Raising a Child with Albinism
National Organization for Albinism and Hyperpigmentation (NOAH)
Videos by NOAH
Bai China Yahoo! Group
Video depicting how a person with albinism sees



Medline Plus


Anorectal Malformations

Cincinatti Children’s
Yahoo Adopt Imperforate Anus Group
Yahoo Group for Imperforate Anus
Pull-thru Network


Arachnoid Brain Cyst

Children’s Hospital Boston
Yahoo Group for Arachnoid Cyst



AMC Support
Children’s Hospital Boston
Yahoo Arthrogryposis Group



Yahoo Adopt Birthmark Group
Vascular Birthmark Foundation
Children’s Hospital Boston
Cincinatti Children’s


Brachial Plexus Injury

United Brachial Plexus Network
Brachial Plexus Palsy Foundation
National Institute of Health



All About Vision
St. Luke’s


Cerebral Palsy

United Cerebral Palsy
Children’s Hospital St. Louis
University of Virginia
Forms of Cerebral Palsy
Cerebral Palsy Source
March of Dimes
Yahoo Adopt Cerebral Palsy Group


Cleft Lip/Cleft Palate

About Face
About Face Resource – Children’s Book
Cleft Palate Foundation
Wide Smiles
Cleft Advocate
National Institute of Health
Yahoo Adopt Cleft Group
Shriner’s Hospitals



Ponseti International
University of Iowa
Video about treatment of “older” children (over 6 months of age) with clubfoot
St. Louis Children’s Hospital
Yahoo Group for Children with Clubfoot
Yahoo Adopt Clubfoot Group


Congenital Heart Defects

Johns Hopkins Children’s Hospital
Little Hearts
Kids with Heart
Congenital Heart Information Network Resources
Yale School of Medicine
China Heart Children Yahoo! group


Deaf or Hard of Hearing

American Society for Deaf Children
American Speech Language Hearing Association
Hands and Voices
National Association of the Deaf
Gallaudet University


DiGeorge Syndrome

University Hospital
National Institutes of Health


Ear Malformations

Atresia Microtia Foundation
Yahoo Atresia Microtia Group


Ectodermal Dysplasia

National Foundation for Ectodermal Dysplasias
UC Davis Children’s Hospital
USCF Children’s Hospital
University of Maryland Medical Center


Yahoo Epilepsy Kids Group
Yahoo Childhood Epilepsy Group



General Special Needs

Love Without Boundaries Special Needs Manual
Rainbow Kids
Yahoo SN Children China Group
Yahoo Waiting Children China Group
Children’s Disabilities Information



St. Luke’s



Journal of Bone and Joint Surgery
What is ‘Hemihypertropy’?



Children’s Hemiplegia and Stroke Association


Hemolytic Anemia

National Heart Lung and Blood Institute
University of Maryland Medical Center
Autoimmune Hemolytic Anemia Yahoo Group


Hepatitis B

Stanford Asian Liver Center
PKids (Parents of Kids with Infectious Diseases)
Hepatitis B foundation
HBV Adoption Yahoo Group
Jade Ribbon Campaign Video Part 1
Jade Ribbon Campaign Video Part 2
Jade Ribbon Campaign Video Part 3



Hydrocephalus Association
Yahoo Hydrocephalus Group
National Hydrocephalus Foundation


Limb Difference

Yahoo Adopt Limb Difference Group
Super Hands
Amniotic Band Syndrome
Amputee Coalition of America
Helping Hands Group
Shriner’s Hospitals



The Children’s Tumor Foundation
Harvard Medical School Center for Neurofibromatosis
Neurofibromatosis, Inc.



American Nystagmus Network
Meline Plus


Polands Syndrome

National Organization for Rare Disorders
Polands Syndrome Support Group


Sacrococcygeal Teratoma

Children’s Hospital of Philadelphia
Children’s Hospital of Wisconsin
UCSF Children’s Hospital


Spina Bifida

Spina Bifida Association
National Institute of Health
Kids Health
China Adoption Spina Bifida Yahoo! Group
Shriner’s Hospitals


Medline Plus
Pediatric Ophthalmic Consultants
UAB Health System
St. Louis Children’s Hospital


Tethered Cord

National Institute of Health
Pull-thru Network
Shriner’s Hospitals



Thalforum ~ Thalessemia Community Forum
Cooley’s Anemia Foundation
N. California Comprehensive Thalassemia Center
Yahoo Adopt Thalassemia Group
Yahoo Thalassemia Parents Group


Vision Issues

American Association for Pediatric Opthamolgy
China Adoption Eye Sight Yahoo! Group
American Association for Pediatric Ophthalmology and Strabismus
Vision Therapy
Irlen Institute: Colored Lenses, Colored Overlays, Diagnosticians, Screeners
Find an Optometrist