Magnificently Good

December 13, 2018 Central Nervous System, cerebral palsy, developmental delays, epilepsy, hydrocephalus, Lifelong needs, Linny, non-verbal 0 Comments

When people are considering special needs adoption they usually look over a list and decide what they are comfortable with. Looking at the long lists of possible medical needs fearful thoughts can overwhelm even the bravest hearts. Sometimes the uncertainty of needs, often based on misinformation, can generate an automatic “No, not that need”. Here’s …Read More

The Unexpected Gift of Struggling

December 7, 2018 Central Nervous System, cerebral palsy, December 2018 Feature - The Gift of Adoption, developmental delays, Developmental System, epilepsy, IEP, Lifelong needs, undiagnosed SN 1 Comments

If I’ve said it once I’ve said it a thousand times, “Adoption is a gift”. People respond with a smile and a nod of their heads. Sometimes I get to go a little deeper and share details of our story and how we came to be the parents of a child with significant physical and …Read More

The Story of Alexis

June 23, 2018 amputation, Central Nervous System, cerebral palsy, Family Stories, hip dysplasia, June 2018 Feature - Orthopedic, lipomyelomeningocele, missing arm/leg, Orthopedic, prosthetics 0 Comments

When we were matched with our sweet Alexis we were told that she had hip dysplasia. Once we were back in the U.S. and we were able to take her to see a specialist, we found out that she has a form of spina bifida called lipomyelomeningocele, which means a fatty mass had attached to …Read More

Putting Your Best Foot (and Hip, Leg, and Toes) Forward

June 16, 2018 AFO, cerebral palsy, Family Stories, hemiplegia, hip dysplasia, June 2018 Feature - Orthopedic, Orthopedic 0 Comments

As a parent, you never want to “choose” to go through painful procedures and surgeries. However, when parenting a child with special needs, one has to weigh pros and cons of various therapies, tests, procedures, surgeries, medications… the list goes on and on. And when your child is functioning well overall, the decisions can be …Read More

Just What We Needed: Parenting a Child with Hypotonia

April 11, 2018 April 2018 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, hypotonia, low muscle tone, occupational therapy, periventricular leukomalacia, physical therapy, Uncategorized 1 Comments

When we were matched with Hailey, she was 6 months old, and we were blessed to call her our daughter! We waited over 18 months to see this sweet girl’s face, and could not believe the day was finally here. With her referral information, we were given the results of a CT scan, which showed …Read More

The “Other Side” of Adoption… and Beyond

November 29, 2017 adopting again, Central Nervous System, cerebral palsy, Family Stories, older child adoption 0 Comments

We are nobody. No one special. What I mean is, we are not celebrities, we are not “beautiful” people, not snappy dressers, we wouldn’t stand out in a crowd, and certainly not wealthy. We are completely ordinary…. except for one thing. Trailing in our wake are six children, two of the homegrown variety and four …Read More

When Words Don’t Come

October 11, 2017 augmentative and alternative communication, cerebral palsy, dysarthria, non-verbal, speech delay 0 Comments

The ability to speak is commonly used as a litmus test for intelligence. After all, audible language equates with the ability to form thoughts. True? Not true. Oftentimes, non-verbal children have the same thoughts and feelings as typically developing peers but don’t have the skills or ability to use words to express themselves. We have …Read More

Being a Mom to Special Kids

September 15, 2017 autism, cerebral palsy, Megan, Parenting Special Needs, siblings 2 Comments

All of our children our special, but some of us know just how hard it is having extra special kids. Anyone who has adopted, whether your child was listed as having special needs or not, knows what it’s like to parent an atypical and often difficult child. Sometimes it is just plain hard. Whether your …Read More

The Scoop on Poop: All About Bowel Management

June 11, 2017 anorectal malformation, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL 0 Comments

This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More

For Life: Unexptected Treasures

June 4, 2017 Central Nervous System, cerebral palsy, developmental delays, Developmental System, Lifelong needs, low muscle tone, May 2017 Feature - For Life, seizures, undiagnosed SN 1 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. In our For Life series, we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what …Read More

For Life: What Families of Children with Lifelong Needs Need

May 31, 2017 Central Nervous System, cerebral palsy, hypoxic ischemic encephalopathy, Lifelong needs, May 2017 Feature - For Life 1 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. This month we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what many would believe …Read More

My Hero

May 15, 2017 adoption realities, Attachment, attachment challenges, cerebral palsy, first year home, Megan, Newly Home, orphanage realities, self-harming, trauma 3 Comments

My hero is tiny but larger than life. Tan skin, black hair and the most beautiful dark chocolate eyes you have ever seen. He is 33 inches tall and weighs 33 pounds. A perfect little pint of goodness. A little over a year ago, at age three, he left a cold gray building with my …Read More

