Anorectal Malformations

Cincinatti Children’s
Yahoo Adopt Imperforate Anus Group
Yahoo Group for Imperforate Anus
Pull-thru Network


Raising a Child with Albinism
National Organization for Albinism and Hyperpigmentation (NOAH)
Videos by NOAH
Bai China Yahoo! Group
Video depicting how a person with albinism sees

Arachnoid Brain Cyst

Children’s Hospital Boston
Yahoo Group for Arachnoid Cysts


AMC Support
Children’s Hospital Boston
Yahoo Arthrogryposis Group


Yahoo Adopt Birthmark Group
Vascular Birthmark Foundation
Children’s Hospital Boston
Cincinatti Children’s

Brachial Plexus Injury

United Brachial Plexus Network
Brachial Plexus Palsy Foundation
National Institute of Health

Cerebral Palsy

United Cerebral Palsy
Children’s Hospital St. Louis
University of Virginia
Forms of Cerebral Palsy
Cerebral Palsy Source
March of Dimes
Yahoo Adopt Cerebral Palsy Group

Cleft Lip/Cleft Palate

About Face
About Face Resource – Children’s Book
Cleft Palate Foundation
Wide Smiles
Cleft Advocate
National Institute of Health
Yahoo Adopt Cleft Group
Shriner’s Hospitals


Ponseti International
University of Iowa
Video about treatment of “older” children (over 6 months of age) with clubfoot
St. Louis Children’s Hospital
Yahoo Group for Children with Clubfoot
Yahoo Adopt Clubfoot Group

Congenital Heart Defects

Johns Hopkins Children’s Hospital
Little Hearts
Kids with Heart
Congenital Heart Information Network Resources
Yale School of Medicine
China Heart Children Yahoo! group

Deaf or hard of hearing

American Society for Deaf Children
American Speech Language Hearing Association
Hands and Voices
National Association of the Deaf
Gallaudet University

DiGeorge Syndrome

University Hospital
National Institutes of Health

Ear Malformations

Atresia Microtia Foundation
Yahoo Atresia Microtia Group

Ectodermal Dysplasia

National Foundation for Ectodermal Dysplasias
UC Davis Children’s Hospital
USCF Children’s Hospital
University of Maryland Medical Center

Yahoo Epilepsy Kids Group
Yahoo Childhood Epilepsy Group

General Special Needs

Love Without Boundaries Special Needs Manual
Rainbow Kids
Yahoo SN Children China Group
Yahoo Waiting Children China Group
Children’s Disabilities Information


Journal of Bone and Joint Surgery
What is ‘Hemihypertropy’?


Children’s Hemiplegia and Stroke Association

Hepatitis B

Stanford Asian Liver Center
PKids (Parents of Kids with Infectious Diseases)
Hepatitis B foundation
HBV Adoption Yahoo Group
Jade Ribbon Campaign Video Part 1
Jade Ribbon Campaign Video Part 2
Jade Ribbon Campaign Video Part 3

Hemolytic Anemia

National Heart Lung and Blood Institute
University of Maryland Medical Center
Autoimmune Hemolytic Anemia Yahoo Group


Hydrocephalus Association
Yahoo Hydrocephalus Group
National Hydrocephalus Foundation

Limb Difference

Yahoo Adopt Limb Difference Group
Super Hands
Amniotic Band Syndrome
Amputee Coalition of America
Helping Hands Group
Shriner’s Hospitals


The Children’s Tumor Foundation
Harvard Medical School Center for Neurofibromatosis
Neurofibromatosis, Inc.

Polands Syndrome

National Organization for Rare Disorders
Polands Syndrome Support Group

Sacrococcygeal Teratoma

Children’s Hospital of Philadelphia
Children’s Hospital of Wisconsin
UCSF Children’s Hospital

Spina Bifida

Spina Bifida Association
National Institute of Health
Kids Health
China Adoption Spina Bifida Yahoo! Group
Shriner’s Hospitals

Tethered Cord

National Institute of Health
Pull-thru Network
Shriner’s Hospitals


Thalforum ~ Thalessemia Community Forum
Cooley’s Anemia Foundation
N. California Comprehensive Thalassemia Center
Yahoo Adopt Thalassemia Group
Yahoo Thalassemia Parents Group

Vision Issues

American Association for Pediatric Opthamolgy
China Adoption Eye Sight Yahoo! Group
American Association for Pediatric Ophthalmology and Strabismus
Vision Therapy
Irlen Institute: Colored Lenses, Colored Overlays, Diagnosticians, Screeners
Find an Optometrist

Medline Plus

All About Vision
St. Luke’s

St. Luke’s

American Nystagmus Network
Meline Plus

Medline Plus
Pediatric Ophthalmic Consultants
UAB Health System
St. Louis Children’s Hospital