November Special Needs Highlight (and Favorite Family Stories): Urogenital

November 2, 2017 ambiguous genitalia, anorectal malformation, bowel management, cloaca, congenital adrenal hyperplasia, Disorder of Sexual Development, Favorite Family Stories, hypospadias, imperforate anus, incontinence, November 2017 Feature - Urogenital, undescended testicle, Urogenital System, VACTERL 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Living the Adventure I’d Never Imagined

November 1, 2017 adopting a boy, anorectal malformation, bowel management, imperforate anus, incontinence, November 2017 Feature - Urogenital, Urogenital System 8 Comments

After six years of back-and-forth between should we and shouldn’t we, we’re done and no, we’re definitely not done, we finally decided to adopt the boy we both always dreamed we’d have. I had it all figured out: now that China had lifted the no-cancer rule, we weren’t limited to aging out or more severe …Read More

The Scoop on Poop: All About Bowel Management

June 11, 2017 anorectal malformation, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL 0 Comments

This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More

From Inconvenient to Eternal

May 6, 2017 AFO, April 2017 Feature - CNS, bowel management, Central Nervous System, Family Stories, incontinence, medical needs checklist, referral, spina bifida, waiting for referral, wheelchair user 2 Comments

We had the same picture as so many others at the start: we envisioned a perfect, beautiful, raven-haired little girl from China. When we started exploring adoption and saw that the face of adoption had really changed to be all about special needs, we shifted our thinking. Minor, correctable needs, we thought. Our perfect, beautiful, …Read More

One Day at a Time: Adopting a Child with Posterior Urethral Valves

December 14, 2016 hydronephrosis, incontinence, November 2016 Feature - Urogenital, posterior urethral valves, undescended testicle, Urogenital System 2 Comments

Four years ago, when my husband and I started praying about adoption, there were so many decisions to be made. After some time God made His ways clear. A clear path to China! We started to interview agencies and that is when God revealed our son. We were pretty familiar with the children on the …Read More

In the Trenches

November 1, 2016 anorectal malformation, bowel management, bronchial deformity, Family Stories, imperforate anus, incontinence, November 2016 Feature - Urogenital, tracheo-malacia, tracheoesophagel fistula, Urogenital System, VACTERL 1 Comments

When my husband and I were researching the needs of our would be son, we turned to various physicians, websites, and blog posts in search of not only what the diagnosis was and what it would entail medically, but also what the day to day parenting for a child with his special needs would be …Read More

Older Children and Incontinence, a Family Story

November 29, 2015 bowel management, Family Stories, imperforate anus, incontinence, lipomyelomeningocele, November 2015 Feature - Urogenital, older child adoption, tethered cord, Urogenital System, VACTERL 0 Comments

Our adoption journey started with two infant adoptions from South Korea, in 2008 and 2010. Our first was a healthy baby boy; our second, a daughter with limb differences. When we considered adding to our family again, we decided to adopt an older child and looked into the China special needs program. We pondered the …Read More

Nothing Else Mattered: FAQs About Anal Atresia

November 24, 2015 anorectal malformation, bowel management, cloaca, imperforate anus, incontinence, November 2015 Feature - Urogenital, recto vaginal fistula, Urogenital System, VACTERL 1 Comments

We saw her face. We fell in love. Nothing else mattered. My husband and I simply wanted to be parents and we knew in our hearts that our children were in China; we just had to go get them. Like most parents to be, we hoped and prayed that our children would be healthy. Our …Read More

Taking Care of Business – part 2

October 17, 2014 incontinence, Jean, spina bifida 3 Comments

In my previous poop and potty post I shared with you about our son who was born with spina bifida and as a result he is incontinent. After watching him sit on the waiting child list the Lord made it clear that he was our son and that we could do this special need. And …Read More

Taking Care of Personal Business

June 15, 2014 incontinence, Jean, spina bifida 6 Comments

In other words this is a poop and potty post! Many of the children that sit and sit and sit on the waiting child list are there because they are incontinent. Which means they cannot control their bowels and bladder. We have brought 2 children home that were in “that situation.” One was diagnosed with …Read More

special need highlight: adopting a child with limited mobility

April 26, 2014 Central Nervous System, Family Stories, incontinence, mobility issues, spina bifida, wheelchair user 5 Comments

It was April 2012. We had just completed our first adoption from Uganda. The 6 month wait had been satisified for the state of Ohio and we’d just fully adopted our new son. Then…we fell in love with a story and a picture. A sweet little boy waited for us in China! 10 months later, …Read More

Baby Bing

March 21, 2011 a father's perspective, Adrian, incontinence, spina bifida 0 Comments

For those who follow along with our Forever Family adoption blog, you would have been introduced to a new potential member to our ever growing family.  And I do mean potential… very strongly potential… but let us recap some of the past couple of months, and how things have shaken down for a couple of …Read More

it’s all from the waist down

March 11, 2010 hydronephrosis, incontinence, Kris 2 Comments

  Yesterday was our first spinal defects clinic, where we met with her entire ‘team’, including her neurosurgeon, urologist, pediatrician, orthopedist, developmental psychologist (or was he a psychiatrist??), physical therapy, social worker, gastroenterology specialist, and her nurse practitioner who connected us to all of these people. It was here we discussed and learned about her …Read More

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