The Little Girl No One Believed In

April 17, 2017 April 2017 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, hearing aids, hearing loss, hypoxic ischemic encephalopathy 3 Comments

I didn’t set out on this journey to become the parent of multiple children with special needs. It’s a funny thing, though, to see a dream evolve. As a young girl, I learned of the gender disparity in China and the preference for sons. In that moment, the seeds were planted in my heart and …Read More

April Special Needs Focus (and Favorite Family Stories): Central Nervous System

April 1, 2017 April 2017 Feature - CNS, Central Nervous System, cerebral palsy, epilepsy, Favorite Family Stories, hydrocephalus, microcephaly, moyamoya, spina bifida 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Three Simple Words

March 12, 2017 adopting a boy, adoption realities, Attachment, attachment challenges, Central Nervous System, cerebral palsy, cocooning, Family Stories, older child adoption, rejects mom 0 Comments

We often hear the term “leap of faith”. Three simple words. Saying these three simple words is easy, but truly living them out is a different story. My husband and I always joke with each other saying that nothing in our lives comes easy or goes as planned. We are okay with this, because what …Read More

Putting the Pieces Together

March 11, 2017 brain injury, Central Nervous System, cerebral palsy, cleft palate, hemiplegia, older child adoption 3 Comments

One of the ways in which we fundraised to bring our daughter, Lulu, home last year was through a jigsaw puzzle fundraiser, suggested by a fellow adoptive Mama. Perhaps you’re familiar with it — we reached out to family and friends asking them to sponsor pieces of a puzzle to raise the $5,800 orphanage donation …Read More

Medical Crisis: Being Your Child’s Best Advocate

February 25, 2017 cerebral palsy, complex medical, February 2017 Feature - Preparing Your Child for Medical Interventions, hospital stays, seizures, surgery 2 Comments

In the summer of 2016 we adopted our precious Sonnet. Her adoption was medically expedited due to her being profoundly malnourished. She was also diagnosed with cerebral palsy and overall global and cognitive delays. What we didn’t know about was the seizures. She was experiencing them the day we took custody of her, but the …Read More

Every Life Has Value: Adopting a Child with Lifelong Needs

October 18, 2016 cerebral palsy, cognitive delay, developmental delays, Developmental System, Lifelong needs, non-verbal 9 Comments

I have to be honest and tell you up front that I am writing this while nursing some sore feelings. One too many times over the last month or so I’ve had to fight for my girl. I have had to hear hurtful words. So my heart is tender and a little broken so be …Read More

1 in 1000: Adopting a Child with Childhood Apraxia of Speech

October 17, 2016 apraxia of speech, Central Nervous System, cerebral palsy, developmental delays, early intervention, Education, Family Stories, non-verbal, October 2016 Feature - Developmental, speech delay, speech therapy 0 Comments

Like so many of us who are part of the adoption community, we have learned so very much in the time our two youngest kiddos have been part of our family. Our son, Liam, who is now eight years old, joined our family at the age of 28 months. His special need was listed as …Read More

Making the Grade: Special Education and Adoption

September 30, 2016 agenesis of the corpus callosum, autism, brain damage syndrome, cerebral palsy, cognitive delay, developmental delays, early intervention, Education, hypothyroidism, IEP, institutional autism, non-verbal, public school, September 2016 Feature - Back to School 1 Comments

It’s September which means school is back in session. And this month at No Hands But Ours, it’s all about Education. From IEPs to OT, from homeschooling to Early Intervention, we’re covering the gamut of educational topics and how they relate to the unique needs of the children who have joined our families through adoption. …Read More

A Gift You Can’t Prepare For: Adopting a Child with CP

August 14, 2016 adopting a boy, Central Nervous System, cerebral palsy, Family Stories, Megan, should we adopt? 3 Comments

“You weren’t trained for this, but you were born for it.” I keep reading these words sent to me by a dear friend the other day. She knew I was struggling with parenting our three year old son, home since January, while also trying to meet the needs of our three biological children ages four, …Read More

Different Than What We Asked for, Better Than We Imagined

June 20, 2016 adopting a boy, Central Nervous System, cerebral palsy, Family Stories, first weeks home, Megan, Newly Home, pre-adoption, referral, should we adopt?, waiting for referral 5 Comments

When considering the orphans of China, many think of the the one child policy and specifically the incredible amount of girls that were abandoned as a result. When my husband and I began our adoption process we too thought that it was the girls most in need of homes and loving families. Like many others, …Read More

Backwards

May 11, 2016 adopting a boy, Central Nervous System, cerebral palsy, Family Stories, older child adoption 0 Comments

We did everything backwards. After watching our best friends adopt two girls from China, my husband and I were very open to adoption. However, we are both “take it slow” kind of people so it wasn’t until a couple of years later that I felt ready to build our family through adoption. My husband? He …Read More

Two Years of Blessings

May 9, 2016 adopting a boy, cerebral palsy, Family Stories, older child adoption 0 Comments

