“It’s Just the Way God Made Me”

September 11, 2017 amputation, Education, limb difference, missing fingers/toes, Orthopedic, prosthetics, public school, September 2017 Feature - Visible Special Needs, visible special need 7 Comments

Anna Grace is five years old. She loves all things Disney and princesses. Her favorite outings are to the zoo, museum, or playground. She takes dance class and swimming lessons. When she grows up, she wants to be a doctor, dance teacher, singer, or dog trainer. She loves playing outside with her friends, especially if …Read More

Seeing Things Differently

September 9, 2017 BAHA, Craniofacial, Family Stories, hearing loss, limb difference, microtia, Orthopedic, Sensory System, September 2017 Feature - Visible Special Needs, visible special need 0 Comments

Recently someone reached out to ask what I would tell a group of Boy Scouts if I could speak to them as a special needs mom. This friend, who works everyday as a speech therapist, had been invited to speak to a local Boy Scout troop about interacting with children with special needs. Upon reading …Read More

More Than the Girl with the White Hair

September 4, 2017 albinism, Family Stories, IEP, public school, September 2017 Feature - Skin Conditions, Skin Conditions, TVI, visible special need 2 Comments

Emily loves dolls, dress-up, panda bears, ballet, singing while playing her brother’s ukulele upside down, blowing bubbles, Disney World, soccer, and “preaching” to us from her children’s Bible. She has a quick wit and makes us laugh every day. And, she was born with a condition called albinism. And that’s really it. Albinism is just …Read More

Cool Hats and Shaggy Haircuts: Adopting a Child with Microtia

July 18, 2017 adopting a boy, BAHA, Craniofacial, Family Stories, hearing loss, July 2017 Feature - Craniofacial, medical needs checklist, microtia, Sensory System, visible special need 1 Comments

(Let me start by saying I are so far from an expert on the topic of microtia and atresia. Just know that I am a loving mother with a son who happens to have this special bonus feature, not an ENT doctor.) When my husband and I filled out a medical checklist in February of …Read More

Celebrating Her Differences

July 11, 2017 amniotic band syndrome, Family Stories, June 2017 Feature - Orthopedic, missing fingers/toes, Orthopedic, referral, visible special need 0 Comments

Our adoption journey began many years before the first paper was signed and sent off to our agency. My husband and I spent the summer after our junior year in college in China studying language and culture. We actually began dating at the end of our time in China and that summer holds a very …Read More

My Daughter, The Teacher

January 29, 2017 limb difference, Mandy, symbrachydactyly, visible special need 3 Comments

We were in the waiting room at our kids’ new pediatrician’s office when another little boy saw my daughter’s limb difference and ran away to his mom because Lydia’s limb difference scared him. Five minutes later, a little girl ran up to Lydia and Barrett, and with a grotesque look on her face said, “What …Read More

A Doll Like Me: One Adoptive Family’s Story

December 18, 2016 Mandy, port wine stain, Sturge Weber Syndrome, Vascular System, visible special need 0 Comments

As the mom of two children with visible differences, I am always looking for books and toys to help my kids celebrate their differences. This week, my mom called to tell me all about a story she saw on television of a beautiful little girl named Corina who was adopted from China. My mom said …Read More

Uncommon Visible Difference

November 19, 2016 adopting a boy, adopting again, Craniofacial, craniofacial cleft, Family Stories, large families, lateral proboscis, referral, surgery, visible special need 6 Comments

There is an art to a successful adoption announcement when you are adopting a child with a visible difference. You learn to manage the situation, to set up the encounter in ways that you would never think about when you adopt a child who looks more typical. You mention your referral. Your friend expresses excitement …Read More

Not So Different

February 21, 2010 albinism, older child adoption, siblings, Skin Conditions, visible special need 15 Comments

At church Wednesday night, there was an argument between several girls and my older daughter. I was home sick with a migraine, and I heard about the problem Saturday morning while driving to a meeting with the pastor’s wife. Hearing about Sassy squabbling with an entire group of girls over rules to a game they’d …Read More

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