Family Medical History: How Much Do You Want to Know?

I have a great-grandmother, Verna, who lived to 103 years old. She tended her garden and lived in her own home until the very end, passing peacefully in her sleep. Verna is a shining star on my family medical history. My own father had debilitating arthritis as a child, as did a great uncle. Autoimmune disorders of all types are abundant. Several ancestors struggled with substance addiction. There’s breast cancer on my mother’s side of the family. We tend to have teeth that rarely get cavities and hair that goes gray by 30. But losing our hair? Hasn’t happened in generations. I have an uncle who is 6’4, a brother who is 6’5, and when I topped out at 5’3, I knew my shortness came from the petite Pittman side of the family. On the Kelley side, allergies abound and if a family reunion were held during pollen season, Kleenex could sponsor the event. All in all, it’s a mish-mash of the mortal state and most of it, I rarely think about. But it’s nice to know.

For my youngest two children, their family medical histories are total blanks. Did his grandfather die of pancreatic cancer? Did her mother have high cholesterol? Is there an inherited, hidden heart defect? Did his dad fight alcoholism or battle OCD? Did her grandmother have Alzheimer’s? I have no idea.

Technology is such that now, with some money and little saliva, you can get a genetic picture. I was intrigued and late one night, I perused the website for one of the popular DNA testing companies. I was amazed. Did you know that from a sample of spit they could predict your odds of living to 100? Or of having restless leg syndrome? Or male pattern baldness? Or obesity? Or a tendency to overeat? Or freckles? It’s like a modern-day fortune teller looking into a crystal ball. Do they see a blue eyed child in my future? Or one with curly hair? And even if it’s stuff that I already know–like that my Asian children weren’t first in line when the freckle gene was distributed, isn’t it cool to have someone (fortune teller or scientist, either one) tell us something that we already know but they found it out in a cool way (crystal ball or cheek swab, either one)?

And did you know they could test for drug response? If you were on say, an antidepressant, would you be more or less likely than average to get relief? And if it did work, would you tend to relapse? Or be prone to sexual side effects? They can tell you if you may require a lower dose of blood thinner or if you might react poorly to cholesterol-lowering medications or if you’re genetically predisposed to heroin addiction. These could be useful things to know.

But the more I read, the more I squirmed. Say my son was at a high risk for Lou Gehrig’s Disease. It’s a tragic and fatal illness, and if his genetic map leads to that, I couldn’t alter the path. Would I want to know? Would I want him to know? What if my daughter has a stronger than average tendency toward bipolar disorder? Would I overreact and spend sleepless nights worrying about her normal teenage moodiness? If my son surprises us with a 4 letter word, would I secretly rush to check his paperwork and see what it says about Tourette’s Syndrome?

There is a place for genetic research, absolutely. A family medical history is a good thing to have. But how much do I really want to know? As it turns out, not much. I know that I love my children, whether or not we share one iota of genetic code. I know that I’ll be their mom through thick and thin. Through gout or migraines, through asthma or Celiac disease, through kidney stones or lupus. And for today, that’s all I need.


Advent

I’ve been pondering Christmas a lot lately. It’s December, after all, and well… it’s just been on my mind. The season of Advent… or the coming of the Lord. How long God’s people waited for it. Imagined it. Prepared for it. Prayed and asked and begged for it.

For the Advent.

It’s running through my head so much lately.

The glorious coming of the King of kings.

And with it, scenes flood my mind from the beautiful and recent homecoming of our little prince, Gabe. The anticipation continues to build as we celebrate the season and all the Lord has done for us and in over the past year.

Christmas holds so much promise. Unrivaled hope is ours because of Jesus’ coming. Coming to redeem a people and graft us in. Coming to make wrong things right. To bring forgiveness and healing and grace.

And while Gabe’s coming is completely different and pales in comparison, it has given me a new hope too.

Hope that other children will be grafted into families during the next year. That the injustices they have endured will be made right. And that they will be shown mercy in their vulnerable state.

Beginning in January, Gabe will have the first of four surgeries that will take place over the next 12 months. To say I’m apprehensive is an understatement. The outlook from both specialists is very good. Still my heart aches to think of him going through them.

