Please Don’t Poke the Bear

July 23, 2017 adopting as first time parents, BAHA, Craniofacial, declining a referral, Family Stories, hearing loss, hemifacial microsomia, July 2017 Feature - Craniofacial, medical needs checklist, microtia, referral, speech therapy, waiting for referral 1 Comments

I call my daughter baby bear. For my first Mother’s Day, my husband presented us with matching mama bear/baby bear bracelets. SJ saw them and exclaimed: “SJ. Mama. Same!” Though I’ve never considered myself a shrinking violet by any means, this process, this crazy-beautiful, seemingly impossible way of becoming parents, has seemed to draw out …Read More

July Special Needs Focus (and Favorite Family Stories): Craniofacial

July 1, 2017 cl/cp, Craniofacial, craniofacial cleft, Family Stories, Favorite Family Stories, hemifacial microsomia, July 2017 Feature - Craniofacial, microtia, tessier cleft 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Microtia. What?

July 23, 2015 BAHA, Craniofacial, Family Stories, hearing loss, hemifacial microsomia, July 2015 Feature - Craniofacial, microtia, Sensory System, speech therapy, velopharyngeal Insufficiency 5 Comments

“My ear hurts mommy.” “Which ear honey? Do both ears hurt?” “No, silly. This one doesn’t hurt. It’s not open. It’s teeny tiny.” Olivia was 3 and this was the first time that I knew of that she noticed that her right ear didn’t match the left. We had never made a big deal out …Read More

When Labels Don’t Stick

October 15, 2014 Carrie, hearing loss, hemifacial microsomia, microtia, sedated ABR, Sensory System 4 Comments

It’s been a year since I paused while writing a post for this very site and glanced at the photo-listings for children on our agency’s website. And I saw her. It was a morning exactly like this one. I was up early, before the sun came up. The cup of coffee growing cold beside the …Read More

Meah

September 22, 2009 Craniofacial, Family Stories, hemifacial microsomia 0 Comments

by Melinda, mom to Meah from China with hemifacial microsomia When my husband and I were in the process of adopting again, we had looked at all the programs and chose to adopt minor special needs from Vietnam. We also thought we would adopt a 2 to 4 year old… little did we know. While …Read More

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