A Summer’s Day

Childhood in summer. Unique for each kid, but much the same. It’s giggles, all day PJs, Crocs and popsicles. Children meeting, then heading out into the sunshine hand in hand as easy friends. The sun offers a special freedom.

One of our recent summer days had notable stats: 1 water park, 4 mommas, 18 kids, 7 children adopted from China, a long list of medical needs represented, 12 snack breaks, and 6 hours drenched in June sunshine.

4 of these kids, home less than a year from China, had medical needs that might have kept them home that day.

One sat in her stroller with a cast from her waist down to her toes helping heal her hip dysplasia, her momma visiting in between cardiology and orthopedic specialist appointments. She shared Teddy Grahams with friends who peered into her stroller and sometimes splashed her fingers in the water. Sunshine on her skin, she was a child in summer.

Another laughed and played with waterproof cochlear implants attached to each ear. Her wide smile told us that the thousands of dollars of life altering equipment just beginning to help her hear and understand sounds were not on her mind that day. The melody of water splashing and kids squealing as they swooshed down slides were sweet new sounds. She was a child in summer.

Another little person is prone to kidney infection, and her exposed bladder kept her from walking beyond knee deep in the water. Un-phased by her limitations, she spent the day sloshing in a bubbling fountain. Drippy ice cream in hand, she was a child in summer.

Finally, the oldest, a young teen with spina bifida, was rolled into the park in her wheelchair by her mother. Despite her challenges, a plastic wheelchair and a life vest enabled her to spend the day plunged happily in the pool. Feeling cool water on her legs, she was a teenager in summer.

Their stories bring easy tears, with limits and challenges shaping their pasts. Their orphanage years not just institutional and without parents, but surgery filled and soundless. Their battles far from over, the reasons to keep them away from a water park were many. On the other hand, the reasons TO linger were many as well. God performed countless miracles to change the course of their lives. And seeing them all together reminded us that we were in the presence of His sacred work, His love stories splashing around in swimsuits.

I used to see kids like ours and feel sorry for them. Though I still ache for pain endured and struggles to come, now I see the simple happiness’s of childhood radiating from them. They teach me again how to rejoice and be glad in a summer day. These resilient fighters have fought for joy soaked days. With the care of medical specialists, and the love of families, they’re free to uncover new worlds of wonders.

And what would God have us do with these redeemed lives? Splash in His water and soak in His sun, their joy shining stories of His lavish love for all who took moments to watch our noticeable group.

rebecca

Part of turning corners with a special needs child is ME getting over ME. My daughter’s limitations once consumed me. I didn’t see her as just a child, with childhood days precious sand slipping through our fingers. But then I woke up to the wonder of her, and began to finally SEE her as fearfully and wonderfully made, outside and in between all things medical. Awed by her strength, and falling more in love with her laugh, I don’t want to stand in her way. I don’t want to spend so much time anxious about the next doctor’s appointment that I miss our appointment-less today. She can’t be submerged in a pool, but she can splash in puddles.

We as four mommas of medical needs kids have stepped well past our limits. We are relying on good health insurance, medical expertise, therapists and our limitless Lord. We must be wise in our care for them, but also must let the childhood that they fight so hard for, be theirs. Some days they need to float down lazy rivers and sit on beach towels snacking on chips and salsa, unburdened with knowledge of procedures to come. I don’t want to see our precious ones and see limits, missing out on fun, personality filled kids. I want to know that dance music makes them wiggle and that they prefer no pepperoni on their pizza.

Unaffected by each other’s wheelchair, cast, cochlear implants or limitations, on that day, they were just friends in summer with water to splash in. Unaware of the beautiful miracles they are, they just giggled and licked ice cream from a stick like it was their job. And we, the four mommas with lots in common, smiled and did some splashing of our own.

This is the day the LORD has made; let us rejoice and be glad in it. Psalm 118:24



what we’re reading links: 7.22.2014

From the last few weeks, some good stuff we’ve read that relates to adoption and/or parenting a special needs child.

As always, if you’ve read or written something you think would be a good addition to a future What We’re Reading post, we’d love to hear about it.

To share a blog post or news article go here.
To share your blog with our readers, as a soon-to-be traveling to China family go here.

blogs

Rachel Engel shares What Facebook Means to Special Needs Families on her blog Tales From the Plastic Crib. And she is oh-so-right.

In China adopting her son, Liberty laments her son’s poor condition in Orphanages are No Place for Children. Then, after having a chance to visit her son’s orphanage, she shares her new perspective in They Saved His Life.

At The Diary of a Not-So-Angry Asian Adoptee, Christina shares An Adoptee’s Perspective: 15 Things Transracially Adoptive Parents Need to Know.

Jaclyn of Kinda Crunchy explains their journey from dreaming of adopting a daughter to joyfully planning to adopt a son in Delicate Decisions: Adopting a Chinese Boy.

Listen to the parent interview in Grace as Allen and Teri Reaume of Michigan adopt their daughter, who has vision impairment.