But here’s the thing, without him coming home, these necessary operations were not likely to be a reality. They all need to be done sooner than later and as quickly as we can get him healed and ready for the next one. I’m just so relieved he is here. That he is home. And that his hope of having these problems alleviated is sure.

I know that my husband and I are common. That there are countless other people out there who are like us. Ordinary people who want to honor the Lord by loving what He loves. My prayer is that they will step out in faith and say “YES!” to one of these beautiful children who need a family. Just as our son from Thailand, Joel, did three years ago, Gabe has deepened our perspective. Seeing the transformation of yet another orphan into a beloved son has spurred on my hope once again this Christmas.

Let’s work and pray and encourage and speak out until every child has a family. Until no child goes to sleep alone. And until the orphan crisis is a terrible but distant memory.

Let’s consider the Advent of the Lord and live our lives with purpose and great intention. Children everywhere are pondering an advent… the advent of a family. They are waiting and imagining. They are preparing and asking and begging. Let’s remember them this season!

Merry Christmas NHBO friends! I have much love and gratitude for you all!
For His fame and because of His coming~
Kam




Give them grace

We’ve been pretty fortunate in avoiding the awkward public questions about adoption. We certainly get some odd stares here and there, along with lots of smiles. But we don’t get offensive questions. We get questions, sure. And there have been a couple times when I wanted to make a sarcastic comment, but of course I keep that to myself. Mostly, people are just curious and I am ok with that. Although interracial adoption is becoming more the norm, I know we still stick out, so some questions are to be expected. But truly for the most part, we go on about our business in public like any other more inconspicuous family.

I have often wondered what I would say in response to a stranger’s unwanted comment or misplaced question. What I have honestly never thought about is how I would respond to one of my child’s interesting questions. Here is how one incident unfolded:

Angel (age 7): Mom, where is Sunshine’s real mom?
Me: What do you mean? I am her real mom!
Angel: No mom, I mean her real mom.
Me: I AM her real mom! (getting frustrated at this point)
Angel: No, but I mean her real mom. You know, the one in China.
Hubby: (seeing the tension rising and me starting to lose my cool) Angel, I think what you’re trying to ask is ‘where is Sunshine’s first mom?’ … right?
Angel: Yeah, where is she?
Hubby: Well, we’re not really sure where she is. We don’t know anything about her. But sweetie, Mommy is Sunshine’s real mom. She always will be.
Angel: Oh, ok.
Me: (calming down and finally seeing this is is a great learning experience) That’s right baby, Sunshine grew in her first mama’s belly and now she’s here with us. Her first mom is her real mom, and I am her real mom. We are both her real moms!

And just like that, the conversation was over. I clearly didn’t win Mom of the Year Award with my initial reaction, did I? As under control as I thought I’d have things with strangers, I hadn’t prepared myself for questions from my kids. I almost missed a perfectly good teachable moment because of frustration and frankly, annoyance, because it felt like she thought I wasn’t Sunshine’s “real mom.” Fortunately hubby was there to pick up the pieces before things really fell apart, but man, I totally failed that one! I didn’t extend her any grace. I got frustrated with her because in my mind, of all people, members of our own family should understand the proper adoption lingo. Right? Right? … Crickets …

Yeah, I didn’t think so. This really got me thinking about a couple things.

First, we missed the boat in explaining the different roles of “first mom” and “second mom” … to our own kids! We’ve had a bazillion conversations about China, birth parents, foster parents, etc. but we didn’t lay enough groundwork for it to all sink in. And then when given an awesome teachable moment, I got frustrated and almost missed it.

Second, if my own children don’t understand the correct adoption lingo, I certainly can’t expect strangers to either. It needs to be taught. This is where the “give them grace” thing comes into play. When being asked, “Oh, is she your real daughter,” or “Are they real sisters?” … it would be so easy for me to lose my cool and snap back with a sarcastic comment like, “Well are they your real kids?” I can clearly see that in myself now after my frustrated reaction to Angel. Instead, I’m hopeful that I can take a deep breath, focus, extend them a little grace, and use it as a teachable moment for them too.



next shared list

The next shared list is scheduled to be released tonight, November 26th! A new shared list is wonderful news for all families waiting to be matched!

