More Than We Ever Expected…

May 18, 2019 albinism, developmental delays, Developmental System, Family Stories, global developmental delays, older child adoption, orphanage realities, Skin Conditions 7 Comments

We entered into this adoption full of hopes and dreams just like most people. However, we also understood the realities, especially when adopting from China. We knew the gambles, had read all the blogs and books and articles we could get our hands on. We knew to expect the unexpected… or so we thought. We …Read More

Special is in the Eye of the Beholder

September 11, 2018 adopting as first time parents, Adopting Scenarios, albinism, Family Stories, September 2018 Feature - Skin Conditions, Skin Conditions, switching to another country 2 Comments

It was only a couple of months after we were married that my husband and I started researching adoption. We both wanted a family, and with me being over 40 and having a history of endometriosis, conception without major fertility treatments seemed nearly impossible. We decided, for us, it was more important to parent a …Read More

Magic Mirror Gate: My First Half Year as a Dad

June 30, 2018 a father's perspective, adopting as first time parents, albinism, Dads, first year home, June 2018 Feature - Celebrating Dads, Newly Home, Perspectives, toddler adoption 1 Comments

Since I was super smart about being a parent before I was one, I would often compare it to bowling with bumpers. You put up boundaries, and those boundaries keep your kids in line. BAM – parenting. Done. Where’s my book deal? But so far, six months in, it feels more like I’m attempting olympic …Read More

Everyone Has A Plan

February 26, 2018 a father's perspective, adopting as first time parents, adoption realities, albinism, China trip, Dads, Family Stories, Gotcha Day, Skin Conditions 17 Comments

Elsie and I had very different ways of preparing for our China adoption. She spent the better part of a year setting up a nursery in our home, buying clothes, and watching other “family day” videos on Youtube. She is an optimist and a planner, which makes her the perfect counterpart to a cynical procrastinator. …Read More

Elsie Larson on the Paperchase, Special Needs and Adoption

November 30, 2017 adopting as first time parents, albinism, medical needs checklist, paperchase, Stefanie, waiting for referral, waiting to travel 0 Comments

I found Elsie Larson of A Beautiful Mess on Instagram (@elsielarson) on #worldadoptionday and subsequently spent an inordinate amount of time reading about all the cool stuff she does… including growing their family through adoption. When, a week or so later, I listened to her podcast (in which she shares her thoughts on special needs …Read More

More Than the Girl with the White Hair

September 4, 2017 albinism, Family Stories, IEP, public school, September 2017 Feature - Skin Conditions, September 2017 Feature - Visible Special Needs, Skin Conditions, TVI, visible special need 2 Comments

Emily loves dolls, dress-up, panda bears, ballet, singing while playing her brother’s ukulele upside down, blowing bubbles, Disney World, soccer, and “preaching” to us from her children’s Bible. She has a quick wit and makes us laugh every day. And, she was born with a condition called albinism. And that’s really it. Albinism is just …Read More

September Special Needs Focus (and Favorite Family Stories): Skin Conditions

September 1, 2017 albinism, birthmark, burns, Congenital nevus, epidermolysis bullosa, Favorite Family Stories, ichthyiosis, September 2017 Feature - Skin Conditions, Skin Conditions 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

When Mom Works: Every Single One Needs a Family

October 5, 2016 albinism, declining a referral, Family Stories, October 2016 Feature - Working Moms, referral, Skin Conditions, TVI, waiting for referral, working mom 20 Comments

Navigating work and being a mom is tough under the best of circumstances, but it can feel even more daunting when you toss in the complex issues that accompany parenting your newly adopted child. So this month on No Hands But Ours, some been-there-done-that working mamas are here to help, with advice on everything from …Read More

Not Really a Special Need: Adopting a Child with Albinism

September 26, 2016 adopting a boy, albinism, Family Stories, nystagmus, September 2016 Feature - Skin Conditions, Skin Conditions, TVI, vision issues 1 Comments

No Hands But Ours is focusing on skin conditions this month. My son has albinism, but I hesitated to write our story. Heck, our dermatologist has discharged us. If my son ever has a suspicious mole or a serious burn, we’ll go back. Otherwise, I am capable of – the dermatologist pointed out – totally …Read More

