Everyday girl

April 11, 2013 by nohandsbutours heart defect, Kristi, port wine stain, vision issues 2 Comments

I watch her run across the yard, her straight, black ponytail bouncing over her self-selected outfit (which today, for once, is rather tame) and from the back she seems like just any other, everyday, six year old girl. Then something grabs her attention and she turns around. As she glances past me her face breaks into …Read More

Mixed emotions

October 11, 2010 by nohandsbutours Kristi, port wine stain, Sturge Weber Syndrome 0 Comments

A week from today my beautiful girl will have her first appointment with the laser surgeon.  The procedure itself will last less than fifteen minutes from the time anesthesia starts until I’m called back to recovery.  Much less complicated and involved than the two eye surgeries she’s had so far. And yet I find myself …Read More

US 35 North ~ revisited

June 11, 2010 by nohandsbutours Kristi, port wine stain, Sturge Weber Syndrome 3 Comments

I bet that I’ve ridden the stretch of US 35 North between Charleston, WV and Dayton, OH at least 100 times in my life.  It’s familiar.  I know where to expect the power plants, glimpses of the river, the convenience stores, and the grand farm houses as we make our way “home” to western Ohio. …Read More

Reflections from my first time in "the waiting chair"

April 11, 2010 by nohandsbutours congenital glaucoma, Kristi, port wine stain, surgery, vision issues 7 Comments

Welcome to Kristi, our newest contributing blogger. Kristi has three children adopted from China and her newest daughter, Darcy, joined their family in February. Kristi blogs about their family at Fireworks and Fireflies. Wednesday of this past week I joined a club. A club I never would have imagined myself in just a few short …Read More

Carli Mei

November 26, 2008 by nohandsbutours birthmark, Family Stories, hemangioma, port wine stain 0 Comments

By Brandy, mother to Carli Mei from China, with port wine stain birthmark Chosen We’re matched! We’re matched! I just remember that feeling of elation like it was yesterday. After a round of “matching” 3 months earlier and our family not being “chosen”. It was a day I tried to remain guarded…tried. My heart was …Read More