More Than the Girl with the White Hair

September 4, 2017 albinism, Family Stories, IEP, public school, September 2017 Feature - Skin Conditions, September 2017 Feature - Visible Special Needs, Skin Conditions, TVI, visible special need 2 Comments

Emily loves dolls, dress-up, panda bears, ballet, singing while playing her brother’s ukulele upside down, blowing bubbles, Disney World, soccer, and “preaching” to us from her children’s Bible. She has a quick wit and makes us laugh every day. And, she was born with a condition called albinism. And that’s really it. Albinism is just …Read More

Reach for the Stars: Adopting a Child with Vision Impairment

December 1, 2016 adopting a boy, December 2016 Feature - Sensory, Family Stories, nystagmus, older child adoption, opaque cornea, public school, Sensory System, TVI, vision issues, vision loss 0 Comments

It was the second time in his life to ride on an airplane. The first time was only ten months ago when he traveled the 16 hour flight from China to America. On that first flight he was a scared, angry little fighter whose only concern was protecting himself. Now he was a happy, calm …Read More

When Mom Works: Every Single One Needs a Family

October 5, 2016 albinism, declining a referral, Family Stories, October 2016 Feature - Working Moms, referral, Skin Conditions, TVI, waiting for referral, working mom 20 Comments

Navigating work and being a mom is tough under the best of circumstances, but it can feel even more daunting when you toss in the complex issues that accompany parenting your newly adopted child. So this month on No Hands But Ours, some been-there-done-that working mamas are here to help, with advice on everything from …Read More

Not Really a Special Need: Adopting a Child with Albinism

September 26, 2016 adopting a boy, albinism, Family Stories, nystagmus, September 2016 Feature - Skin Conditions, Skin Conditions, TVI, vision issues 0 Comments

No Hands But Ours is focusing on skin conditions this month. My son has albinism, but I hesitated to write our story. Heck, our dermatologist has discharged us. If my son ever has a suspicious mole or a serious burn, we’ll go back. Otherwise, I am capable of – the dermatologist pointed out – totally …Read More

Our Fair-Haired Hero: Adopting a Child with Albinism

September 17, 2016 albinism, Education, Family Stories, older child adoption, public school, September 2016 Feature - Skin Conditions, Skin Conditions, TVI, vision issues 3 Comments

Her name was spoken to us before we even knew who she was…. We had adopted from China in 2011 and just started the process to adopt again. One night I let myself start thinking about names for our new little one and after spending more time than I care to admit looking at baby …Read More

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