Amy of Two Vandalgrads and Three “Gs” shares her heart in The Unspoken “But…” after 49 days parenting her newly adopted daughter.

Stephanie Giese of Binkies and Briefcases tells others on the Huffington Post blog why she knows that sensory processing disorder is real.

At We Are Grafted In, big sister Meredith Toering writes about how her younger sisters constantly ask her to “Tell Me My Story Again.”

inthenews

Half the Sky launches Nanny Connect, a program that “allows adoptive families to submit updates and photos about their children to caregivers at the 53 institutions where we have established our programs…”

The Huffington Post reports that Crohn’s Disease Model Bethany Townsend Reveals Colostomy Bag (PICTURES).

Another article from The Huffington Post features the family of a little girl born without a nose – arhinia – who want to encourage others not to to give up on children with rare conditions.

Mallika Rao of The Huffington Post tells others You May Not Know About the First Chinese-Americans, But You Should.

Distractify offers up 40 Genius Travel Tips That Will Change Your Life Forever.

We’ve seen two recent news articles about China’s population control policies, including Second-Child Policy Having Limited Effect in China Daily and Trusting God for a Second Child in China in World Magazine.

Kat Chow, a member of the Code Switch Team at npr, details how “Ching Chong” Became the Go-To Slur for Mocking East Asians.

This week Love Without Boundaries announced its new Cleft Initiative. So excited about this!

Read something inspiring lately? Informative? Encouraging? Share the link HERE.

liberty

Liberty and her new son Luke

families

 
 

In China now to bring home their child…

Enlarge Thy Tent
Strengthen My Hands
Blessed Beyond Measure
Sprout Spot
Filled With Joy Family

Just Home from China…

One More Piece
Lybbi Shu Fang
Full Hands Fuller Heart Family
The Trusty Family
Everything Beautiful
Adding One Morh
Impossible, Difficult, Done
Our Jones Clan

Getting close to travel for your little one in China? Share the link HERE.


Find my Family: Dexter

All it takes is one photo to cut you to your very core, and little Dexter’s photo has done just that for many.

This photos, some of his newest, show a little boy whose round face has given way to noticeable weight loss, his kissable lips, dry and cracked and his intense eyes now show tired. Such contrast to an older photo showing a little boy who was engaged had a round face and kissable full lips.

In the beginning…

Dexter came into care as an infant, at just two months old. His medical need was determined to be limb differences affecting both his wrists/hands and his weight was a healthy 9.7 lbs.

He was described as baby who was adored by his ayis, had a good appetite, and loved to play while lying on the floor soaking in the sun light. A little man with a ready smile, quick reaction but wee bit shy.

Known to be a sensitive little boy who could easily read the faces of others, he too would get upset if he would see someone who was sad. Oh, but smile at him and he would smile and giggle right back. And loved to snuggle, he would crawl up to his ayis and hold onto their legs looking up at them with happiness.

But now…

The sparkle in his eyes is fading. He looks tired and frail. He is too weak to keep us with his friends.

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His hope…

The last line of one of his developmental report reads “We hope he can quickly find a home and have a loving father and mother as well as an even healthier and happier childhood.”

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My hope for him is just that. To again see that sparkle in his eye, for that intelligent little boy to have a smile on his face and most of all for Dexter to have his family, one that will hold those two specially made little hands in theirs forever.

Some resources for parenting children with limb differences can be found through these links:
Yahoo Adopt Limb Difference Group
Super Hands
Limb Differences.org
Amniotic Band Syndrome
Amputee Coalition of America
Helping Hands Group
Shriner’s Hospitals

Dexter is looking for his family with the help of Great Wall China Adoption. You can email Katherine, or you can learn more about this sweet three year old here.

The OhOh Song

Like all toddler/preschoolers my boy can be a bit obsessive about things from time to time. He frequently will not leave the house without a random “object of necessity”…a pillowcase, a can of mushrooms, a toothbrush AND a Bible, the vacuum cleaner (he may have been commenting on the state of the car with that one). It’s funny and random and I roll with it. The rules remain loose, unless Momma needs to wear it under her clothing, you can take it with you (seems fair…and legal).

There is one song however, that we MUST listen to nonstop, everyday, the ENTIRE time we are in the car. The “Oh-Oh” song, IE: We Are The Free by Matt Redman. His face absolutely lights up when track 1 turns on: “Momma! This is it! This is the song we’ve been waiting for!”

We Are The Free

We’re the forgiven, singing redemption’s song
There’s a fire that burns inside
A fire that burns inside
Nothing can stop us
We’ll be running through the night
With a fire that burns inside
A fire that burns inside

We are the free, the freedom generation
Singing of mercy
You are the One who set us all in motion
Yours is the glory
There’s a fire in our hearts and it burns for You
It’s never gonna fade away
We are the free, and Yours is the glory
Oh, oh, ohhhh, oh, oh oh…

We are the risen, living alive in You
And our passion will not die
No, our passion will not die
Nothing can stop us
We’ll be running through the night
And our passion will not die
No, our passion will not die

Up from the grave He rose again
Up from the grave He rose and we will
Rise up, rise up
Into the world that You so love
Into the world we go and we will
Rise up, rise up

We are the free, and Yours is the glory

He keeps time and ‘sings’ along inserting the signs we’ve invented to go with most of the lyrics; his favorite part is pumping his finger towards the sky yelling ‘Yours is the glory!’

