One Day at a Time: Adopting a Child with Posterior Urethral Valves

December 14, 2016 hydronephrosis, incontinence, November 2016 Feature - Urogenital, posterior urethral valves, undescended testicle, Urogenital System 2 Comments

Four years ago, when my husband and I started praying about adoption, there were so many decisions to be made. After some time God made His ways clear. A clear path to China! We started to interview agencies and that is when God revealed our son. We were pretty familiar with the children on the …Read More

Embracing the Unknowns

December 7, 2016 ambiguous genitalia, Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System 2 Comments

Our son is adventurous, affectionate, good-natured, and strong. He loves playing outside, blowing bubbles, reading books, and playing with anything with wheels. He is absolutely amazing and the perfect addition to our family. I want the world to know all of this about him. What I choose to keep private is information about his special …Read More

Worth It: Adopting a Child with CAH

December 2, 2016 ambiguous genitalia, congenital adrenal hyperplasia, Disorder of Sexual Development, November 2016 Feature - Urogenital, Urogenital System 3 Comments

When my husband and I first reviewed our daughter’s file, our first thoughts were of disbelief. Here was a perfect, healthy, beautiful eight-year-old who had been waiting for several years on the Shared List. It seemed unbelievable that no one had snatched her up. After all, the special needs listed in her file didn’t seem …Read More

So Much More than His Diagnosis

November 30, 2016 first weeks home, first year home, hypospadias, Newly Home, November 2016 Feature - Urogenital, Urogenital System 0 Comments

I could write for days about our journey — our growth, the process, the joy, the tears, the worries, the peace. But for today, I’ll focus a little on the medical aspect of our story because there are so many unknowns, so much research, so much hope…..and knowing you’re not alone in it helps, if …Read More

It’s Just Poop. Except It’s Not.

November 29, 2016 anorectal malformation, bowel management, imperforate anus, November 2016 Feature - Urogenital, Urogenital System, VACTERL 4 Comments

Has this ever happened to you? You’re scrolling through a list of sweet little Chinese faces and suddenly the photo of a completely adorable child jumps right off the screen at you! You read the profile, genuinely intrigued. Then you get to the medical need listed and you think, “I don’t know what that is, …Read More

His Real Special Need

November 22, 2016 adopting a boy, micropenis, November 2016 Feature - Urogenital, strabismus, Urogenital System, vision issues 0 Comments

Our adoption story started much like everyone’s adoption story… my husband Mark and I decided to grow our family by adopting a baby from China. Our log in year was 2007, just before the Beijing Olympics and a few months before the Hague initiative. We were originally told our adoption would take approximately eighteen months …Read More

When You Know a Child is Yours: Adopting a Child with DSD

November 15, 2016 Disorder of Sexual Development, Family Stories, hypospadias, November 2016 Feature - Urogenital, Urogenital System 1 Comments

When my husband and I first began filling out our medical needs checklist we had no idea what most of the conditions were or what we could, as a family, even handle. We figured anything in the “mild needs” category could be managed. It’s a funny thing that happens though when you see a child’s …Read More

In the Trenches

November 1, 2016 anorectal malformation, bowel management, bronchial deformity, Family Stories, imperforate anus, incontinence, November 2016 Feature - Urogenital, tracheo-malacia, tracheoesophagel fistula, Urogenital System, VACTERL 1 Comments

When my husband and I were researching the needs of our would be son, we turned to various physicians, websites, and blog posts in search of not only what the diagnosis was and what it would entail medically, but also what the day to day parenting for a child with his special needs would be …Read More

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