with our tender-hearted warrior every step of the way cheering her on and doing what’s in her best interest.

It’s safe to say, we’ve tackled external fixators, been wheeled off a plane on a gurney, had casts slip off after major surgery, had screws come loose in her tibia bone, snuggled in a hospital bed night after night, and had to figure out how to get back into a dark hotel room that I managed to lock myself out of at 11 p.m. Those memories brought us closer than we could have imagined in such a short time and I will always treasure them. Our memories don’t end there though.

We’ve also tackled hours of snuggles in our forever home, hundreds of Chinese dumplings, sparkly craft projects galore, purple hair, cooking lessons, birthday parties, and beach trips.

We are no doubt a little crazy, but we are crazy for each other.

And we think the crazy is perfect. So perfect, that there’s a part two to our story.

Until next time…

– guest post by Natalie: blog || Facebook || Instagram

Our Boy Forever

June 19, 2018 1 Comments

The end of the school year can do crazy things to us. Make us do and say things we cringe about later, our brains and hearts a haze of goodbyes and remembering to bring sprinkles to the Kindergarten Memory Day. And then there are the days afterward, in which no one is getting enough sleep and they tumble out of bed each morning asking, “What is the fun thing we are doing today, Mama?”

They rub red eyes and complain about every single choice you lay out for breakfast. Nothing and no one quite meets with their approval because they are dictators in a regime that has gone off the rails. Brothers are especially good at not rallying during these early days of summer, at least our brothers are. Which is why I intervened for the umpteenth time as they were picking at each other’s loose threads and I heard Abe, whispering under his breath, “I wish I was in China with a new family.”

It took my breath.

Forget that he was four when he came home and seems to have very little recollection of his time there. Forget that he is an overtired seven year old boy who hasn’t spent his whole life watching brothers interact and has little idea that they love through wrestling and razzing. That muttered sentence hit me hard. I felt gutted for about an hour, even as he shook his anger off and ran outside to shoot hoops with his other sibs.

Could he really be so angry he’d rather be there instead of here? I don’t have any idea what his orphanage was like, how he was treated, but I do know that we have spent the last three years undoing damage inflicted by someone or something, reassuring him that we are forever and we are never letting go and helping him surrender to the the foreign idea of family, both the eight of us and our village, who adores him.

So we drove out to Nana and Papa’s cottage where he could splash in the waves with his cousins and swing on the swing so high he surely thought he’d never come down. We dined out and then had ice cream at the most quintessential lake-side ice cream stand, superman dripping down his soft, brown arms.

Then we drove home to see daddy and the pups and to be quickly showered and popped into bed, eyes already closed before the end of his blessing. And as I left the room heart full to overflowing, he called me back with this, “Mom, I don’t really want to go back to China.” To which I replied, “I know son. And we’d never let you because you are our boy forever and we will never let you go.” Probably a trained professional would have a better response, but I am him mama and I know the words his heart needs.

I tuck those yummy babies in and wonder at what those lives would be like if they were there instead of home. I also wonder what those lives would be if their birth mamas and babas could have raised them. And so I tuck them in with their blessing, which goes like this:

The Lord bless you and protect you.
The Lord’s face radiate with joy because of you (and I know it does).
May his gracious favor be upon you and his precious peace be all around you.

Each tuck in, each bickering fight between siblings far too tired for anyone’s good, each teeny and big thing, each good and bad, they are gifts, all. The Lord’s face much surely radiate with joy because of these people, and I pray mine does too – at least most of the time.

This won’t be the first time he will think of China, speak of it, wish for it. And I pray that my response is always full of love and grace both for him and for the family and country that birthed him. I pray that someday I can walk that soil again and help find some answers to any questions he has. But even if we do, I will still say to him…

“You are our boy forever and we will never let you go.”

My heart is so full.

Meet Knox and Kate!

June 18, 2018 0 Comments

Knox, born in January 2016, is an adorable little boy with Down syndrome. He was placed in a foster family at just six months old and gets along well with all members of the family, especially his foster mom. Knox feeds himself and sits independently. He can follow simple instructions and sit, crawl, and stand …Read More

A Dad’s Heart on Adoption

June 17, 2018 0 Comments

Almost 15 months ago we brought home one of the biggest blessings of my life. Our daughter, Willow, has changed me forever and has made me a better man, father, husband and drawn me closer to our Heavenly Father. Her unconditional grace, love and pure joy for life are a daily reminder of how true …Read More

Putting Your Best Foot (and Hip, Leg, and Toes) Forward

June 16, 2018 0 Comments

As a parent, you never want to “choose” to go through painful procedures and surgeries. However, when parenting a child with special needs, one has to weigh pros and cons of various therapies, tests, procedures, surgeries, medications… the list goes on and on. And when your child is functioning well overall, the decisions can be …Read More

Urgent Aging Out Child: Meet Ben!

June 14, 2018 0 Comments

Ben is a bright, extraordinary 13-year-old boy in China waiting for his forever family. He will turn 14 on August 27 and needs to be adopted before his 14th birthday. After August 27th, 2018 Ben will no longer be able to be adopted as he will age out of China’s adoption system. We ask that …Read More

When There is No Word

June 13, 2018 3 Comments

There is a beauty in language when precisely the right word is found to convey your thoughts. When you can convey a complex feeling or idea in a perfect word or phrase, people nod with understanding and experiences can be shared, relationships can be built. Yet, I cannot find the appropriate words to describe The-Boy-I-Thought-Would-Be-My-Son. …Read More

Kennedy: Full of Sweet Surprises

June 12, 2018 0 Comments

Kennedy is a beautiful and joyful little girl, born in September of 2012, who loves to wear dresses and skirts! One day after her foster mother bought her a new skirt, she stood in front of the mirror admiring herself and beamed happily when her foster mother said, “Kennedy is just like a fairy in …Read More

One Day At A Time

June 11, 2018 1 Comments

Throughout my years in elementary school and high school, I always knew what I wanted to be… a professional actor. I don’t know why my hand went up, but in second grade, I volunteered to play Jesus in a skit, and then went on to land the lead roles in two high school plays. Later, …Read More

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