November Special Needs Highlight (and Favorite Family Stories): Urogenital
November 2, 2017
ambiguous genitalia, anorectal malformation, bowel management, cloaca, congenital adrenal hyperplasia, Disorder of Sexual Development, Favorite Family Stories, hypospadias, imperforate anus, incontinence, November 2017 Feature - Urogenital, undescended testicle, Urogenital System, VACTERL
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
Living the Adventure I’d Never Imagined
November 1, 2017
adopting a boy, anorectal malformation, bowel management, imperforate anus, incontinence, November 2017 Feature - Urogenital, Urogenital System
After six years of back-and-forth between should we and shouldn’t we, we’re done and no, we’re definitely not done, we finally decided to adopt the boy we both always dreamed we’d have. I had it all figured out: now that China had lifted the no-cancer rule, we weren’t limited to aging out or more severe …Read More
The Scoop on Poop: All About Bowel Management
June 11, 2017
anorectal malformation, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL
This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More
From Inconvenient to Eternal
May 6, 2017
AFO, April 2017 Feature - CNS, bowel management, Central Nervous System, Family Stories, incontinence, medical needs checklist, referral, spina bifida, waiting for referral, wheelchair user
We had the same picture as so many others at the start: we envisioned a perfect, beautiful, raven-haired little girl from China. When we started exploring adoption and saw that the face of adoption had really changed to be all about special needs, we shifted our thinking. Minor, correctable needs, we thought. Our perfect, beautiful, …Read More
One Day at a Time: Adopting a Child with Posterior Urethral Valves
December 14, 2016
hydronephrosis, incontinence, November 2016 Feature - Urogenital, posterior urethral valves, undescended testicle, Urogenital System
Four years ago, when my husband and I started praying about adoption, there were so many decisions to be made. After some time God made His ways clear. A clear path to China! We started to interview agencies and that is when God revealed our son. We were pretty familiar with the children on the …Read More
In the Trenches
November 1, 2016
anorectal malformation, bowel management, bronchial deformity, Family Stories, imperforate anus, incontinence, November 2016 Feature - Urogenital, tracheo-malacia, tracheoesophagel fistula, Urogenital System, VACTERL
When my husband and I were researching the needs of our would be son, we turned to various physicians, websites, and blog posts in search of not only what the diagnosis was and what it would entail medically, but also what the day to day parenting for a child with his special needs would be …Read More
Older Children and Incontinence, a Family Story
November 29, 2015
bowel management, Family Stories, imperforate anus, incontinence, lipomyelomeningocele, November 2015 Feature - Urogenital, older child adoption, tethered cord, Urogenital System, VACTERL
Our adoption journey started with two infant adoptions from South Korea, in 2008 and 2010. Our first was a healthy baby boy; our second, a daughter with limb differences. When we considered adding to our family again, we decided to adopt an older child and looked into the China special needs program. We pondered the …Read More
Nothing Else Mattered: FAQs About Anal Atresia
November 24, 2015
anorectal malformation, bowel management, cloaca, imperforate anus, incontinence, November 2015 Feature - Urogenital, recto vaginal fistula, Urogenital System, VACTERL
We saw her face. We fell in love. Nothing else mattered. My husband and I simply wanted to be parents and we knew in our hearts that our children were in China; we just had to go get them. Like most parents to be, we hoped and prayed that our children would be healthy. Our …Read More
Taking Care of Business – part 2
October 17, 2014
incontinence, Jean, spina bifida
In my previous poop and potty post I shared with you about our son who was born with spina bifida and as a result he is incontinent. After watching him sit on the waiting child list the Lord made it clear that he was our son and that we could do this special need. And …Read More
Taking Care of Personal Business
June 15, 2014
incontinence, Jean, spina bifida
In other words this is a poop and potty post! Many of the children that sit and sit and sit on the waiting child list are there because they are incontinent. Which means they cannot control their bowels and bladder. We have brought 2 children home that were in “that situation.” One was diagnosed with …Read More
special need highlight: adopting a child with limited mobility
April 26, 2014
Central Nervous System, Family Stories, incontinence, mobility issues, spina bifida, wheelchair user
It was April 2012. We had just completed our first adoption from Uganda. The 6 month wait had been satisified for the state of Ohio and we’d just fully adopted our new son. Then…we fell in love with a story and a picture. A sweet little boy waited for us in China! 10 months later, …Read More
Baby Bing
March 21, 2011
a father's perspective, Adrian, incontinence, spina bifida
For those who follow along with our Forever Family adoption blog, you would have been introduced to a new potential member to our ever growing family. And I do mean potential… very strongly potential… but let us recap some of the past couple of months, and how things have shaken down for a couple of …Read More
it’s all from the waist down
March 11, 2010
hydronephrosis, incontinence, Kris
Yesterday was our first spinal defects clinic, where we met with her entire ‘team’, including her neurosurgeon, urologist, pediatrician, orthopedist, developmental psychologist (or was he a psychiatrist??), physical therapy, social worker, gastroenterology specialist, and her nurse practitioner who connected us to all of these people. It was here we discussed and learned about her …Read More