Gaining Independence: Living with Hemophilia

March 23, 2018 adopting a boy, Blood Conditions, Faith, hemophilia, hemophilia A, March 2018 Feature - Blood Conditions, Medical Momma 0 Comments

It’s hard to believe that our oldest son has been home for almost two and a half years. Before we adopted him, my biggest worry was his medical condition. He has Severe Hemophilia, a genetic bleeding disorder. In a nutshell, this means that his blood is missing one of the proteins that help it to …Read More

An Unfinished Family Portrait

March 25, 2017 a father's perspective, adopting a boy, Blood Conditions, Dads, Family Stories, hemophilia, hemophilia A, March 2017 Feature - Blood Conditions, older child adoption, reluctant husband, should we adopt? 2 Comments

Looking up from a pile of leaves, a young, beautiful blonde-haired college girl smiles while being kissed on the cheek by a “somewhat handsome” college-aged boy. That young, twenty-year old girl, now even more beautiful than ever, is my wife, Amber. That college kid, who has not graced the twenty years since quite as well, …Read More

What I Didn’t Know: Adopting a Child with Severe Hemophilia

March 9, 2017 adopting a boy, Blood Conditions, Family Stories, hemophilia, hemophilia A, March 2017 Feature - Blood Conditions, should we adopt?, undiagnosed SN 2 Comments

Adoption for us was not something we thought about for years. It was something that God spoke to us in one day. On March 25, 2013 my husband casually mentioned he had been thinking about adoption. At the time, our daughters were seven, four, and two. I was overwhelmed and had no interest in adoption. …Read More

March Special Needs Focus (and Favorite Family Stories): Blood Conditions

March 8, 2017 Blood Conditions, Favorite Family Stories, hemophilia, ITP (idiopathic thrombocytopenia purpura), March 2017 Feature - Blood Conditions, PKU, thalassemia 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Learning Curve: Adopting a Child with Hemophilia

March 12, 2016 adopting as first time parents, Blood Conditions, Faith, Family Stories, hemophilia, March 2016 Feature - Blood Conditions, referral, waiting to travel, working mom 6 Comments

After a twenty-minute speech about what our daily routine would entail, followed by a list of possible complications, the Hematologist looked at me pointedly… “You know, it will be a steep learning curve for you all, but you will settle into a routine, and more quickly than you think. You’ll see. He’s just a boy.” …Read More

How Adopting A Child With Hemophilia Has Changed Our World

March 2, 2016 Blood Conditions, hemophilia, March 2016 Feature - Blood Conditions 1 Comments

Hemophilia became part of our world on April 28, 2014 when I opened our agency’s waiting child page and saw our son’s profile. I had heard of this rare bleeding disorder before, but I really had no idea what it meant for day to day life. Actually, I did not know any medical conditions would …Read More

Adopting a Child with Hemophilia: What I Wish I Had Known

March 7, 2015 Blood Conditions, Family Stories, hemophilia, March 2015 Feature - Blood Conditions 3 Comments

In honor of Hemophilia Awareness Month, I wanted to write a post to help other adoptive parents understand what can be involved in adopting a child with hemophilia. My son, who came home from China in 2013, has severe Hemophilia A (the most common type of hemophilia), which means that his body does not make …Read More

Adopting a Toddler with Hemophilia

September 26, 2014 Family Stories, hemophilia 3 Comments

Our household looks a lot like the average family; a coupe of kids, a beloved pet and constant chaos.  We ever so skillfully (insert sarcasm) navigate pre-school, after school activities and a whole lot of fun.  By all accounts our life is pretty “normal”.   A new addition to our normal has been the management …Read More

Training Wheels: Learning to Live with Severe Hemophilia

June 30, 2014 Blood Conditions, Family Stories, hemophilia 0 Comments

One year ago I was in China meeting my little boy. When I saw his precious picture on the waiting child list in the summer of 2012, I gasped and immediately requested his file. The blurb next to his picture said that he had hemophilia. I didn’t really know much about this condition, and in …Read More

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