May Special Needs Focus (and Favorite Family Stories): Vascular

May 1, 2017 Favorite Family Stories, hemangioma, Klippel-Trenaunay Syndrome, May 2017 Feature - Vascular, port wine stain, Sturge Weber Syndrome, Vascular System 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

A Doll Like Me: One Adoptive Family’s Story

December 18, 2016 Mandy, port wine stain, Sturge Weber Syndrome, Vascular System, visible special need 0 Comments

As the mom of two children with visible differences, I am always looking for books and toys to help my kids celebrate their differences. This week, my mom called to tell me all about a story she saw on television of a beautiful little girl named Corina who was adopted from China. My mom said …Read More

Then and Now: Abby and Evie

November 23, 2016 adopting again, adopting out of birth order, Family Stories, food issues, Heart System, homeschool, November 2016 Feature - Then and Now, older child adoption, orphanage behaviors, port wine stain, spina bifida, VSD 0 Comments

November is Adoption Awareness Month. And our focus is Then and Now… glimpses into the lives of children – children who were once orphaned – who are now beloved family members. Daughters, sons, sisters and brothers who are now blossoming in the love of a forever family… ……….. We have been blessed with two beautiful …Read More

The Lucky Ones: Adopting a Child with a Visible Special Need

November 13, 2016 birthmark, Family Stories, hemangioma, phakomatosis pigmentovascularis, port wine stain, Vascular System 2 Comments

The Lord uses many avenues to speak to the hearts of his people and call them forward to adoption. For some that call comes from the Bible and teachings of the church, for some that call comes through knowing people who have adopted, some people meet the vulnerable in orphanages and fall in love, and …Read More

In the Quiet Moment

May 23, 2016 Family Stories, Kristi, port wine stain, Sturge Weber Syndrome, Vascular System 1 Comments

On March 20, 2009 I spent the quiet moments of nap-time looking at waiting child programs with various adoption agencies. Home from China just four months with our second child, we weren’t ready to expand our family just yet, but as a planner I wanted to have ‘all my ducks in a row’ for when …Read More

The Perfect Fit for Our Family

February 3, 2016 Family Stories, hip dysplasia, misdiagnosed SN, mobility issues, Orthopedic, port wine stain, Sturge Weber Syndrome 1 Comments

My husband and I were only married a year when the Lord called us to adopt. Separately, we both felt the Lord speak to us about adopting a little girl from China – we told each other a few days later. It was encouraging to hear that call, and we were both excited for the …Read More

Corina’s Story: Adopting a Child with Sturge-Weber Syndrome

May 1, 2015 birthmark, Family Stories, Klippel-Trenaunay Syndrome, May 2015 Feature - Vascular, port wine stain, Sturge Weber Syndrome 2 Comments

“You can’t direct the wind but you can adjust your sails.” – Unknown No truer words have I ever read that bring home the reality of our daughter’s diagnosis. Our adoption journey is a story in itself, and best for another time. We have had several wise friends point out that the complications of even …Read More

Everyday girl

April 11, 2013 heart defect, Kristi, port wine stain, vision issues 3 Comments

I watch her run across the yard, her straight, black ponytail bouncing over her self-selected outfit (which today, for once, is rather tame) and from the back she seems like just any other, everyday, six year old girl. Then something grabs her attention and she turns around. As she glances past me her face breaks into …Read More

Mixed emotions

October 11, 2010 Kristi, port wine stain, Sturge Weber Syndrome 0 Comments

A week from today my beautiful girl will have her first appointment with the laser surgeon.  The procedure itself will last less than fifteen minutes from the time anesthesia starts until I’m called back to recovery.  Much less complicated and involved than the two eye surgeries she’s had so far. And yet I find myself …Read More

US 35 North ~ revisited

June 11, 2010 Kristi, port wine stain, Sturge Weber Syndrome 3 Comments

I bet that I’ve ridden the stretch of US 35 North between Charleston, WV and Dayton, OH at least 100 times in my life.  It’s familiar.  I know where to expect the power plants, glimpses of the river, the convenience stores, and the grand farm houses as we make our way “home” to western Ohio. …Read More

Reflections from my first time in "the waiting chair"

April 11, 2010 congenital glaucoma, Kristi, port wine stain, surgery, vision issues 7 Comments

Welcome to Kristi, our newest contributing blogger. Kristi has three children adopted from China and her newest daughter, Darcy, joined their family in February. Kristi blogs about their family at Fireworks and Fireflies. Wednesday of this past week I joined a club. A club I never would have imagined myself in just a few short …Read More

Carli Mei

November 26, 2008 birthmark, Family Stories, hemangioma, port wine stain 0 Comments

By Brandy, mother to Carli Mei from China, with port wine stain birthmark Chosen We’re matched! We’re matched! I just remember that feeling of elation like it was yesterday. After a round of “matching” 3 months earlier and our family not being “chosen”. It was a day I tried to remain guarded…tried. My heart was …Read More

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