February 27, 2016 February 2016 Feature - Heart, major aorto-pulmonary collateral arteries, pulmonary atresia, Tetralogy of Fallot 2 Comments

A year ago we were still in the hospital with Jadey Cate and she was fighting hard. She had just endured a marathon heart repair on January 14, 2015 to repair her very broken heart. Jadey Cate was born with a form of TOF with pulmonary atresia and MAPCAs (Major Aorto-Pulmonary Collateral Arteries). She had …Read More

February 12, 2016 cerebral palsy, complex heart defect, Family Stories, February 2016 Feature - Heart, Tetralogy of Fallot 4 Comments

February is Heart Month and we continue to share stories from parents as they navigate life with their heart babies. Each story, each post, each child is special. And for today’s post, this is especially true. Andrea was in the process of writing this post when her daughter Leeya suddenly and unexpectedly passed away. Andrea …Read More

February 1, 2016 February 2016 Feature - Heart, Heart System, Little Hearts Medical, other ways to care for the orphan, referral, waiting for referral 0 Comments

It’s February 1. Happy American Heart Month! To start off heart month here at NHBO, I asked Andrea to share. Andrea has shared here before, as mom to four children with complex (some with very complex) heart needs. But today Andrea is sharing as the Executive Director of Little Hearts Medical. One of her roles …Read More