Our Fair-Haired Hero: Adopting a Child with Albinism

September 17, 2016 albinism, Education, Family Stories, older child adoption, public school, September 2016 Feature - Skin Conditions, Skin Conditions, TVI, vision issues 3 Comments

Her name was spoken to us before we even knew who she was…. We had adopted from China in 2011 and just started the process to adopt again. One night I let myself start thinking about names for our new little one and after spending more time than I care to admit looking at baby …Read More

More than White Hair: Adopting a Child with Albinism

September 14, 2016 albinism, Family Stories, September 2016 Feature - Skin Conditions, Skin Conditions 1 Comments

We didn’t plan to adopt a child with white hair. I wouldn’t assume many do when they consider adopting a child from China. I fell in love with our son Noah’s face and short description one night while perusing the waiting children on RainbowKids. Adoption was something my husband and I had prayed about, discussed …Read More

Adopting a Child with “Low Vision”

December 31, 2015 albinism, December 2015 Feature - Sensory, Family Stories, nystagmus, Sensory System, Skin Conditions, vision issues 4 Comments

For 2015 the NHBO team set a goal to focus on all eleven special needs systems, featuring a different system each month. We wanted to not only spotlight the needs within that system, but simultaneously grow the content here on No Hands But Ours. And with the help of the amazing adoption community, we succeeded. …Read More

Mercy: Adopting a Child with Albinism

September 30, 2015 albinism, developmental delays, Family Stories, September 2015 Feature - Skin Conditions, Skin Conditions 10 Comments

In 2011, my husband and I attended a banquet to benefit Ukrainian orphans. Our hearts were stirred for orphans that night. After praying for God’s direction, we chose All God’s Children International as our agency and began the process towards a special needs adoption from China. One afternoon I scrolled through the Rainbow Kids website, …Read More

One Wild and Precious Life: Adopting a Child with Albinism

May 19, 2015 albinism, Family Stories, Skin Conditions 7 Comments

Our adoption story began about four years prior to our actual adoption. I was sitting at work one regular day and just had a random thought to research international adoption. This was not something we had previously discussed and wasn’t something at all on our radar screen. We had – at that time – two …Read More

Adopting a Child with Albinism

November 19, 2014 albinism, Family Stories, Skin Conditions 1 Comments

Our daughter Phoebe was almost nine years old when we adopted her. She is our sixth adoptive child from China, our fifth adoption of an older child, and our first with albinism and with severe visual impairment. The only previous experience my husband and I had with visual impairments is one of our teenage daughters …Read More

In the Palm of My Hand

May 23, 2012 albinism, older child adoption, Shirlee 8 Comments

Last month, I spent ten days with my three sisters and our mother. Just the five of us. No kids. Cheeky was quite worried about who would cook dinner, do the laundry, clean her new ear piercing, drive her to dance while I was gone. In the weeks before I left, she asked me dozens …Read More

Earrings (or Why I’m Not Ready for the Big 1-0)

March 24, 2012 albinism, older child adoption, Shirlee, Skin Conditions 3 Comments

I remember when my four older kids were babies. People would ask, “How old is s/he?”, and I would respond with the number of days or weeks or months. Eventually, my babies became toddlers, and my answer changed from the number of weeks or months to the number of years. The same happened when Cheeky …Read More

Dear Cheeky, I Love You

March 31, 2011 albinism, birth family, older child adoption, Shirlee 0 Comments

Nine birthdays minus seven birthdays equals two birthdays. And Cheeky counts them. Last year. This year. Just as she counted her gifts this morning and noted that she had two more than she did on her eighth birthday. Does that mean we love her more now than we did then? Probably didn’t even cross her …Read More

The Care and Keeping of the Broken Heart

January 25, 2011 albinism, older child adoption, Shirlee 0 Comments

I planned a different blog today. I planned to write about the care and keeping of Cheeky’s hair. We’ve had issues, you see. Food in the hair issues. Marker in the hair issues. Paint in the hair issues. With the big day coming up (have I mentioned that Cheeky is a firefly in a ballet?), I …Read More