I tried so hard to get frustrated with the repetition of the song as I’m convinced we’ve listened to it 4 gazillion times. I’m sure if it were Elmo or Raffi I would have jabbed a fork in my ears already. But I can’t seem to get overwhelmed by this song and it thrills my heart that it is Isaac’s favorite. My three & a half year old has memorized the Gospel through this tune — Jesus rose from the grave, we are free, we sing of your mercy and give You the glory. Isn’t THAT the Lord’s love for us & call to evangelism in the simplest of terms? Why do we try to complicate something so simple, so pure with a labyrinth of theology and legalism? My Isaac responds to these words 90 times a day with the joy and passion of a Saved Soul. Shouldn’t I as well??


Singing "oh oh" at the beach

Singing “oh oh” at the beach



Isaac ‘sings’ his song in the middle of Target (I’ve learned to let my pride go and do the same); he signs it to his speech therapist, who has now had to learn the words (the Gospel!) to sign along with him; and he has taught his little friends at school to follow along as he leads them in circle time worship. He officially has a “fire that burns in side that nothing can stop”. Oh — and when this song pops up during Sunday worship, he sits back in awe. You can read it in his face…”they ALL know our song?!!” They sure do, buddy. We are the free, and His is the glory!


waiting child highlight: Lifeline

Please take a moment to view the 12 children highlighted below. Lifeline has many children waiting to find their forever families. If you would like additional information on any of these children or a child you see on Lifeline’s website, please any of the Lifeline social workers listed below.

eliEli – male, 1 ½ years old, special focus, postoperative hydrocephalus. Eli is an active little boy who gets along well with others. He enjoys listening to music, playing games, and being cuddled by his caretakers. In May of 2013, Eli underwent surgery for a vetriculoperitoneal shunt. The surgery was successful and he was reported to be in stable condition after the shunt was inserted. Currently his development is a little delayed compared to his peers and he will need further coaching to improve his development. Eli is a darling little boy who is ready for his forever for family to bring him home!

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Elyse Ellingboe-Hoots for more information.

StevenSteven – male, 1 ½ years old, special focus, congenital club foot of right foot, vertical talus, neural tube deformity. Steven is a handsome little boy who is sure to melt your heart! He is described as a smart and lovely child with a ready smile. Steven enjoys being around people and likes to communicate with those around him. He will kick his feet and clap his hands when his caregivers talk to him. Steven is such a cute little boy who will bring lots of smiles and joy to his forever family.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Elyse Ellingboe-Hoots for more information.

AmeliaAmelia – female, 2 years old, special focus, congenital dislocation of the right hip joint, spina bifida. Amelia is described as a clever and lovely little girl. Her caregivers state that she is a smart girl with a ready smile. She enjoys playing with toys that make sounds, engaging with her caregivers, and really likes to take baths. Amelia is an energetic little girl who has thrived under the care of her grandmother and nurturers. These women state that they hope that Amelia is adopted soon so that she can grow up happily in a loving family.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Elyse Ellingboe-Hoots for more information.

OliviaOlivia – female, 7 years old, special focus, possible delays. This sweet child is said to be gentle and polite, greeting people well and appears to have made good progress from her first few years in the orphanage. From her file: Her self-esteem is strong. Once somebody wanted to adopt a child and asked about her, I said slow reaction and some problem on her brain. She listened and depressed very much. When I saw this and regretted. We took her to do the CT test: no problem. Here is the link to her post on Wonderful Waiting Kids.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Annie Hamlin for more information.

RuthieRuthie – female, 7 years old, special focuse, postoperative congenital cleft lip and palate; bilateral alveolar cleft. This precious child is described as polite, quiet and fairly shy, however, in more familiar environments; she is fairly “active and restless”. Ruthie is also said to get along well with other children and really likes chocolate. According to her file, following her surgery, “her physical state is stable, she developed well in language and cognition” and her “growth development index is close to that of normal peers”. In September of 2012, she joined the “senior class in kindergarten”. From Ruthie’s file: Due to postoperative congenital cleft lip and palate, she can’t speak clearly; but she can express herself and can talk to adults well. Ruthie is a quiet and smart little girl. We believe that she would make great progress by her efforts in future. Here is the link to her post on Wonderful Waiting Kids. Videos posted.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Annie Hamlin for more information.

HarrietHarriet – female, 10 years old, special focus, postoperative cleft lip and palate. Sweet Harriet is said to be bright, understanding and “not obstinate” with “good life skills”. This precious child is stated to like sports, is energetic and “adapts well to new things”. There are wonderful videos of Harriet included in her post on Wonderful Waiting Kids, here.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Annie Hamlin for more information.

