Adopting Kai: Adjusting to ARM (anorectal malformation)

November 27, 2017 adopting a boy, adopting again, anorectal malformation, imperforate anus, neurogenic bowel and bladder, November 2017 Feature - Urogenital, Urogenital System 8 Comments

A while after our family adopted our daughter Hannah, we were touched by the face of a sweet boy who was living at China Little Flower in Beijing. After months of praying and searching, we were finally matched to this child that I had already fallen in love with. When we were able to read …Read More

The Scoop on Poop: All About Bowel Management

June 11, 2017 anorectal malformation, bowel management, cerebral palsy, cloaca, imperforate anus, incontinence, Jennifer B., lipomyelomeningocele, myelomeningocele, neurogenic bowel and bladder, recto vaginal fistula, spina bifida, Urogenital System, VACTERL 0 Comments

This post is intended for informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Poop is a daily topic of conversation in our home. After three years of being in the trenches, I can tell you more than you’d probably ever want to know about it, but it hasn’t …Read More

Full of Surprises

May 17, 2017 Central Nervous System, Chiari 1 malformation, clubfoot, Family Stories, hydrocephalus, hydronephrosis, neurogenic bowel and bladder, spina bifida 2 Comments

When we started our adoption process we wanted a healthy child. That’s what everyone wants – adopted or biological – right? Our hearts changed when we had the privilege of working with special needs kids, and we saw so much life and strength in them that we changed our adoption papers to special needs. When …Read More

The Real Worst Case Scenario

April 9, 2017 adopting as a single mom, adopting as first time parents, April 2017 Feature - CNS, Central Nervous System, Chiari 2 malformation, Family Stories, hydrocephalus, medical needs checklist, mobility issues, neurogenic bowel and bladder, spina bifida, waiting for referral, wheelchair user 1 Comments

When I began the adoption process, in the fall of 2013, I filled out my agency’s medical conditions checklist, or MCC. I was only open to a girl up to age 18 months, but being a special education teacher, I was familiar with and open to a wide variety of medical needs. At the time, …Read More

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