When Fear Turns To Joy

October 23, 2018 22qdeletion syndrome, adopting a boy, adopting again, cognitive delay, developmental delays, Developmental System, Family Stories, hearing aids, hearing loss, IEP, older child adoption, speech delay, Tetralogy of Fallot 1 Comments

I remember sitting there staring. Staring at the notes that I had just scribbled down. My mind was racing and yet it was paralyzed. I had just gotten off the phone with the cardiologist who reviewed the file of a girl that my husband, Dan, and I had requested him to review. I was expecting …Read More

A Missing Piece: Adopting a Child with 22q Deletion Syndrome

October 9, 2014 22qdeletion syndrome, Developmental System, Family Stories, velocardiofacial syndrome 5 Comments

In May of 2013, we were asked if we wanted to review the file of a little girl with a repaired Congenital Heart Defect, Tetralogy of Fallot (TOF). We had been waiting several months and were so ready for THE phone call. When our doctor reviewed the file, she told us about Velo Cardio Facial …Read More

Gui Ai

February 6, 2009 22qdeletion syndrome, Developmental System, Family Stories, velocardiofacial syndrome 1 Comments

By Anonymous, mother to Gui Ai from China with DiGeorge syndrome I want to share our family‚Äôs journey of adoption. I hope in doing this it will encourage others to consider children with unknowns and more involved special needs. When we received the referral for our daughter we knew she had a repaired heart condition …Read More

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