NixonNixon – male, 3 years, special focus (orphanage partnership), epilepsy, left ear defect, limb difference, mild hydrocephalus. Nixon is described as a tender-hearted child who loves trains and playing with other children. He is a precious little guy!

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Emily Flynt for more information.

DarlaDarla – female, 3 years old, Down syndrome, thalassemia minor, special focus (orphanage partnership). Precious Darla is sure to win the hearts of everyone who meets her! Darla is a sweet little girl with a contagious giggle and is generally healthy! Darla does not require blood transfusions for her Thalassemia, and is participating in a great program in her orphanage that provides lots of cuddling and one on one attention for this sweet girl!

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Emily Flynt for more information.

DanaDana – female, 2years old, special focus (orphanage partnership), thalassemia major. Meet Dana! Dana is a little girl who loves to play on her rocking horse and likes to talk! She is described as extroverted and happy, and is looking for a family of her own! Dana is in preschool and is a quick learner! She can walk and speak in 2-3 word sentences. One of her favorite words is “Coca Cola!” Dana is a deep sleeper and enjoys fruit and candy.

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Emily Flynt for more information.

Update: Dana has a family!

EllieSueEllie Sue – female, 10 years old, special focus (new hope journey) Down syndrome. What I love most about this awesome girl is her zest and zeal. If you watch her video her personality jumps off the screen and makes you smile! Her teachers say she is very cute and outgoing. She is not shy, she is an extrovert. I feel sure she would bring so much joy to a family that would bring her home!

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Amy Hart for more information.

NatalieNatalie – female, 12 years old, special focus (new hope journey) and has “humpback”. She is a precious girl that has waited way too long. Her file says she loves to sing, read books, and play with other children. She is said to be a “good” girl. Won’t you consider asking to see her file or watching her videos to prayerfully consider if this could be your child?

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Amy Hart for more information.

NickNick – male, 9 years old, special focus (new hope journey), sensitive special need. He has personality plus! Her is said to have normal development. He is active and outgoing. He is clever. They say when he is with people he knows he likes to show off and act like a “spoiled child”. I am thinking that translates to confident!

Please keep in mind that several families may be reviewing this child’s file at one time. At any given time, this child’s file can go on hold or be taken back to the Shared List by the CCCWA. Please contact your Lifeline social worker or Amy Hart for more information.

Quiet Times: And on the seventh hour, we rested…

We are on the verge of a major transition in our home.

For the last 14 years, we have had at least one child who needed an afternoon nap. In recent weeks, it is becoming clear that our youngest, Sam, may no longer need one.

As my three-year-old transitions into a big-boy schedule, we are forced to face the somewhat awkward reality that my 41-year-old wife has not yet dropped her afternoon nap.

Anne LOVES her afternoon nap. In retrospect, I think she may have adopted Sam and Ellie simply to extend the window that she has an excuse. At times I worry that she will try to adopt again just to insure that she can continue the façade that naptime is for the kids.

For the first several years of our marriage, I did not understand the “nap” thing. In my house as a child, adults did not nap. (My parents use to claim that they were taking a nap on Sunday afternoons, but I now believe that those locked doors were hiding a different activity… that I cannot think about any longer for fear of going blind.)

But in Anne’s house, napping was celebrated as the crowning jewel in each day’s schedule.

For example, Anne’s dad owned a very successful business. This afforded him certain luxuries… which included an office with a door that closed and a desk with a pillow underneath it. Like George Costanza from Seinfeld, my father-in-law often crawled under his desk and took a little afternoon nap. “It helps me think better,” he’d explain with a well-rested smile.

I recall weekends visiting her family before we were married. I’d leave the room for a bathroom break and come back to find every member of her family asleep on a different chair or couch. When I saw the same pattern repeated multiple times, I worried that they had fallen victim to some kind of collective narcolepsy.

But each time, they would wake up in extra pleasant moods, comparing the quality of their naps and encouraging one another with phrases like, “You must’ve needed it. ” I eventually stopped questioning it and bought an Xbox to fill the time.

And the sleepy apple did not fall very far from the tree. Anne has been taking an afternoon nap on as many days as possible since our honeymoon. (Insert… “It must not have been that exciting of a honeymoon” jokes here…and then I will insert “I do have six kids” as a retort… and then you respond with “But the last four were adopted”… Glad that we got that out of our system.)

Since mid-day naps are not as socially accepted outside of Pre-schools, Nursing Homes, and Latin America; Anne had to hide her secret love… until we had kids. And then there was a built-in “Get out of life free” card that could be cashed every afternoon. And over the course of six children and 14 years, it has become a staple in our house.

But interestingly, this mid-day ritual has evolved past the confines of the traditional nap. While Anne and at least one child still took naps each day, most of the older kids grew out of them. What they did not grow out of was the need (or requirement) for some kind of a mid-day break. For those not spending it on sleep, we call it “Quiet Time.”