It has been two years. Two years since China said yes. Two years full of unexpected blessings. Two years of being asleep before your head hits the pillow at night. Two years of going to work with kisses on your cheeks. Two years full of learning new things for both Lock and us. Has life …Read More

We’ve Got This: Parenting a Child with CP

April 29, 2016 April 2016 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, older child adoption 3 Comments

My son has Cerebral Palsy. Mild Right Hemiplegic Cerebral Palsy to be specific, which means only the right side of his body is affected. If you see him running by on the playground or the soccer field, you might never even notice he has physical difficulties. If you have an idea in your mind of …Read More

Countless Possibilities

April 23, 2016 adopting as a single mom, April 2016 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, hemiplegia, working mom 3 Comments

As long as I can remember, I always wanted to be a mom. After all, my own mom was the best mom in the world… a woman who loved her girls unconditionally and fiercely. I always wanted to be just like her. As most of us know, life isn’t always how you wish it would …Read More

The Happiest Kid on the Playground

April 11, 2016 April 2016 Feature - CNS, Central Nervous System, cerebral palsy, Family Stories, undiagnosed SN 0 Comments

In 2009, we were ready for children, but we felt no rush. At that point, we were not concerned that there were no children ready for us. But then there was infertility, followed by an extremely painful disruption of a newborn adoption during the revocation period. In the following six months, two more domestic adoptions …Read More

A Seed of Hope

April 6, 2016 ADD, April 2016 Feature - CNS, brain damage syndrome, Central Nervous System, cerebral palsy, cleft palate, Craniofacial, developmental delays, Developmental System, Family Stories, hemiplegia 1 Comments

Our adoption journey started in the summer of 2003. We attended an adoption fair. A family speaking that afternoon had brought their daughter with them to the meeting. The little girl, about seven years old, snuggled up to my husband with a large photo album and began to tell him her story. A story, and …Read More

Love for Leeya

February 12, 2016 cerebral palsy, complex heart defect, Family Stories, February 2016 Feature - Heart, Tetralogy of Fallot 4 Comments

February is Heart Month and we continue to share stories from parents as they navigate life with their heart babies. Each story, each post, each child is special. And for today’s post, this is especially true. Andrea was in the process of writing this post when her daughter Leeya suddenly and unexpectedly passed away. Andrea …Read More

Beauty in the Unknown

August 4, 2015 Central Nervous System, cerebral palsy, Family Stories 5 Comments

The 30 seconds that it took for the doctor to pull up the images from the MRI seemed to take an eternity. It seemed as though time was at a standstill, which I might have thought was true if it wasn’t for the shrieking and laughing coming from our artificial twins by adoption, who were …Read More

Night and Day

June 25, 2015 Central Nervous System, cerebral palsy, Family Stories, mobility issues, walker user 0 Comments

In the mid 1980’s our family adopted two biological brothers from the USA’s foster care system. Both were diagnosed with cerebral palsy. Fast forward to 2013 when we first adopted from China, cerebral palsy was a special need that was familiar to us and one we were confident in handling. According to CerebralPalsy.org, “Cerebral palsy …Read More

special need highlight: adopting a child with cerebral palsy

February 18, 2014 Central Nervous System, cerebral palsy, Family Stories 4 Comments

At the end of a long road of infertility, miscarriage, miracle daughters, and a Korean-born son, we found ourselves at the end of an adoption attempt, that after 4 years, had resulted in a son forever in his birth country due to political reasons. We were devastated. That long process that ended in heartbreak was …Read More

Thank God they ARE mine!

October 14, 2012 cerebral palsy, Family Stories, hearing loss, limb difference, moyamoya, neurofibromatosis, Sensory System 4 Comments

Our story starts in 2004, when I had a complicated pregnancy with my first child, Gianna, and was advised not to ever get pregnant again. This was actually fine with me because I’d always been drawn toward adoption. We adopted our second child in 2007, another daughter we named Camille, from Kazakhstan. After strong suspicions …Read More

Chu Meng

June 5, 2009 arachnoid brain cyst, cerebral palsy, developmental delays, Family Stories, seizures 1 Comments

by Cheri, mom to Chu Meng from China with Arachnoid Brain Cyst (later to find out stroke induced Cerebral Palsy), Developmental Delay, Seizures Chu Meng’s story is a bit unusual but her story all the same. Our family like many families started out as a NSN family. Our LID was May 16, 2006. I started …Read More

Gracen

January 23, 2009 cerebral palsy, Family Stories 2 Comments

By Sheryl, mom to Graycen HongYuan and soon Galia RunYi from China with cerebral palsyWe adopted our daughter, Graycen, in December 2005 as a non-special needs referral. Back then we only waited 7 months from LID to referral, if you can believe that? The short wait is truly what made us not even really consider …Read More

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