Magnificently Good

December 13, 2018 Central Nervous System, cerebral palsy, developmental delays, epilepsy, hydrocephalus, Lifelong needs, Linny, non-verbal 0 Comments

When people are considering special needs adoption they usually look over a list and decide what they are comfortable with. Looking at the long lists of possible medical needs fearful thoughts can overwhelm even the bravest hearts. Sometimes the uncertainty of needs, often based on misinformation, can generate an automatic “No, not that need”. Here’s …Read More

The Unexpected Gift of Struggling

December 7, 2018 Central Nervous System, cerebral palsy, December 2018 Feature - The Gift of Adoption, developmental delays, Developmental System, epilepsy, IEP, Lifelong needs, undiagnosed SN 1 Comments

If I’ve said it once I’ve said it a thousand times, “Adoption is a gift”. People respond with a smile and a nod of their heads. Sometimes I get to go a little deeper and share details of our story and how we came to be the parents of a child with significant physical and …Read More

Lessons Learned from an Internal Processor

November 23, 2018 a father's perspective, Dads, developmental delays, Developmental System, Down syndrome, Lifelong needs, October 2018 Feature - Developmental, Perspectives, Randall, should we adopt? 0 Comments

Down syndrome is scary. I said that to myself five years ago. It took me awhile to admit it. But I was pretty opposed to all lifelong diagnoses. I had very little information about Down syndrome back then. And the information gaps gave my imagination plenty of space to run freely. I saw the shadows …Read More

The Other Side of the Mountain: Surviving the Death of a Child

November 4, 2018 adopting again, adoption realities, Down syndrome, Family Stories, Lifelong needs, medical expedite, orphanage realities 3 Comments

It was a horrible stomach flu that took us down one by one. The kids were both sick. Ken and I were horribly sick. It was one of those “fend for yourself and hope to see you on the other side” type of illnesses. When the phone rang that morning, I had no strength to …Read More

Loving Our “Lifers”

November 1, 2018 developmental delays, large families, Lifelong needs, Linny, sibling perspective, siblings 5 Comments

Bringing these three home forever was hands down – three of the very best decisions we’ve ever made in our entire 40+ years of marriage! We affectionately refer to these three little girlies of ours as “our lifers” – because we get to keep them for the rest of our lives! I’m sure to some …Read More

The Beautiful Hard Work of Bonding

August 27, 2018 adopting later in life, adopting out of birth order, Attachment, attachment activities, attachment challenges, August 2018 Feature - Attachment Through the Years, baby-wearing, large families, Lifelong needs, Linny, older child adoption, rejects mom 2 Comments

Growing up in the 1960s the only adoptions I had heard of were people who attempted to “match” their own ethnicity with that of a potential adoptive child. I knew of no one who had adopted internationally. Yet for some reason the only desire in my little-girl-go-against-the-flow heart was to one day adopt from both …Read More

One Day At A Time

June 11, 2018 a father's perspective, Dads, June 2018 Feature - Celebrating Dads, large families, Lifelong needs 1 Comments

Throughout my years in elementary school and high school, I always knew what I wanted to be… a professional actor. I don’t know why my hand went up, but in second grade, I volunteered to play Jesus in a skit, and then went on to land the lead roles in two high school plays. Later, …Read More

“Will Adoption Be Good For My Kids?”

April 15, 2018 complex heart defect, double outlet right ventricle, Heart System, heart transplant, hypertrophic cardiomyopathy, large families, Lifelong needs, Megan V., older child adoption, siblings 1 Comments

As I type, I’m sitting still in a sun puddle, watching my 12 year old take Abe’s blood pressure because we are at nearly 10,000 feet elevation on a ski vacation and his heart is faltering as it is, even without the elevation change putting undue stress on his valves. And this is a monitoring …Read More

The Checklist

January 19, 2018 aortic stenosis, complex heart defect, double outlet right ventricle, hypertrophic cardiomyopathy, Lifelong needs, medical needs checklist, Megan V., pulmonary stenosis, TGA 0 Comments

There is a checklist. It is several pages long and includes medical jargon I don’t know and hope I never have to understand. Every person who has adopted has been faced with this list. What are you willing to weather? I agonized over that list, checking and unchecking things depending how I felt in that …Read More

Afraid of the Dark

December 9, 2017 adoption realities, Brandie, first year home, Lifelong needs, Medical Momma, Newly Home, November 2017 Feature - Preparing for Adoption, undiagnosed SN 0 Comments

I was never a fan of haunted houses. I didn’t like the lack of control or the dark spaces flooded with loud, foreboding music. I didn’t like the strobe lights that gave me small glimpses of what I should fear. I didn’t like the anticipation of what was lurking around the corner, eagerly waiting to …Read More

A Life We Never Expected

August 25, 2017 Hillary, Lifelong needs, undiagnosed SN 3 Comments

We can’t help but be subject to it. Our past experiences shape our current perspectives. Our current perspectives shape our expectations for this day and for the future. We see through our own lenses and we tend to measure what we see against our expectations. Sometimes we look up and the horizon seems to be …Read More

For Life: Unexptected Treasures

June 4, 2017 Central Nervous System, cerebral palsy, developmental delays, Developmental System, Lifelong needs, low muscle tone, May 2017 Feature - For Life, seizures, undiagnosed SN 1 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. In our For Life series, we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what …Read More

For Life: What Families of Children with Lifelong Needs Need

May 31, 2017 Central Nervous System, cerebral palsy, hypoxic ischemic encephalopathy, Lifelong needs, May 2017 Feature - For Life 1 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. This month we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what many would believe …Read More

For Life: He Makes Things Beautiful

May 14, 2017 adopting again, large families, Lifelong needs, May 2017 Feature - For Life, medical needs checklist, older child adoption 2 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. This month we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what many would believe …Read More

For Life: The Road God Had For Us

May 10, 2017 developmental delays, Developmental System, Down syndrome, Lifelong needs, May 2017 Feature - For Life, medical needs checklist, waiting for referral 2 Comments

Adopting a child with special needs can be scary. And even scarier when that child has needs that just might require a lifetime of parental care. This month we are hearing from those whose parenting journey has diverged from what most would think typical. They’re parenting children who require more than what many would believe …Read More

Every Life Has Value: Adopting a Child with Lifelong Needs

October 18, 2016 cerebral palsy, cognitive delay, developmental delays, Developmental System, Lifelong needs, non-verbal 9 Comments

I have to be honest and tell you up front that I am writing this while nursing some sore feelings. One too many times over the last month or so I’ve had to fight for my girl. I have had to hear hurtful words. So my heart is tender and a little broken so be …Read More

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