His Story to Tell: Living Life with a Prosthetic
July 1, 2018
adopting a boy, amniotic band syndrome, amputation, Family Stories, June 2018 Feature - Orthopedic, missing arm/leg, Orthopedic, prosthetics, visible special need
We always thought adoption would be a part of our family’s story. After attempting a domestic adoption in between our two biological daughters, we read a story that pulled our hearts toward China. After a lot of prayer, we took a leap of faith. Just a few months later, we were matched with our sweet …Read More
Limb Different – But Beautiful
June 3, 2018
adopting a boy, Family Stories, June 2018 Feature - Orthopedic, medical needs checklist, missing fingers/toes, Orthopedic, should we adopt?, symbrachydactyly, visible special need
It was early 2015 when our journey toward our son Noah began. Unlike so many families that adopt, it was not a lifelong dream of mine that was finally going to become a reality. No, it was a rather quick process that began one night as I laid in bed watching the evening news. Images …Read More
“It’s Just the Way God Made Me”
September 11, 2017
amputation, Education, limb difference, missing fingers/toes, Orthopedic, prosthetics, public school, September 2017 Feature - Visible Special Needs, visible special need
Anna Grace is five years old. She loves all things Disney and princesses. Her favorite outings are to the zoo, museum, or playground. She takes dance class and swimming lessons. When she grows up, she wants to be a doctor, dance teacher, singer, or dog trainer. She loves playing outside with her friends, especially if …Read More
Seeing Things Differently
September 9, 2017
BAHA, Craniofacial, Family Stories, hearing loss, limb difference, microtia, Orthopedic, Sensory System, September 2017 Feature - Visible Special Needs, visible special need
Recently someone reached out to ask what I would tell a group of Boy Scouts if I could speak to them as a special needs mom. This friend, who works everyday as a speech therapist, had been invited to speak to a local Boy Scout troop about interacting with children with special needs. Upon reading …Read More
More Than the Girl with the White Hair
September 4, 2017
albinism, Family Stories, IEP, public school, September 2017 Feature - Skin Conditions, September 2017 Feature - Visible Special Needs, Skin Conditions, TVI, visible special need
Emily loves dolls, dress-up, panda bears, ballet, singing while playing her brother’s ukulele upside down, blowing bubbles, Disney World, soccer, and “preaching” to us from her children’s Bible. She has a quick wit and makes us laugh every day. And, she was born with a condition called albinism. And that’s really it. Albinism is just …Read More
Cool Hats and Shaggy Haircuts: Adopting a Child with Microtia
July 18, 2017
adopting a boy, BAHA, Craniofacial, Family Stories, hearing loss, July 2017 Feature - Craniofacial, medical needs checklist, microtia, Sensory System, visible special need
(Let me start by saying I are so far from an expert on the topic of microtia and atresia. Just know that I am a loving mother with a son who happens to have this special bonus feature, not an ENT doctor.) When my husband and I filled out a medical checklist in February of …Read More
Celebrating Her Differences
July 11, 2017
amniotic band syndrome, Family Stories, June 2017 Feature - Orthopedic, missing fingers/toes, Orthopedic, referral, visible special need
Our adoption journey began many years before the first paper was signed and sent off to our agency. My husband and I spent the summer after our junior year in college in China studying language and culture. We actually began dating at the end of our time in China and that summer holds a very …Read More
Uncommon Visible Difference
November 19, 2016
adopting a boy, adopting again, Craniofacial, craniofacial cleft, Family Stories, large families, lateral proboscis, referral, surgery, visible special need
There is an art to a successful adoption announcement when you are adopting a child with a visible difference. You learn to manage the situation, to set up the encounter in ways that you would never think about when you adopt a child who looks more typical. You mention your referral. Your friend expresses excitement …Read More
Not So Different
February 21, 2010
albinism, older child adoption, siblings, Skin Conditions, visible special need
At church Wednesday night, there was an argument between several girls and my older daughter. I was home sick with a migraine, and I heard about the problem Saturday morning while driving to a meeting with the pastor’s wife. Hearing about Sassy squabbling with an entire group of girls over rules to a game they’d …Read More