Congratulations to all families in the Special Needs program, whether you find your child on shared list, the Special Focus list or an individual agency list… it’s always wonderful when children find their forever family!

If you have recently been matched with your special needs child, please feel free to share your news. We’d love to celebrate with you!



Identity Crisis

Last night, my husband and I joined about 180 folks from our city of Birmingham to view the documentary Somewhere in Between, a film that follows four Chinese girls adopted into American families. The movie articulates their challenges with feeling neither completely Chinese, nor totally American. The girls, now in their teens, conclude that they feel “somewhere in between.”

The film’s themes of belonging and identity are ones that everyone faces at some point in their life. But I can imagine the lack of knowledge most adoptive kids have about their background causes confusion and angst and even grief that many of us can never understand. Facing questions from peers about looking different from their parents and even some siblings may make some kids self-conscious.

It’s been interesting to see my oldest daughter adjust to her new life in America. She rather quickly changed her hairstyle and clothing to match the styles she observed at school and church. Over time, more and more English songs have popped up on her iTunes playlist which once consisted solely of Chinese artists. She even preferred to use a fork rather than chopsticks recently when eating Chinese food. I joked with her that she had become too “Americanized.”

If I were to ask Caroline today whether she felt more Chinese or American, I am pretty sure she’d still say Chinese. She continues to hold a number of beliefs and ideas that were taught in her native country. She still reads, speaks, and writes in Mandarin. And she enjoys keeping up with Chinese pop culture through watching Chinese TV shows and movies and downloading music by popular Chinese singers. In many ways, I think she still feels like a foreigner here.

Caroline will be almost 25 years old before she will have spent as much time living in America as she did in China. I expect it to take that long until she feels like she belongs in our country. But even then, I’m not sure I want her to feel completely American. I want her to hold onto her roots. I want her to love the country where she was born and partially raised. I want her to be confident in her Asian features despite being a minority and not looking anything like her fair-skinned, Auburn-haired mom or her very tall, brown-haired dad.

At the same time, I want her to feel like she’s been a part of our family since her birth. I want her to be proud of her adoption rather than self-conscious that she was once an orphan. I want her enjoy American traditions and appreciate our country’s history. I want her to feel like she belongs here and has a firm and secure place in society.

Realistically, she will experience emotions on both sides of the spectrum. In America, she will always stand out a bit with her Chinese accent. When she returns to China for visits, she will no longer appear as a local. Which ultimately means that she’ll feel “somewhere in between” a Chinese and an American. And it’s that tension of not quite knowing where you stand that leads to an identity crisis. Those overwhelming questions of Who am I? Where do I fit in? Why I am here? Why do I feel different? will be issues that all of our adopted kids will likely wrestle with.

To be honest, I feel ill-equipped to help my daughter sort through these questions. I suppose I’ll encourage her to set aside concerns over being Chinese or American and to focus instead on other aspects of her life that define her. To look at her talents, gifts, and roles.

She is a graceful dancer.
She is gifted piano and flute player.
She is a loyal friend.
She is a loving sister.
She is a beloved child of God.
She is a servant in her community.
She is a beautiful young woman.

And maybe, just maybe, she will find comfort in the fact that every one of us searches inside to determine where we fit in. It’s important to determine who we are and even who we want to be. And I pray any crisis during that process will lead my adopted daughters to value the unique journeys they have taken to become who they are today. Our kids’ stories have impacted and touched more people than they ever could imagine.



China’s waiting children

Compiled by Nancy to help families looking to grow their families by adoption from China’s waiting child program.

Advocate for Waiting Children (Yahoo group - will need to join group - shared list kept in “files” section)
Click here to be taken to group.

A.A.C. (Adoption agency)
Click here to be taken to “Waiting Kids List.”

America World Adoption (Adoption agency – will need to fill out a free pre-application to get password)
Click here to be taken to page to view children.

BAAS  (Adoption agency - will need a password)
Click here to be taken to agency’s individual lists.

Bringing Hope to Children (Adoption agency – will need to register to get a user name and password)
Click here to be taken to log-in.

CCAI  (Adoption agency)
Click here to be agency’s individual photo gallery.

