Doctor Friends
February 27, 2018
complex heart defect, endocardial cushion defect, February 2018 Feature - Heart, Heart System, heterotaxy, pulmonary hypertension, single atrium heart disease
When my husband and I first were matched with our son, Jet, we didn’t know a whole lot about the world of pediatric cardiology and congenital heart defects. Our son was born with heterotaxy (complete abdominal situs inversus) with left atrial isomerism, functional polysplenia, interrupted inferior vena cava, partial endocardial cushion defect, tricuspid and mitral …Read More
Dear Could-Be Heart Mama…
February 14, 2018
complex heart defect, February 2018 Feature - Heart, Heart System, heterotaxy, major aorto-pulmonary collateral arteries, medical needs checklist, Morning Star Foster Home, pulmonary hypertension, referral, single atrium heart disease, single ventricle heart disease
Dear Could-Be Heart Mama, thinking of bringing home your own little Broken-Hearted Brave, It’s the morning here, on this Celebration of Hearts, and I wake up to a house full of little hearts — brave and broken ones, that is. We like to call ourselves this “Little House of Brave” — like a warrior rally …Read More
He Is A Gift
February 9, 2017
adopting a boy, Family Stories, February 2017 Feature - Heart, Heart System, HLHS, older child adoption, pulmonary stenosis, single atrium heart disease, single ventricle heart disease, TGA
Our son, Matthew, is eight years old. He came home last year in May 2016. Throughout the adoption process and shortly after arriving home, God reminded us that Matthew is a gift. My husband and I would hear “He is a gift” over and over again. God had to remind us. He had to because …Read More
February Special Needs Focus (and Favorite Family Stories): The Month of Hearts
February 6, 2017
advanced heart failure, ASD, complex heart defect, double outlet right ventricle, Favorite Family Stories, February 2017 Feature - Heart, heart defect, Heart System, HLHS, PDA, single atrium heart disease, Tetralogy of Fallot, TGA, TGV, VSD
The term special needs can sound scary. But it doesn’t have to stay that way. Our goal at NHBO is to equip and inform parents – replacing fear with knowledge – as they navigate the beginning stages of special needs adoption. And then encourage and support those home with their special needs kiddos. We do …Read More
We’re Not Special
January 5, 2016
complex heart defect, Family Stories, Heart System, HLHS, older child adoption, orphan hosting, single atrium heart disease, single ventricle heart disease, TGA
My husband, Bobby, and I are not special. We keep being told that we are. Ever since starting the adoption process, people keep telling us we are “special”. I don’t always know how to respond. I feel embarrassed and totally unworthy. We don’t belong on that pedestal. Have they seen our very un-special home and …Read More
What We Know…
February 28, 2015
complex heart defect, double outlet right ventricle, February 2015 Feature, February 2015 Feature - Heart, pulmonary atresia, pulmonary stenosis, single atrium heart disease, single ventricle heart disease, Tetralogy of Fallot, TGV
We know that adoption is beautiful, don’t we? We know that it is a wonderful way to build a family. We also know that it can be painful, and scary, and even though it can most definitely be a dream come true, it can also hold many frightening unknowns… We have three dreams come true, …Read More