Joke’s on Me: Fibular Hemimelia

June 21, 2018 AFO, Family Stories, fibular hemimelia, June 2018 Feature - Orthopedic, leg length discrepancy, limb difference, medical trauma, Orthopedic, referral, should we adopt?, surgery, trauma, waiting for referral 12 Comments

If you have adopted, you know the overwhelming process of filling out the medical needs checklist (MCC). For those that haven’t, this is a piece of paper with a wide range list of medical needs, each having little boxes beside them, and your job is to check the ones you are open to within adoption. …Read More

Our Journey to Spina Bifida

April 1, 2018 adopting again, April 2018 Feature - CNS, Central Nervous System, Family Stories, hip dysplasia, hydrocephalus, leg length discrepancy, older child adoption, reluctant husband, spina bifida 3 Comments

Our journey to spina bifida started with a book — Knowing God by J.I. Packer. I was reading the book for an online book/Bible study. It was a meaty book, and I struggled to get through many parts of it. But then I read these words: “Nor is it the spirit of those Christians – …Read More

Part of Your World: A Mermaid Tale

June 28, 2016 amputation, Family Stories, fibular hemimelia, June 2016 Feature - Orthopedic, leg length discrepancy, limb difference, missing fingers/toes, Orthopedic, prosthetics 4 Comments

We first saw her profile on our adoption agency’s web page. Her special need was listed as lower leg deformity, a layman’s term for fibular hemimelia, a congenital condition of missing/shortening of fibular bone, curved tibia (shin bone) and underdeveloped foot. I turned to my husband and said: “Hey, she looks kinda cute, but we …Read More

Life’s Little Surprises: Adopting a Child with Fibular Hemimelia

June 8, 2016 adopting again, amputation, Family Stories, fibular hemimelia, June 2016 Feature - Orthopedic, leg length discrepancy, limb lengthening, missing fingers/toes, Orthopedic 1 Comments

Our daughter had been asking for a little sister for awhile…. I had been looking at the waiting child website off and on for a few days when I just happened on his face. It was love at first sight. His diagnosis was malformed right foot. The picture in his file showed that his foot …Read More

Chloe

February 25, 2010 leg length discrepancy, limb difference, missing arm/leg 0 Comments

by Karin, mom to Chloe from China with a SN of a limb difference Years ago, God very clearly led us to start down the adoption road for a little girl in China with a special need that was not considered ‘adoptable’. At the time, CCAA had never allowed a child with this SN to …Read More

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