Children’s Hope International (Adoption agency)
Click here to view China waiting children.

Children’s House International  (Adoption agency)
Click here to view list of agency bio’s of waiting children in Asia.

China Adopt Talk (Blog forum)
Click here to be taken to Advocacy Board.

Great Wall China Adoption (Adoption agency, will need to create profile to get password)
Click here to gain access to agency’s individual list.

Holt International (Adoption agency)
Click here to be taken to agency’s individual photolisting.

Lifeline  (Adoption Agency)
Click here to be taken to agency’s individual special focus list.

Living Hope (Adoption agency - will need to request a user name and password to access list)
Click here to get user name and password to view agency’s list.

Madison Adoption Associates (Adoption agency)
Click here to be directed to agency’s waiting children page.

Precious Child (Adoption website)
Click here to be taken to photolisting.

Rainbow Kids (Advocacy website - must register first)
Click here to be taken to photolisting.

Sharing Life and Love  (Advocacy blog)
Click here to be taken to blog that advocates for waiting children.

Until They All Come Home (Advocacy blog)
Click here to be taken to blog that advocates for waiting children.

W.A.C.A.P. (Adoption agency, - will need to request a password)
Click here to request a password for individual agency list.

Waiting Children China (Yahoo group - will need Yahoo to join group)
Click here to be taken to group.

Wide Horizons for Children (Adoption agency – will need to submit a short online application)
Click here to fill out short application and view agency individual list.

Please help keep this list current. If any of the following links are no longer active or accurate, or if you would like to recommend an additional source, please let us know.


Language: Could he have kept the Mandarin?

We met our son just a few month’s shy of his fourth birthday. He spoke clearly (clearly enough for us to understand many of his basic phrases), he had no speech impediments and was a good communicator. Our guide in his province said, “He speaks well and knows very much.” At home in the United States, a Mandarin-speaking friend spent an afternoon with him, playing cars and trucks on our playroom floor. XiXi counted Hot Wheels (he made it up into the 20s before running out of cars), correctly identified colors, named all of the animals in our toddler books, and showed that in his native tongue he was quite the accomplished chatterbox.

Before we traveled, I’d done some research. How long would a child his age keep his native language if he moved into an English-only environment? My guess was about 8-12 months, with the ability to understand holding on longer. This is what the research had to say:

One of the most shocking discoveries in the field of international adoption is the swiftness with which children lose their native language and the profound nature of that loss. In a situation of full English immersion, it takes these children (3-4 year-olds) seven to twelve weeks to reduce their expressive language to a practically non-functional state. Their receptive language may stay four to six weeks longer, but it is barely functional even in familiar situations with the support of gestures, voice tone, and other non-linguistic means of communication.

Twelve weeks! As I heard my newly-adopted son chat with our friend, a woman he called Ayi, I thought that surely, in his case, he could retain the language. So we arranged for more meetings with Ayi, we sought out others who spoke his language, we even frequented Chinese restaurants.

What we quickly realized was that we were swimming upstream and fighting a tide that was more powerful than our obviously meager efforts. The first few times our son met with Ayi, they chatted away effortlessly. After just a few weeks home, however, I saw a fairly dramatic change. She’d speak in Mandarin, he’d answer with nods or head shakes or answer in rudimentary English. He uttered not a single word of Mandarin. Not long after, we happened to run into Ayi at the grocery store. He loved her and greeted her warmly and she spoke to him in Mandarin. He stood there, stone-faced, and said nothing. She repeated herself and still, he remained quiet. Then she asked him the same sentence in English and he excitedly answered her. We’d been home less than 2 months.

At the Chinese restaurant, our server asked XiXi in Mandarin how old he was, a question even I could understand. Once again, our chatterbox remained quiet. I repeated the question and prodded him to answer. He stuck his lower lip out and looked away. I whispered in his ear, “Say, ‘san sway’.” He shook his head. The waitress asked if he knew any Mandarin. I don’t know why I felt the need to push this, but I prodded him again, “Say ‘san sway, XiXi. San sway.” Finally, he angrily whispered “san sway” and ate his lunch. It was such a little interaction, but it signaled something I hadn’t counted on. As much as I wanted him to keep his native language, he might not be interested. By twelve weeks home, he completely refused to speak Mandarin and was well on his way to becoming fluent in English. Now home a year and a half, I’m sad to say that he can’t understand even the most basic Mandarin words and phrases.

