Resources

Albinism

Raising a Child with Albinism
National Organization for Albinism and Hyperpigmentation (NOAH)
Videos by NOAH
Bai China Yahoo! Group
Video depicting how a person with albinism sees

 

Amblyopia

Lazy Eye.org
Medline Plus

 

Anorectal Malformations

Cincinatti Children’s
Yahoo Adopt Imperforate Anus Group
Yahoo Group for Imperforate Anus
Pull-thru Network

 

Arachnoid Brain Cyst

Children’s Hospital Boston
Yahoo Group for Arachnoid Cyst

 

Arthrogryposis

AMC Support
Children’s Hospital Boston
Yahoo Arthrogryposis Group

 

Birthmarks

Yahoo Adopt Birthmark Group
Vascular Birthmark Foundation
Children’s Hospital Boston
Cincinatti Children’s
Birthmarks.com

 

Brachial Plexus Injury

United Brachial Plexus Network
Brachial Plexus Palsy Foundation
National Institute of Health

 

Cataracts

All About Vision
St. Luke’s

 

Cerebral Palsy

4MyChild
United Cerebral Palsy
Children’s Hospital St. Louis
University of Virginia
Forms of Cerebral Palsy
Cerebral Palsy Source
March of Dimes
Yahoo Adopt Cerebral Palsy Group

 

Cleft Lip/Cleft Palate

About Face
About Face Resource – Children’s Book
Cleft Palate Foundation
Wide Smiles
Cleft Advocate
National Institute of Health
Yahoo Adopt Cleft Group
Shriner’s Hospitals

 

Clubfoot

Ponseti International
University of Iowa
Video about treatment of “older” children (over 6 months of age) with clubfoot
St. Louis Children’s Hospital
Yahoo Group for Children with Clubfoot
Yahoo Adopt Clubfoot Group

 

Congenital Heart Defects

Johns Hopkins Children’s Hospital
Little Hearts
Kids with Heart
Congenital Heart Information Network Resources
Yale School of Medicine
China Heart Children Yahoo! group

 

Deaf or Hard of Hearing

American Society for Deaf Children
American Speech Language Hearing Association
Hands and Voices
National Association of the Deaf
Gallaudet University

 

DiGeorge Syndrome

CHOP
University Hospital
National Institutes of Health

 

Ear Malformations

Atresia Microtia Foundation
Microtia.net
Yahoo Atresia Microtia Group

 

Ectodermal Dysplasia

National Foundation for Ectodermal Dysplasias
UC Davis Children’s Hospital
USCF Children’s Hospital
University of Maryland Medical Center

 

Epilepsy/Seizures

Epilepsy.com
Yahoo Epilepsy Kids Group
Yahoo Childhood Epilepsy Group

 

 

General Special Needs

Love Without Boundaries Special Needs Manual
Rainbow Kids
Comeunity
Yahoo SN Children China Group
Yahoo Waiting Children China Group
Children’s Disabilities Information

 

Glaucoma

St. Luke’s

 

Hemihypertrophy

HemiSupport
Journal of Bone and Joint Surgery
Dr. Greene.com
What is ‘Hemihypertropy’?

 

Hemiplegia/Stroke

Children’s Hemiplegia and Stroke Association
Hemi-Kids

 

Hemolytic Anemia

National Heart Lung and Blood Institute
EMedicine
Merck
University of Maryland Medical Center
Autoimmune Hemolytic Anemia Yahoo Group

 

Hepatitis B

Stanford Asian Liver Center
PKids (Parents of Kids with Infectious Diseases)
Hepatitis B foundation
HBV Adoption Yahoo Group
Jade Ribbon Campaign Video Part 1
Jade Ribbon Campaign Video Part 2
Jade Ribbon Campaign Video Part 3

 

Hydrocephalus

Hydrocephalus Association
Yahoo Hydrocephalus Group
National Hydrocephalus Foundation

 

Limb Difference

Yahoo Adopt Limb Difference Group
Super Hands
Amniotic Band Syndrome
Limb Differences.org
Amputee Coalition of America
Helping Hands Group
Shriner’s Hospitals

 

Neurofibromatosis

The Children’s Tumor Foundation
Harvard Medical School Center for Neurofibromatosis
Neurofibromatosis, Inc.

 

Nystagmus

American Nystagmus Network
Meline Plus

 

Polands Syndrome

Polands Syndrome.com
National Organization for Rare Disorders
Polands Syndrome Support Group

 

Sacrococcygeal Teratoma

Children’s Hospital of Philadelphia
Children’s Hospital of Wisconsin
UCSF Children’s Hospital

 

Spina Bifida

Spina Bifida Association
National Institute of Health
Kids Health
China Adoption Spina Bifida Yahoo! Group
Shriner’s Hospitals

 

Strabismus

Strabismus.org
AAPOS
Medline Plus
Pediatric Ophthalmic Consultants
UAB Health System
St. Louis Children’s Hospital

 

Tethered Cord

National Institute of Health
Pull-thru Network
Shriner’s Hospitals

 

Thalassemia

Thalforum ~ Thalessemia Community Forum
Cooley’s Anemia Foundation
N. California Comprehensive Thalassemia Center
Yahoo Adopt Thalassemia Group
Yahoo Thalassemia Parents Group

 

Vision Issues

American Association for Pediatric Opthamolgy
China Adoption Eye Sight Yahoo! Group
American Association for Pediatric Ophthalmology and Strabismus
Vision Therapy
Irlen Institute: Colored Lenses, Colored Overlays, Diagnosticians, Screeners
Find an Optometrist