May 1, 2017
Favorite Family Stories, hemangioma, Klippel-Trenaunay Syndrome, May 2017 Feature - Vascular, port wine stain, Sturge Weber Syndrome, Vascular System
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The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
May 23, 2016
Family Stories, Kristi, port wine stain, Sturge Weber Syndrome, Vascular System
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On March 20, 2009 I spent the quiet moments of nap-time looking at waiting child programs with various adoption agencies. Home from China just four months with our second child, we weren’t ready to expand our family just yet, but as a planner I wanted to have ‘all my ducks in a row’ for when …Read More
February 3, 2016
Family Stories, hip dysplasia, misdiagnosed SN, mobility issues, Orthopedic, port wine stain, Sturge Weber Syndrome, Vascular System
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My husband and I were only married a year when the Lord called us to adopt. Separately, we both felt the Lord speak to us about adopting a little girl from China – we told each other a few days later. It was encouraging to hear that call, and we were both excited for the …Read More
May 1, 2015
birthmark, Family Stories, Klippel-Trenaunay Syndrome, May 2015 Feature - Vascular, port wine stain, Sturge Weber Syndrome
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“You can’t direct the wind but you can adjust your sails.” – Unknown No truer words have I ever read that bring home the reality of our daughter’s diagnosis. Our adoption journey is a story in itself, and best for another time. We have had several wise friends point out that the complications of even …Read More
October 11, 2010
Kristi, port wine stain, Sturge Weber Syndrome
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A week from today my beautiful girl will have her first appointment with the laser surgeon. The procedure itself will last less than fifteen minutes from the time anesthesia starts until I’m called back to recovery. Much less complicated and involved than the two eye surgeries she’s had so far. And yet I find myself …Read More
June 11, 2010
Kristi, port wine stain, Sturge Weber Syndrome
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I bet that I’ve ridden the stretch of US 35 North between Charleston, WV and Dayton, OH at least 100 times in my life. It’s familiar. I know where to expect the power plants, glimpses of the river, the convenience stores, and the grand farm houses as we make our way “home” to western Ohio. …Read More
October 20, 2008
birthmark, Family Stories, GWCA, Skin Conditions, Sturge Weber Syndrome, Vascular System
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by Monica, big sister to Reese, from China, who has Sturge-Weber Syndrome We originally were aiming to go to China for a NSN girl, as young as possible. As we were gathering paperwork, some friends called us and said, “you have to look at these kids on your agency’s waiting list”. We did, and found …Read More