All The Things She Doesn’t Say

August 20, 2010 albinism, older child adoption, Shirlee 0 Comments

Sometimes the things our children don’t say are the most important. We went on a walk yesterday. Cheeky is much smaller than my other kids. Shorter legs, weaker body, sweet, sunny personality that gives her no need to move fast, those things make walking a little challenging for my youngest. She tries, though. Oh, how she …Read More

The Proof is in the Pudding

August 1, 2010 albinism, older child adoption, Shirlee 7 Comments

I posted a similar version of this to my adoption blog. I think it is important for those of us who have had easy transitions and whose children have adapted brilliantly to remember that no matter how much it seems that they understand, they still wonder if what we offer is forever. I am back …Read More

She Flies!

June 25, 2010 albinism, older child adoption, Shirlee 17 Comments

I know. My second post here in week. But it has occurred to me that we are, perhaps, too quick to make judgements about a child’s future based on what we see when they are two or three (or younger). Yes, dear friends, it was finally upon us. The BIG DAY. The DANCE. It has …Read More

A Year

June 21, 2010 albinism, older child adoption, Shirlee, Skin Conditions 4 Comments

Cross Posted to my personal blog On Monday, June 22, 2009, Cheeky made the journey of a lifetime. She left the apartment she’d lived in for four years, got in a taxi and traveled to meet her new parents. Meanwhile, I was traveling, too. Riding in a car, talking to our guide and my husband, …Read More

This I Can Give Her

April 6, 2010 albinism, foster care, older child adoption, Shirlee, Skin Conditions 7 Comments

Since my daughter’s birthday, I have been thinking long and hard about what she lost to be part of our family. After blogging about it, I received a number of emails asking if I feel guilty for taking my daughter from a loving foster home. The answer to that is complicated. In a perfect world, …Read More

Not So Different

February 21, 2010 albinism, older child adoption, siblings, Skin Conditions, visible special need 16 Comments

At church Wednesday night, there was an argument between several girls and my older daughter. I was home sick with a migraine, and I heard about the problem Saturday morning while driving to a meeting with the pastor’s wife. Hearing about Sassy squabbling with an entire group of girls over rules to a game they’d …Read More

The Past, The Present, The Future

January 29, 2010 albinism, older child adoption, Skin Conditions 14 Comments

Any good fiction writer knows that a character without a past is a cardboard cut out. No depth. No spirit. No life. An author can write all the angst and emotion she wants, but if her character comes from nowhere, her character will go nowhere. The same is true of life. Without knowledge of where …Read More

No, She Doesn't Have Red Eyes

January 12, 2010 albinism, Shirlee, Skin Conditions 6 Comments

That’s what I said to my mother-in-law last week. Six months since Cheeky joined our family, and this stereotype of pasty-white, red-eyed people with albinism is just coming out and just being addressed. I’ve been thinking about that all weekend. My mother-in-law lives on the other side of the country. She’s never met Cheeky face …Read More

The Christmas That Almost Wasn't

December 28, 2009 albinism, Shirlee, Skin Conditions 13 Comments

Last year, there were four kids bouncing around the house Christmas morning. This year there were five. But there almost weren’t. I was thinking about that this morning. Thinking about how I didn’t even know Cheeky existed on December 25, 2008. That Christmas morning, I had a vague image in my mind of the daughter …Read More

She’s Very Albino, Isn’t She?

November 8, 2009 albinism, Shirlee, Skin Conditions 11 Comments

Why, yes. Yes, she is. Or should I have said, “What would make you say that?” Or maybe, “And you’re very rude, aren’t you?” Only the person who asked the question isn’t rude. She’s Sassy’s jazz teacher, and she’s a very nice person. So, imagine my surprise when I walked into the dance studio last …Read More

Thomas and Eli

November 23, 2008 albinism, CCAI, Family Stories, Skin Conditions 0 Comments

Q and A with Chris, mom to two children from China with Albinism What made you decide to pursue a child through the SN program? When we started looking at the adoption process, we thought filling out the Medical Conditions Checklist was something we were supposed to do as part of the application. When we …Read More

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