Do I think we could have done things differently and gotten a different result? I honestly don’t think so. If we had a native speaker in the home, we’d have had a shot. If we’d had Mandarin immersion in our schools, maybe that would have helped. But what we learned, was that not only did our son not have enough opportunities to hear and use the language, he didn’t have the motivation. In his new world, Mandarin was not helping him. English was the language of his family; Mandarin was the language of his orphanage. In his eyes, English was the language of his future; Mandarin was the language of his past.

If I could give one piece of advice to families adopting toddlers and older children from China, it would be this: video tape them speaking Mandarin immediately. I guarantee, the language will be gone quicker than you ever thought possible and you and your child will look at those videos like a dream out of the past.



502 days.

That’s the number of days it took Sunshine to feel comfortable enough to stay in the church nursery without me. After staying with her in the nursery off and on for months, I tried a few times unsuccessfully to leave her there by herself. I never pushed, just left for a few minutes until her screams became too desperate for me to bear. It was only a handful of times and in fact, I don’t really remember when the last time was. It just seemed like she wasn’t ready and I was ok with that, so I stopped trying for awhile. There are many things I’ve had to push since she’s been home, but forcing her to stay somewhere without me when she’s not comfortable? That isn’t one I’ve been willing to do.

I am certain some people would disagree with the decision not to push her, but this is simply something that is not negotiable for me. If she is not emotionally ready to be left on her own, I am not going to force her. Sunshine didn’t have the well-attached, safe, comfortable, predictable beginning that a newborn needs. Her beginning didn’t pave the way for happy church nursery separations. And that’s on top of the fact that she cannot communicate verbally with other people because of her cleft. So although I may be willing to push her in other areas, I transform into total mush when it comes to leaving her. I don’t want her to be in a situation where she cannot communicate her needs. And I certainly don’t want her to ever worry or think that I might not come back for her. Ever.

I think about all she’s been through, and all she still has yet to battle, and I’m overwhelmed with complete compassion. There are many things in her life I have not been able to help her with. But this one thing … this is something I can help her with. Even if it had taken 1,004 days to feel comfortable staying in the nursery without me, that’s ok. Because she will always know that her mama comes back for her.

So church this past week went on like any other Sunday, except that I snuck into the nursery to change Sunshine’s diaper before the service started. I didn’t have any intention of trying to leave her in the nursery, but she had other plans! After we finished the quick diaper change, she signed “play” and indicated in a mama-just-knows kinda way that she wanted to stay. With me. In the nursery. I wanted to attend the service though, so I nonchalantly asked if she wanted to stay by herself, totally expecting that she’d say no way. When she agreed to stay on her own, it took me a few seconds to realize that I needed to react fast and get out of there before she changed her mind. I left so quickly, in fact, that I didn’t sign her in or grab a pager. So I texted the Children’s Minister (who was in the nursery at the time and knows the situation with my sweet Sunshine) where I was sitting in church, and she graciously brought me a pager and confirmed that Sunshine was playing happily. Phew. I walked out into the hallway several times during the service to listen for the cries I was sure I’d hear, but I never did.

She made it almost the entire service before she got upset and asked for me. So when the pager went off toward the end, I went running. I don’t remember the last time that I ached to hold her so terribly (aside from after surgeries), and I couldn’t get to the nursery fast enough. When her little hands clasped around my neck and she started crying even harder out of relief, I wanted to burst into hysterics along with her, but instead just allowed a few tears to roll down my cheeks. I’m sure the young girls working in the room (who were new and didn’t understand Sunshine’s separation issues) thought I was totally crazy. “Thankful” isn’t a strong enough word for how I felt. I was consumed with praise. I wanted to do cartwheels and cry tears of joy all at the same time. Because although it may be normal for most parents to leave their children in the church nursery, it meant so much more for our sweet Sunshine.



peeling back the layers

So I’ve been MIA from here for about two months and for good reason… we went to China! And can I just say? It was absolutely amazing. We enjoyed every minute of our trip. Receiving our son, Gabe, was all that we hoped and prayed it would be. When we met our first son in Bangkok three years ago, we were blown away by his response to us. It couldn’t have been better. This time, Jase and I weren’t counting on such a meeting again. Our expectations were low but our hopes were high that Gabe would not be terrified to the point of complete shut down. He was quiet, and noticeably shell shocked, but so very brave. No tears and even some giggles within the first hour. We are beyond
blessed.