(Side note: We are actively looking for a better name than “Quiet Time” since the current name evokes images of libraries and the Amish. Anne has experimented with sportier titles like “Half Time” or even biblical malpropisms like “Sabbath Time”… but nothing has displaced the “Quiet Time” moniker. I proposed calling it the “Hour of Power”… but then Anne informed me that she expanded it during the summer months to 90 minutes… because she is a genius.)

And over the last 14 years, I have changed from a Quiet Time skeptic to its most passionate advocate.

Some reasons are obvious. I mentioned that we have six children. Any period of time where all of them are required to be quiet is generally seen as a good thing.

But Quiet Time in our house is about much more than just “being quiet.” Quiet Time has been a time when my kids fell in love with reading. With no screens allowed, reading is the most common activity. (Yes, we bored our kids into a love of books.)

Quiet Time has also provided built-in time for them to explore their friendships with God. Our kids hear endless messages from grownups about the importance of prayer, Bible study, and worship, but QT has afforded them the necessary privacy and dedicated time to give it a real try. (For our extraverts like Adam, it may simply be because he spends much of Quiet Time praying it will end.)

Abby: Disconnecting from the world creates space for connecting with God.

Abby: Disconnecting from the world creates space for connecting with God.

And with eight different personalities in the house, Quiet Time is also a blessing to the introverts in our family. As much as I’ve fallen in love with the many upsides of large-family life, QT offers a rare reprieve from the omnipresence of siblings and parents. A time to regroup.

As I have watched this phenomenon for the last 20+ years, I have learned that the presence (or absence) of a break can also affect my outlook for the entire day. As tiring as it can be at times to run our large household, Anne and I know that we are never more than 5 or 6 hours from a break… and that makes all of the difference in the world. Sometimes the simple anticipation of a break is almost as valuable as the break itself. It makes the challenge of trying to be an engaged parent into more of a series of sprints than a marathon. I don’t need to be an intentional parent for the next 20 years… just for a few more hours.

Ellie: Ellie is our most recent graduate from naps to the “Big Girl” world of Quiet Times.

Ellie: Ellie is our most recent graduate from naps to the “Big Girl” world of Quiet Times.

Based on the data, I could argue that naps may be a catalyst for World Peace. My wife takes more naps than anyone I have ever met, and she is (perhaps not coincidentally) also the nicest person in the world. This may sound like hyperbole to those of you who have not met her, but I assure you that it is not. As evidence, I would cite her high school resume which included: Prom Queen, the “Good Citizen” Award for the city, and being voted “friendliest girl” by our high school class. Perhaps United Nations Peacekeeping envoys should travel with fewer tanks and more pillows.

As such, my wife has an incredible tolerance for even the most frustrating people and situations. I have seen her carry on a 35 minute conversation with the woman at McDonald’s who is taking our order to have the discussion end with Anne praying for the woman over a tray of cold fries. Yeah, she’s that kind of awesome.

And as nice as she is at the start of a nap, she is even nicer by the end… With one noted exception.

The aforementioned winner of “best personality” (yet another of her “she is really that nice” accolades from our youth) is nowhere to be found if someone makes the grave error of calling on the phone or knocking at the door during Quiet Time. In an almost Pavlovian response, I have seen this extraordinary woman break into sailor-grade profanity when the UPS man rings the doorbell during the Sacred Hour. We take Quiet Time seriously, and we expect everyone else in the world to do the same…

Sam: That mid-day smile says “You may be tired, mom.  But I am not.”

Sam: That mid-day smile says “You may be tired, mom. But I am not.”

So while Sammy’s season of napping may be coming to an end, he will simply be transitioning like his siblings into the new world of the Quiet Time.

To be sure, he’ll fight the idea at first. But I hope that he’ll eventually embrace our family rhythm; perhaps even finding treasure in a reliable slice of time each afternoon for thinking, reading, dozing, dreaming, building, and pretending. I believe that through the years he will make friends with himself during that hour, and I pray more than any of it that the Quiet will create space for his adventure with the Friend of all Friends.

For me personally, I usually use it for a book or a movie or a game or two on the Xbox. And occasionally on a Sunday afternoon, Anne and I take a locked-door nap together… because she’s not the only one with family traditions. .. ;)



Diagnosed… And then Rediagnosed… And Then…

In 2010 we saw an adorable picture of a little girl with a sucker in her mouth! She immediately caught my attention. Her eyes looked straight into mine and they were calling out for a Mommy and a Daddy. I read her short bio and the word cancer was in there. I immediately said to myself, “Nope, can’t do that…” and then I wondered who would be the family that would step forward? I prayed that someone would bring this beautiful child home.

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Fast forward 6 months, we were in process for our Luke but we had an unsettled feeling. There was another child waiting BUT who was it? We looked and looked but our child was nowhere to be found. We waited and prayed and then there she was… little Arizona with the sucker in her mouth. We prayed about it and that evening when hubby came home he uttered the exact same words that God had placed in my heart that day. “She needs to come home!”

