Living into Hope
July 31, 2015
ADHD, autism, cl/cp, Developmental System, Family Stories, July 2015 Feature - Craniofacial, speech delay
Today’s post finishes out our feature this month on craniofacial needs. So grateful for all the moms who willingly shared about parenting a child with a craniofacial need – you can find all the posts in this series here. If you would like to share your family story, just complete this short form and we will be in touch …Read More
Microtia. What?
July 23, 2015
BAHA, Craniofacial, Family Stories, hearing loss, hemifacial microsomia, July 2015 Feature - Craniofacial, microtia, Sensory System, speech therapy, velopharyngeal Insufficiency
“My ear hurts mommy.” “Which ear honey? Do both ears hurt?” “No, silly. This one doesn’t hurt. It’s not open. It’s teeny tiny.” Olivia was 3 and this was the first time that I knew of that she noticed that her right ear didn’t match the left. We had never made a big deal out …Read More
Cleft Was Not on the List
July 18, 2015
adopting later in life, cl/cp, Craniofacial, Family Stories, July 2015 Feature - Craniofacial
“You must really like cleft,” my mother said to me after we accepted the referral of our second son with cleft. Like cleft? No one likes cleft. Cleft is a birth defect that causes facial deformation, creates the need for painful surgeries and can wreak havoc on eating, sleeping and breathing. No one likes cleft. …Read More
The Sweetest of Blessings
July 13, 2015
coloboma, Family Stories, frontonasal dysplasia, hypertelorism, July 2015 Feature - Craniofacial
We were a family of six. We had two girls and two boys. Life was good. We felt complete. In 2007 the Lord called us to adopt. What a sweet journey of trust and faith it has been! Our first adoption was of our now 9 year old daughter, Karleigh Mei, 6.5 years ago in …Read More
Her Journey.
July 7, 2015
Education, Family Stories, IEP, July 2015 Feature - Craniofacial, Nicole, public school, speech delay, speech therapy
I recently looked back at my blog archives and noticed that I hadn’t blogged about Sunshine’s cleft journey in over a year! Although that is representative of surgeries, it surely isn’t representative of all the work she’s been doing. My sweet girl has been putting forth so much effort in speech therapy. So although the …Read More