Life with VACTERL: Staying One Step Ahead

November 21, 2017 anorectal malformation, bowel management, November 2017 Feature - Urogenital, Urogenital System, VACTERL 0 Comments

When we are researching special needs we usually get the big stuff covered: medical necessities such as surgeries, procedures and therapies. Once we check those boxes we feel we are “good to go” and will figure out the rest on the way. At least that’s how I am! We have a son diagnosed with VACTERL …Read More

November Special Needs Highlight (and Favorite Family Stories): Urogenital

November 2, 2017 ambiguous genitalia, anorectal malformation, bowel management, cloaca, congenital adrenal hyperplasia, Disorder of Sexual Development, Favorite Family Stories, hypospadias, imperforate anus, incontinence, November 2017 Feature - Urogenital, undescended testicle, Urogenital System, VACTERL 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Living the Adventure I’d Never Imagined

November 1, 2017 adopting a boy, anorectal malformation, bowel management, imperforate anus, incontinence, November 2017 Feature - Urogenital, Urogenital System 8 Comments

After six years of back-and-forth between should we and shouldn’t we, we’re done and no, we’re definitely not done, we finally decided to adopt the boy we both always dreamed we’d have. I had it all figured out: now that China had lifted the no-cancer rule, we weren’t limited to aging out or more severe …Read More

The Scoop on Poop: All About Bowel Management

June 11, 2017 anorectal malformation, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL 0 Comments

This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More

From Inconvenient to Eternal

May 6, 2017 AFO, April 2017 Feature - CNS, bowel management, Central Nervous System, Family Stories, incontinence, medical needs checklist, referral, spina bifida, waiting for referral, wheelchair user 3 Comments

We had the same picture as so many others at the start: we envisioned a perfect, beautiful, raven-haired little girl from China. When we started exploring adoption and saw that the face of adoption had really changed to be all about special needs, we shifted our thinking. Minor, correctable needs, we thought. Our perfect, beautiful, …Read More

It’s Just Poop. Except It’s Not.

November 29, 2016 anorectal malformation, bowel management, imperforate anus, November 2016 Feature - Urogenital, Urogenital System, VACTERL 4 Comments

Has this ever happened to you? You’re scrolling through a list of sweet little Chinese faces and suddenly the photo of a completely adorable child jumps right off the screen at you! You read the profile, genuinely intrigued. Then you get to the medical need listed and you think, “I don’t know what that is, …Read More

In the Trenches

November 1, 2016 anorectal malformation, bowel management, bronchial deformity, Family Stories, imperforate anus, incontinence, November 2016 Feature - Urogenital, tracheo-malacia, tracheoesophagel fistula, Urogenital System, VACTERL 1 Comments

When my husband and I were researching the needs of our would be son, we turned to various physicians, websites, and blog posts in search of not only what the diagnosis was and what it would entail medically, but also what the day to day parenting for a child with his special needs would be …Read More

Older Children and Incontinence, a Family Story

November 29, 2015 bowel management, Family Stories, imperforate anus, incontinence, lipomyelomeningocele, November 2015 Feature - Urogenital, older child adoption, tethered cord, Urogenital System, VACTERL 0 Comments

Our adoption journey started with two infant adoptions from South Korea, in 2008 and 2010. Our first was a healthy baby boy; our second, a daughter with limb differences. When we considered adding to our family again, we decided to adopt an older child and looked into the China special needs program. We pondered the …Read More

Looking Beyond the Label

November 28, 2015 anorectal malformation, bowel management, Family Stories, imperforate anus, November 2015 Feature - Urogenital, Urogenital System 1 Comments

Gastrointestinal Issues. These two words changed our world and lives forever on December 2, 2012. My husband and I had poured over the list of special needs provided by the Waiting Child Program at our adoption agency and chosen those we felt we could handle emotionally, physically, and financially. Gastrointestinal issues was a special need …Read More

Nothing Else Mattered: FAQs About Anal Atresia

November 24, 2015 anorectal malformation, bowel management, cloaca, imperforate anus, incontinence, November 2015 Feature - Urogenital, recto vaginal fistula, Urogenital System, VACTERL 2 Comments

We saw her face. We fell in love. Nothing else mattered. My husband and I simply wanted to be parents and we knew in our hearts that our children were in China; we just had to go get them. Like most parents to be, we hoped and prayed that our children would be healthy. Our …Read More

Frequently Asked Questions about Complex/Persistent Cloaca

November 13, 2015 ambiguous genitalia, bowel management, cloaca, Family Stories, November 2015 Feature - Urogenital, Urogenital System, VACTERL 2 Comments

Instead of beginning this article with a list of questions and daunting answers, the first thing I want to include is our most frequent ANSWER… These little girls are beyond precious! Our cloaca child is the light of our lives! They need you to come for them and you will reap a million times more …Read More

And Our Family Tree Grew

November 1, 2015 bowel management, cloaca, Family Stories, imperforate anus, November 2015 Feature - Urogenital, Urogenital System 2 Comments

Once upon a time God planted a tiny seed in my heart. A seed for adoption. That fact that it grew at all is truly miraculous. You see, my son had just been born and was in the NICU where he was recovering from his first 2 of now 13 surgeries. He has Spina Bifida. …Read More

Special Need Highlight: Adopting a Child with Complex Cloaca

September 8, 2014 ambiguous genitalia, anorectal malformation, bowel management, cloaca, Family Stories, Urogenital System 2 Comments

I have to be completely honest from the start. We did not choose this special need. We had never even heard of it! And if we had known what it might entail, I can tell you plainly, we would have chickened out. But God knew that and kept us in the dark so He could …Read More

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