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We knew very little about Abby’s situation other than she needed blood transfusions every 6 weeks and that she was diagnosed with MDS, which is a preleukemia diagnosis. I asked her orphanage to transfuse her right before gotcha day so she would feel as good as possible- they obliged! They were so happy she had a family and would have a chance at life. As the three weeks in China went by Abby slowly faded. Her coloring changed to a pale yellowish, her lips were no longer pink, she was tired and a bit ornery. I could tell she was not feeling well.

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When we got home we went straight to the Pediatric Hematologist. Her hemoglobin was about 6 and she was wiped out. She was afraid and had no idea what they were going to do to her. She cried and moaned in fear. It was a very sad and hopeless cry… She did not care what the translator was saying- she had her memories of what it was like in the hospital in China – all alone for many days (5-7 days), getting a transfusion… That is how they did her transfusions in China. Nobody stayed with her, she was an orphan and they could not spare the staff or the money to have someone be there for her, she was all alone and scared.

Our Hematologists quickly transfused her (it’s about a 4-5 hour process) and once again the color returned to her cheeks and she had a smile on her face. She was surprised that I stayed there and didn’t leave her side. She was surprised that she got a toy and that we colored, painted, played with toys, looked at books and watched TV. She was thrilled when we left together and when we went home together!

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Once Abby was home we found out she needed to be transfused every 3-4 weeks.

Abby has been home now for 2.5 years. Throughout this time she has had her diagnosis changed 6 times.

1. It started out as MDS (Myelodysplastic Anemia) in China.

2. It was confirmed as Myelodysplastic Anemia at our local University and Congenital Sideroblastic anemia was added.

We immediately had an appointment to discuss a bone marrow transplant for Abby. It was planned to be done as soon as we got the excess iron out of her body.

This is called Chelation and it is necessary because whenever someone is given another persons blood their body is unable to breakdown and excrete (pee out) the other donors iron so it is stored in the body. No big deal if you have one or two transfusions BUT those having regular transfusions have an extremely large amount of extra iron that is store in their body. This excess iron can be stored in the liver, pancreas, heart, brain or other major organs. Abby’s was stored mainly in her liver and pancreas (if you have to pick these are the best 2 places to have it stored).

We had a plan and we were good to go! I prayed about the BMT (bone marrow transplant) and how our large family would cope with it. It is not a procedure to take lightly. It can be life saving as a last effort to help a patient/child but the statistics are not as favorable as we would have liked. With prayer and counsel we decided we would only do it as a last effort to save Abby.

Our Hematologist studied at Boston Children’s and wanted to send Abby’s blood there for testing so we agreed.

3. They determined she did not have MDS and that her diagnosis was Congenital Sideroblastic Anemia.

WOW! We were shocked and thrilled! Praise God! This was such great news!! There was a weight lifted off our shoulders! The BMT was looking less and less necessary!

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It was also determined that Abby’s chelation process was going very well and the excess iron levels were decreasing at a good rate! Abby wore a backpack containing medicine in it. She had an IV in her port. For 48 hours every 2 weeks she did this. After 6 months she no longer had to wear the backpack and have with the IV. Now she drinks orange juice with exjade in it, every morning. She is a trooper and doesn’t complain.

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Six months passed and it was time for another round of testing.

4. Once again our local University said she had MDS. Our hearts sunk and I began to feel fearful. I lost sight of God’s comfort and HIS capable guidance and I found myself teary and weakened.

Then, a sample was then sent on to Boston Children’s again.

5. Once again came back to us with the diagnosis of Congenital Sideroblastic Anemia and said that it was NOT MDS. We celebrated and exhaled!

Soon after that we had a proposition. Boston Children’s hospital was conducting a study and asked if they include Abby’s blood sample. We agreed!

Months passed and we forgot about it.

At one point we said to our Dr. “Medicine seems to change so often. We are going to wait to see what other research is out there and then make decisions on how to best treat Abby’s condition.” She looked at me and said- “Sadly, this is so rare there is no other research. There may not be another person that has what Abby has and if there is we may never find them.”

Gulp, that put it all into perspective.

We knew who was in control of all of this- our God. Our adoption of Abby. Her health journey- it was all HIS story, not ours. Whatever decision we may think we had were for HIM to decide. We were comforted knowing HIS hands were all over this…

And then we got the phone call and heard what diagnosis #6 was…

6. Jean, this is Abby’s doctor, “We have some interesting news from Boston.” I have goosebumps and tears as I type!

Abby has Beta Thalassemia. She has a rare form of it that presents itself a little differently than the typical Beta Thal. But they were able to find a mutation on the globin gene and she went on…

In this same study the Dr found one other little girl with this mutation so he decided to check the rest of the samples and see if any of them also had this mutation. Abby’s was the only other one that had it.

About now you are wondering “Hmm, is this good news or bad news?

This is GOOD news!

Abby does not have MDS!

She does not need a BMT.

She is not preleukemic!

We are now able to follow the Thalassemia protocal. We have some answers and direction on how to care for her!

Abby is doing wonderfully now! She is healthy and happy! We are so thankful she is home!

