The Club I Never Wanted to Join

March 1, 2018 advanced heart failure, complex heart defect, Family Stories, February 2018 Feature - Heart, Heart System, terminal diagnosis 2 Comments

I’d been part of the adoption community for over 10 years and the heart moms always seemed so special to me. They were so brave and so strong, way stronger than I could ever be; moms who were willing to take this giant leap out onto the ledge of life and death for their children. …Read More

Doctor Friends

February 27, 2018 complex heart defect, endocardial cushion defect, February 2018 Feature - Heart, Heart System, heterotaxy, pulmonary hypertension, single atrium heart disease 0 Comments

When my husband and I first were matched with our son, Jet, we didn’t know a whole lot about the world of pediatric cardiology and congenital heart defects. Our son was born with heterotaxy (complete abdominal situs inversus) with left atrial isomerism, functional polysplenia, interrupted inferior vena cava, partial endocardial cushion defect, tricuspid and mitral …Read More

Dear Could-Be Heart Mama…

February 14, 2018 complex heart defect, February 2018 Feature - Heart, Heart System, heterotaxy, major aorto-pulmonary collateral arteries, medical needs checklist, Morning Star Foster Home, pulmonary hypertension, referral, single atrium heart disease, single ventricle heart disease 1 Comments

Dear Could-Be Heart Mama, thinking of bringing home your own little Broken-Hearted Brave, It’s the morning here, on this Celebration of Hearts, and I wake up to a house full of little hearts — brave and broken ones, that is. We like to call ourselves this “Little House of Brave” — like a warrior rally …Read More

Joy in Broken Hearts

February 13, 2018 cleft palate, complex heart defect, developmental delays, Family Stories, February 2018 Feature - Heart, feeding tube, Heart System, hospital stays, mitral valve regurgitation 0 Comments

I first saw my daughter’s face on my thirty-first birthday. There she was. Staring out at us from a computer screen. Her diagnosis was cleft palate, congenital heart disease, and delayed development. We sought out expert advice from an international adoption specialist and then took the leap of love and said Yes. But as I …Read More

Four Little Heartbeats

February 6, 2018 adopting again, amniotic band syndrome, complex heart defects, developmental delays, February 2018 Feature - Heart, Heart System, Orthopedic, profound deafness, Sensory System, toddler adoption, virtual twins 5 Comments

I’m a mama to four heart babies. And this is our story of becoming a family… our story of going from no children to four children in 15 months. This is our crazy, wonderful life. It was a big day. It was the day my husband messaged me at work and told me that he …Read More

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