Full of Surprises

May 17, 2017 Central Nervous System, Chiari 1 malformation, clubfoot, Family Stories, hydrocephalus, hydronephrosis, neurogenic bowel and bladder, spina bifida 2 Comments

When we started our adoption process we wanted a healthy child. That’s what everyone wants – adopted or biological – right? Our hearts changed when we had the privilege of working with special needs kids, and we saw so much life and strength in them that we changed our adoption papers to special needs. When …Read More

The Real Worst Case Scenario

April 9, 2017 adopting as a single mom, adopting as first time parents, April 2017 Feature - CNS, Central Nervous System, Chiari 2 malformation, Family Stories, hydrocephalus, medical needs checklist, mobility issues, neurogenic bowel and bladder, spina bifida, waiting for referral, wheelchair user 1 Comments

When I began the adoption process, in the fall of 2013, I filled out my agency’s medical conditions checklist, or MCC. I was only open to a girl up to age 18 months, but being a special education teacher, I was familiar with and open to a wide variety of medical needs. At the time, …Read More

April Special Needs Focus (and Favorite Family Stories): Central Nervous System

April 1, 2017 April 2017 Feature - CNS, Central Nervous System, cerebral palsy, epilepsy, Favorite Family Stories, hydrocephalus, microcephaly, moyamoya, spina bifida 0 Comments

The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More

Adopting a Child with Hydrocephalus

April 1, 2015 April 2015 Feature CNS, Central Nervous System, Family Stories, hydrocephalus, myelomeningocele, spina bifida 1 Comments

I’ve had this conversation with prospective adoptive parents at least six times in six months, after they hear that my sweet two-year-old girl has Spina Bifida (but before they realize she has hydrocephalus). Me: Oh, so, you have Spina Bifida on your medical checklist? Them: Yep! Me:  Do you have hydrocephalus too? Them:  No…it’s scary. …Read More

Hydrocephalus and Baby Hope

September 29, 2014 Advocacy, hydrocephalus 4 Comments

In the world of adoption advocacy, I’ve kind of become the mom that everyone asks about hydrocephalus. When a parent is reviewing a file of a hydro baby and has questions or is looking for a medical team to take a look, I always seem to get tagged in their advocacy post. “Kelli has a …Read More

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The content found on the No Hands But Ours website is not approved, endorsed, curated or edited by medical professionals. Consult a doctor with expertise in the special needs of interest to you.