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Children with Thalassemia and other blood disorders need to come home. There is a shortage of blood in China and the orphans are the last to get it… Look at the difference in Abby! Look how much she has changed and how healthy she is now! We have seen a miracle unfold right in front of our eyes! Please consider adopting the children with Thalassemia and other blood conditions. They need to come home in order to live…

 

 

Cora’s story

Twenty-three years ago she made her mother-in-law angry. Cora had just given birth to her first child, a daughter, and the news did not bring any celebration into the household.

Her husband’s mother was angry; the older woman fumed and refused to hold her new granddaughter. As the weeks past she finally agreed to hold her daughter-in-law’s child, but even then she refused to be content.

Cora’s husband was the only son, the youngest child with four older sisters. He was the family’s only hope. They were farmers, always had been, and a son was so important.

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When Cora learned that her baby was a girl she grieved as well, but also rejoiced at the life she had given birth to. Her darling daughter was a precious gift… but she felt guilty.

If only she had been able to give her relatives a son.

They were not well-off at all. In fact, they were poor. Times were very hard and they couldn’t afford to have another child just yet. And what if they did and she gave birth to another girl? What would they do then?

Four years later, the day after celebrating her daughter’s fourth birthday, Cora and her husband left town. They bought vegetables and grain from the local village and went to sell it in the next town over. At least, that’s what they told everybody. In reality, Cora was beginning to show signs of being pregnant again and they couldn’t risk her being seen in the village. Second pregnancies were not allowed.

Pedaling the three-wheeled cart, Cora’s husband took his wife and the new life growing inside of her out of town. They had to leave their beautiful little girl with her grandmother. The sweet birthday girl didn’t know why her parents were leaving and grieved deeply while they were gone. There were no phones, no internet or skype; there was no way to stay in touch during the next 7 months.

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Then the time came for Cora to give birth. It was a boy. Her husband raced home to his mother to tell her the news. When she found out that she was the proud grandmother of a healthy little boy, she couldn’t keep back the tears. Cora came home soon, and over the next few years their family scraped together the money to purchase their son a Hukuo (close to a SSN, required for children to attend school etc.).

Life is easier now, Cora said. They aren’t struggling like they used to be and her motherin-law and daughter have a special bond. She doesn’t know what they would have done if the second pregnancy had been another girl.

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I don’t think she wants to think about it.

For the past thirteen years Cora has worked as a nanny, caring for children whose parents made the hard choice, because of circumstances we can never fully understand, to give them up. All of the children that she has looked after have had some sort of special need.

She is one of the most dedicated, loving and caring nannies that I have ever seen. She is gentle, patient and tender. She sings and prays for the children. I remember one week when we had a little baby girl who was really struggling – fighting for her life, really – and was always fussy. I was often singing and praying out loud for her, as I cradled this baby girl in my arms. And Cora was, too.

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I know that, as adoptive or pre-adoptive parents, many of you wonder who is a part of your children’s life. Who is loving on them? Is anyone? Do the caregivers actually care?

I hope that this story shines a tiny gleam of light onto the unknown world of caregivers in China.



Somewhere to Run

In my adoptions circles, there is a little bit of a running joke about all the things that start going wrong once a paper chase and the commitment to adopt a child (or children) begins. Somewhere along the journey to China, an adoptive parent can guarantee that an appliance…or three…will break, the car will need repairs, a member of the family will get sick, a storm will hit, their basement will flood, someone will say something discouraging, and on goes the list. In those early stages of the adoption, we call it as we see it. This is spiritual warfare and we have an enemy prowling around seeking to devour adoptions before they even get off the ground.

Unfortunately, the spiritual warfare doesn’t end once the adoption is finalized. It lurks in the background seeking opportunities to hurt our testimony and discredit God’s faithfulness. In fact, adoptive families are one of the most under attack groups of people I’ve ever come across. In talking with adoptive parents, I hear so many of them saying the same thing to me over and over again. The same things I’ve said to myself at various points in the journey. I feel so alone. I feel like I’m failing. The people I counted on for support aren’t supporting me. My social worker didn’t tell me this part would be so hard. The stress is getting to my marriage. Our extended family doesn’t understand what we’re going through. But oftentimes we aren’t as quick to see the see the spiritual warfare on this side of our Travel Approval.

Adoption is a miracle. The transformation of a child who fears their adoption parents on “Gotcha Day” into a child who runs laughing into their parent’s arms is a beautiful sight to behold. The difficult attachment journey…whether it’s a child who isn’t attaching or a child who is anxiously attached…is a journey worth making. Watching two children bearing completely different genetic codes become as “real” as siblings can be is breathtaking. But adoption is also hard. When a child from a “hard place” joins their new family, they bring their trauma with them. Anytime a new child joins a family there are adjustments required, but even more so when a child joins a family through adoption. That’s just the way it is. It’s normal and to be expected. But it does put a strain on the family, oftentimes creating a very challenging season. A season that makes adoptive families feel alone. Unsupported. Like failures. Overwhelmed. Misunderstood. And unable to reach out for help for fear of being judged. Because not everyone can understand that the greatest joy of your life can also be your biggest stressor. The natural response during those seasons is to pull away from anything that isn’t necessary for survival…all the while not realizing that we need so much more than that stack of books our social worker let us borrow.