There’s so much to process and work through in those first few days and weeks together {and months!}. Getting to know each other and gaining trust, forging attachment and ensuring security for your child is paramount. Add to that, fear of the unknown and unanswered questions, and you’ve got the makings for some hard days.

Someone once told me that adopting a child {especially internationally where prenatal and birth records are pretty much unheard of}, can be likened to peeling back the layers of an onion. As soon as you deal with one layer, there’s another just under it waiting for discovery. And they all seemingly build on the one before it.

Now don’t get me wrong, my sweet little prince is no stinky, tear-inducing onion! {Though I adore them!} But the point is a valid one. Sometimes, we just aren’t privy to enough information before we travel. Enough to bring comfort anyway…or sometimes, just enough information to bring you to your knees.

We knew that Gabe had a heart condition {PDA, PFO} that needed to be corrected. And we were aware of other health concerns that would just have to wait until we traveled for him to confirm the extent of them. Without going into too many personal details, it was a very trying few months for me leading up to our trip. New updates brought more extensive concerns and rocked my faith.

Not my faith in the goodness of God.

Or in His sovereign plan.

But in myself…where it should never be in the first place and faith in whether or not I could handle the possibility of what that update stated as factual. A special need that we had never considered. One that still, if I’m being perfectly honest, I wouldn’t check “Yes” to on any special needs medical list. I was shaken and scared and looked to the Lord and my husband for help. Both of these wonderful gifts gave me insight and clarity and peace.

I never once wanted to step away from Gabe. I just wanted this to go away.

I never once felt like he was not worth it. I just felt inept to deal with what may be.

Hours before we were to receive Gabe at the Civil Affairs Office in Zhengzhou, in the middle of the night, I sat in our hotel bathroom and sobbed. And begged again for clarity. And for strength to do our best for him…whatever that meant. I will tell you, the minute I saw his face, I was fine. I knew that whatever would be, already was.

Does that make sense? Whatever would be, already was.

And Gabe was ours. We were his. Nothing else mattered.

These days? We’re seeing lots of doctors. And having tons of tests done. Just this last week, blood draws for 14 more tests. With the promise of so many more in the months to come. But the preliminary findings are GREAT! His heart is doing well, and he will likely have a catheterization in January to alleviate and correct the PDA. Also, the opinion so far {from two of his physicians} is that our worst fears {and China’s diagnosis} are unfounded.

To God be the glory.

I have read of others who faced similar situations. Maybe not the same special needs that we are ruling out for Gabe. But ones that cause them to step back because it is what is best for their family.

My heart aches for them.

I have a new perspective. Not one of judgement at all. I was wrongfully somewhat cynical before. So arrogant to think that I would not walk away from the referral of a child. How could I say that? I’d never taken a step, much less a mile in their shoes.

But I have now.

And I get it.

We continued on. And praise God we did! I can’t fathom our lives had Gabe not come to be part of us. He is more than we could have hoped for and such a complete blessing already.

Peeling back the layers is no fun. It’s hard to watch your child hurt and to see fear in their eyes when they meet yet another specialist. But eventually, we’re going to get to that last layer…and no matter what we find, the Lord will meet us there.

“I would have despaired unless I had believed I would see the goodness of the Lord in the land of the living. Wait for the Lord, be strong and let your heart take courage; Yes, wait for the Lord.”
Psalm 27:13-14




next shared list

The next shared list is scheduled to be released tomorrow night, October 29th! A new shared list is exciting news for all the waiting families out there!

Congratulations to all families in the Special Needs program, whether you find your child on shared list, the Special Focus list or an individual agency list… it’s always wonderful when children find their forever family!

If you have recently been matched with your special needs child, please feel free to share your news. We’d love to celebrate with you!