It never ceases to amaze me how an adoptive family…mine included…can be in the throes of spiritual warfare without even realizing the enemy has attacked. Especially in the first months (years???) home with a child. While this season is full of new joys, obstacles overcome, and milestones achieved it is also a season in which the adoptive family is very vulnerable…spiritually, emotionally, and physically. So many other things scream for the family’s attention that the most important thing quietly slips away.

If yours is a family that was called by God to adopt, and that has a very God-centered testimony leading up to your adoption you need God more than ever once you’re home. My theme verse for our first adoption was “The one who calls you is faithful, and he will do it. –1 Thessalonians 5:24”. I clung to that verse every single day of every single wait. And it’s true. God WILL do it. He’ll get you to your child. And once home, he’ll get you through the sleepless nights. The doctor’s visits. The bad news. The hurtful comments from people who are supposed to love you. The stir-crazy boredom induced by “cocooning” your new child. The questions that you don’t have answers for. The lie that you’re just not quite cut out for this calling. But the place he’s found is the place that adoptive parents so often forget to visit in our need to survive…the foot of the cross. And when we’re in those hard seasons that’s where we need to run. To the one who called us. To the one that chose our child(ren) for us. To the one that is grafting our family tree according to his own unique plan. He is faithful and he will meet our needs right where we are. No one else may understand what we’re feeling or experiencing, but our creator knows us better than we know ourselves. When we need somewhere safe to run, his arms are open and waiting.



walk, don’t run.

I’ve never been a runner. Heck, the nickname given to me in high school was “Clyde.” As in Clydesdale. Yeah, the horse. The one who trots along through life. But while I may not have been a runner, I walked fast! And with purpose. Even now, I somehow manage to leave my poor husband in the dust. At the mall, I realize he’s several steps behind me. My children consistently ask me to slow down when holding my hand. Because I’m my mother’s daughter and well, she walks with purpose too. Quickly.

So in the physical sense, I’m kinda power walking through my day. Multitasking. Spinning plates, juggling balls. But in a spiritual sense, I’m a runner. A serious runner. God gives me a task or a conviction or a plan and y’all, I’m all over it. Like they taught me during our three years in Texas, I’m “on it, blue bonnet.”

And you wanna know something? I don’t believe God calls us to run all the time. Run away from temptation? YES. Run to Him? Always.

But in the everyday, mundane? Friends, it’s a walk.

Have you ever contemplated how many Scriptures encourage us to walk? Verse after verse. Passage after passage. Walk.

This year in particular, has been a struggle between walking and running for me. Which is so funny since we aren’t adopting right now and I, like some of you, am guilty of trying to run like mad through an adoption!

Our first son, adopted at age 3, struggles with comprehensive speech delays as well as some learning delays. I’ve posted about him a few times before in regards to these things. But as I was recently sitting in the dentist’s waiting area {four children = cleanings X four twice a year…ugh!}, I read this article. And it reminded me again just how much these babies endure because they are born too early.

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Three of our children were preemies. Joel was the most significant at 28-29 weeks. He experienced several surgeries as an infant due to a perforated bowel {very common in preemies} as well as Reactive Airway Disorder because of immature lungs. He was on a vent for several months which seems to have given him some level of sensory issues too. And while I’m amazed at the level of care he was able to receive in the country of his birth, it’s clear that these things, coupled with being institutionalized until he was three years old, have conspired to set him up for some hard days as far as learning and schooling goes.

And in like fashion, I wanna RUN. If he’s only reading at an F level, I want to blaze through and get him to an H. “Forget G! We can skip it! Let’s just read H books and see how you do!”

But many times with our babies, who’ve come to us with delays, it’s a walk, not a run.

And then there’s our Gabe, {AKA, the Little Prince, my Gabey Baby}, whose urological/genital defects were so extensive that he will endure the 6th surgery on his nether regions alone over a two year period this October. MY plan was to shore this up in two surgeries. Which is laughable to consider now. And the fact that Gabe’s hypothermia at abandonment has contributed to terribly poor skin and healing quality, doesn’t at all help my need to RUN. It has caused the opposite to happen.

With Gabe, we seemingly crawl.

And I see this with so many other adoptive parents {and bio ones too of course!}, who love their babies more than life and they want this stuff to be OVER. We want to be DONE. We want our children to be CHILDREN and not in the hospital or in pain or unable to do things that others can easily do.

But again y’all, it’s a walk.

He calls us to a walk. Our kids don’t need sprinters. They need walkers. Consistent, steady, faithful walkers.

Oh, sure, I’ve got my tennies tied and my hair in a ponytail. I’m ready if a run is ever the best option. But for now, I’m on a walk with Him. And that’s more than okay. Because He’s God of the walk.

“And I will walk among you and will be your God, and you shall be my people.”
Lev. 26:12